6 days free of most symptoms.....scared

Hi everyone...My story started 5 months ago with a YI and then BV..after metrogel then flagyl the burning got worse....its been a few months since then and now i feel better..
I take
Potassium/magnisium/calcium citrate/aloe caps/vitv e/Vit b6 vit b12/omega fish/zinc/coconut oil/high PH water and it got better when i started zyrtec... also acupunture and massage once a week .I was at my obgyn yesterday and he gave me a script for Elavil 50 mg and Lyrica 100 3xday...I have to wait on the lyrica until my insurance clears.
Im scared because I finally feel like Im getting better ,most of the day Im symptom free.. just have an occasional zing or mild itch....My Vulvodnyia is unprovoked. I dont have pain with sex or exams etc. its all external the labia minora.
Ill keep you guys posted, and TY reading all these posts have sooooooo helped me<3

Please keep updating us. I have the same symptoms....external only. Right now my pain is constant and doesn't go away. I am on gabapentin 400mg 3xday. It has brought my pain level down to maybe a 7. I have read good things about Lyrica combined with tricyclics. I see a new Gyno in a few weeks and hope he will prescribe me the same. So, please let me know how you do! Good luck

Hi, how have you been doing on your new meds?

so far I am definitely better. I range from 1/10 to 3/10.....and Im only 4 days in on the Elavil. Havent started the Lyrica yet ....waiting on approval from the insurance. Im still trying to figure out whats causing this. I had a YI then BV and after the metrogel and Flagyl all hell broke loose. But I keep coming up neg on wet mounts. the constant burning is gone now all I have is the zing itch or needle prick feeling. almost what it feels like when a burn or a bad wound is healing...my Dr prescribed me 100mg 3x per day of Lyrica and it costs 500$ so hopefully my insurance pays.I also am on the Oxalate diet and I started to drink PH water of 8.4 only. My urine was acidic. I just want my life back where i dont feel this or think about it every min of the day. how are you doing?

I am so glad you are feeling better bvnh13!! And I hope your insurance comes through for you too. I haven't been feeling well at all. The gabapentin isn't working at all. My pain level is about an 8. My Gyno is incompetent. I was diagnosed with v.v. Yet never had a blood test, never had a urinalysis, never had any wet mounts done. Pretty much told me I had v.v. and gave me the meds. Never told me about the disease, what my options are or anything!! My pain is definately nerve related. It happened also after Metrogel and Flagyl. I have an appt on the 15th with a new Gyno who I PRAY will be better. At least now I am more knowledgable about it and know what to ask. Hopefully he will agree with the treatments of Lyrica and Elavil (Amitriptyline).

Anyway, I will pray for you to continue to feel better and you can get your Lyrica. Keep me updated - Cathy

Where are you from?

Im in Denver, Co...I too think the Metrogel/Flagyl did this to me!!!I hope you feel better soon

My insurance came thru....I noticed a difference with one pill......my mouth is dry and a little drowsy but I like that because is helps with anxiety. the only thing is with taking vit e/fish oil/coconut oil/ etc im getting pimple on my labia....other than that i feel great

That is SO great!! So you are on the Elavil and the Lyrica both? What are your doses? You have given me hope!

Elavil 50mg every night, Lyrica 50mg 3x day..I noticed you tried Nuerontin, I did too and had a strange shooting pain in my stomach so I asked to switch to Lyrica and it seems better.. I hope you find relief soon. Maybe try acupunture. I have been doing that for about a month.. I just think the combo of everything is helping

My appt with my new Gyno is on Tuesday. Going to beg for these meds! Been on Neurontin for 2 months now with very little results.

yeah nuerontin did nothing for me....my pain level is down to 0 to 2 off and on during the day. I get more of the electric shock zing and a itch that last 5 seconds and it gets better. I really think my body didnt know how to handle my infections and my nerves are crazy and my brain still sends the signals. I never had vaginal infections in my life and Im fourty two. Let me know how it goes Ill be thinking about you

I will keep you up-dated. Please also let me know about you. Good, good luck  

Just wondering if you are still doing well on your meds?

so far so good. I have been on Lyrica for a week and Elavil for almost two weeks. I had a small flare the other night but it didnt last and the pain level was only a three. Today was symptom free and I just started spotting so aunt flow is here   the true test for me is right after my period. I will keep posting and updating  

So happy for you!! I see my new dr today. Hoping for the best

Did you see your Dr.? Hope it went well...thinking about you

My new doctor game me ami to try along with my Gabapentin. I am only on my second day...haven't noticed a change yet, but am hopeful. I will let you know