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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
desperate for answers..
2 posters
Page 1 of 1
desperate for answers..
Hello ladies I have yet to be diagnosed I have been to many doctors plan on going back in a couple weeks I have been tracking my symptoms daily I was hoping someone could tell me if it sounds like what they have experienced. I would appreciate any help I could get I am desperate for answers...
05/12: felt fine
05/13: burning
05/14: Some slite burning kinda irritated feeling,
05/15 burning lasted the and some pains burning stopped mid afternoon
05/16 burning in the morning after pee, not as bad as yesterday… lastnight slite burning around 11.40 after pee.. … felt fine rest of the day….
05/17: felt fine
05/18: felt fine had some cream colored discharge
05/19: slight burning in the morning,,,, felt a bit irritated late morning/afternoon
05/20: felt fine seem to have thick white discharge (not much)
05/21: felt fine no burning….
05/22: No burning felt fine had some crawling feelings last night… Feel a little burning mid after noon…. Had some thick cream colored discharge burning is gone this is 4pm
05/23: feel okay kinda achy in the anal area??…
05/24: Felt okay
05/25: burning irritated valva
05/26: same feelings a little worse
05/27: felt some burning in the morning went away …. Feel a little achy
05/28: felt no burning
05/29: some burning after morning pee… 05/30: fell fine
05/31: felt fine
06/01: had mild burning in the evening
06/02: felt fine had some achiness in my clit
06/03: no burning still a bit achy…
06/04: felt fine kinda burned a little after mid-morning pee
06/05: felt fine
06/06: felt some burning late
06/07: felt fine
06/08: felt fine
06/09: felt a bit warm… kinda irritated … burned a little after oral and sex
06/10: felt a little warm and mild irritation.. some swelling felt irritated While at the gym (swelling of my vaginal wall/entrances to vagina
06/11: felt some irritation swelling seems to be going down, feel a little burning around noon… everything looks normal the area near my clit is kinda tender started feeling better around 2… felt fine in the evening
06/12: felt okay had some mild irritation after sex this morning no burning… feeling a bit irritated 1040am .. feel kinda achy
06/13: had some burning with morning pee feel a little irritated… nothing looks red or anything felt fine later in the day
06/14: felt fine
06/15: felt fine
06/16: felt a little irritated felt fine
06/17: feel a bit achy kinda swollen white pasty discharge swelling and irritation went away later in the day
06/18: feel fine
06/19 felt fine
06/20 feel fine a bit irritated/achy
06/21: felt fine most of the day had a little burring in the evening
06/22; felt fine
06/23: feel okay a little irritated/achy feeling felt fine in the evening
06/24: feel fine in the morning feel kinda achy white discharge /swelling burning feelings around 330pm felt fine in the evening
06/25: feeling a little irritated white discharge …… felt fine rest of the day
06/26: I feel okay kinda achy ..buring around 230 …felt fine later
06/27: felt fine when I got up then started feeling achy around 930 felt fine rest of the day
06/28: felt some burning
06/29: felt some burning red vulva
06/30: felt irritated, got my period, felt fine most of the day then started feeling achy around 440pm
07/01: felt some pain last night at the entrance of vagina… today feel some burning vulva looks a little red
07/02: no burning feel a little irritated
07/03: feel fine a little red
07/04: felt irritated
07/05: felt fine
07/06: felt mostly fine
07/07: burning after morning pee then felt fine
07/08: burning this morning felt fine rest of the day some leg pain and pain in the arms right leg right arm some in left foot
07/09: feel fine some pains in the leg and arm
05/12: felt fine
05/13: burning
05/14: Some slite burning kinda irritated feeling,
05/15 burning lasted the and some pains burning stopped mid afternoon
05/16 burning in the morning after pee, not as bad as yesterday… lastnight slite burning around 11.40 after pee.. … felt fine rest of the day….
05/17: felt fine
05/18: felt fine had some cream colored discharge
05/19: slight burning in the morning,,,, felt a bit irritated late morning/afternoon
05/20: felt fine seem to have thick white discharge (not much)
05/21: felt fine no burning….
05/22: No burning felt fine had some crawling feelings last night… Feel a little burning mid after noon…. Had some thick cream colored discharge burning is gone this is 4pm
05/23: feel okay kinda achy in the anal area??…
05/24: Felt okay
05/25: burning irritated valva
05/26: same feelings a little worse
05/27: felt some burning in the morning went away …. Feel a little achy
05/28: felt no burning
05/29: some burning after morning pee… 05/30: fell fine
05/31: felt fine
06/01: had mild burning in the evening
06/02: felt fine had some achiness in my clit
06/03: no burning still a bit achy…
06/04: felt fine kinda burned a little after mid-morning pee
06/05: felt fine
06/06: felt some burning late
06/07: felt fine
06/08: felt fine
06/09: felt a bit warm… kinda irritated … burned a little after oral and sex
06/10: felt a little warm and mild irritation.. some swelling felt irritated While at the gym (swelling of my vaginal wall/entrances to vagina
06/11: felt some irritation swelling seems to be going down, feel a little burning around noon… everything looks normal the area near my clit is kinda tender started feeling better around 2… felt fine in the evening
06/12: felt okay had some mild irritation after sex this morning no burning… feeling a bit irritated 1040am .. feel kinda achy
06/13: had some burning with morning pee feel a little irritated… nothing looks red or anything felt fine later in the day
06/14: felt fine
06/15: felt fine
06/16: felt a little irritated felt fine
06/17: feel a bit achy kinda swollen white pasty discharge swelling and irritation went away later in the day
06/18: feel fine
06/19 felt fine
06/20 feel fine a bit irritated/achy
06/21: felt fine most of the day had a little burring in the evening
06/22; felt fine
06/23: feel okay a little irritated/achy feeling felt fine in the evening
06/24: feel fine in the morning feel kinda achy white discharge /swelling burning feelings around 330pm felt fine in the evening
06/25: feeling a little irritated white discharge …… felt fine rest of the day
06/26: I feel okay kinda achy ..buring around 230 …felt fine later
06/27: felt fine when I got up then started feeling achy around 930 felt fine rest of the day
06/28: felt some burning
06/29: felt some burning red vulva
06/30: felt irritated, got my period, felt fine most of the day then started feeling achy around 440pm
07/01: felt some pain last night at the entrance of vagina… today feel some burning vulva looks a little red
07/02: no burning feel a little irritated
07/03: feel fine a little red
07/04: felt irritated
07/05: felt fine
07/06: felt mostly fine
07/07: burning after morning pee then felt fine
07/08: burning this morning felt fine rest of the day some leg pain and pain in the arms right leg right arm some in left foot
07/09: feel fine some pains in the leg and arm
noelle2530- Posts : 23
Join date : 2014-07-09
Age : 40
Location : MISSOURI
Re: desperate for answers..
Where are you located? And it sounds like it could be nerves.
Alana3- Posts : 1093
Join date : 2012-09-25
Re: desperate for answers..
I am located in Arnold MO, what do you mean by nerves? Isn't that what Vulvodynia is?
Last edited by noelle2530 on Wed Jul 09, 2014 6:33 pm; edited 1 time in total (Reason for editing : added something)
noelle2530- Posts : 23
Join date : 2014-07-09
Age : 40
Location : MISSOURI
Re: desperate for answers..
vulvodynia is broad it just means a painful vulva. There are a million reasons why that could happen. Skin reactions, infections, muscles, nerves, etc.
Alana3- Posts : 1093
Join date : 2012-09-25
Re: desperate for answers..
Right I understand I have been tested for everything and its all negative. My question is do my symptoms sound like Vulvodynia? The burning I experience is on my vulva just wanted to make sure that was clear lol.
noelle2530- Posts : 23
Join date : 2014-07-09
Age : 40
Location : MISSOURI
Re: desperate for answers..
Yes, BUT there are other conditions that can cause symptoms similar to vulvodynia (I'm not necessarily talking about infections, but like Lichen Scleorsis is an example, or something as easy as ureaplasma which many doctors do NOT test for, or strep B which is usually only seen in pregnant women, but hey I got that too!)... I'm just saying until you get a definite diagnosis don't assume its vulvodynia. (And I'm not being a bitch just saying)
That being said! Since you live in Missouri, I would suggest googling a vulovdynia specialist. I found mind by putting in vulvodynia specialist + South Florida in the search bar and I found my doc who is absolutely AMAZING!
Yours does sound like it could be vulvodynia, but what I was trying to say before is there are multiple reasons why vulvodynia can occur, so finding out is crucial to your treatment. I had the nerves and muscles which was a great deal of fun.
That being said! Since you live in Missouri, I would suggest googling a vulovdynia specialist. I found mind by putting in vulvodynia specialist + South Florida in the search bar and I found my doc who is absolutely AMAZING!
Yours does sound like it could be vulvodynia, but what I was trying to say before is there are multiple reasons why vulvodynia can occur, so finding out is crucial to your treatment. I had the nerves and muscles which was a great deal of fun.
Alana3- Posts : 1093
Join date : 2012-09-25
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer