Vulvodynia Support
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» Hope to all my suffering ladies
Feels like there's a lot of pressure down there... Help? En EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Feels like there's a lot of pressure down there... Help? En EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Feels like there's a lot of pressure down there... Help? En EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Feels like there's a lot of pressure down there... Help? En EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Feels like there's a lot of pressure down there... Help? En EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Feels like there's a lot of pressure down there... Help? En EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Feels like there's a lot of pressure down there... Help? En EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Feels like there's a lot of pressure down there... Help? En EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Feels like there's a lot of pressure down there... Help? En EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Feels like there's a lot of pressure down there... Help? En

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Post  morgaan_xo Tue Jul 29, 2014 9:07 pm

Kind of stuck on what to do at the moment. My lidocaine ointment is no longer numbing my pain...My burning pain seems to be getting worse before and after periods and my skin is physically sore(before and after periods)... And when it's not physically sore I have the burning pain that I normally have, and when I'm sat down and I lean forward it gets worse... Almost like it feels like there's to much pressure... Does anyone else have this problem?

morgaan_xo

Posts : 64
Join date : 2014-07-03

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Post  Zbrown Wed Jul 30, 2014 7:44 am

I for a few months felt the same before starting acupuncture then going to physical therapy , majority of my burning pain has lessened but the skin is still fragile and red at times and during intercourse tends to I think split and lightly bleed althowe idk if this is from using steroid ointment at the beginning has this made it fragile ? I also use dialators ATM but should be doing them more frequently. Next place I'm hoping to go is vulva dermatologist. How did your symptoms start xo

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  morgaan_xo Wed Jul 30, 2014 8:16 am

My doctor seems to be set in her ways and doesn't talk about me trying new things... I'm going to suggest a lot of things to her when I next see her!! See my skin has never ripped or anything it's just very sore at times and it's tender to touch and I can't even wipe after I've had a wee... She has prescribed me dilators but they don't make any difference because my pain isn't inside or anything and when my skin is so sore I can't even wipe myself let alone use dialtors so I'm kind of stuck what to do... Because I've seen her a few times and she just keeps telling me to use the lidocaine and dialtors And I've copied what I put on my story when I first joined if you want to have a read...

I'm only 17 and I have been with my boyfriend for 3 years. I have been living with several different problems and unable to have sex for nearly 2 and a half years (the majority of my relationship). I met my boyfriend when I was 14 (I know really young) My mum wanted me on contraception and I had to go on the implant as I suffer with migraines with aura. I was fine for 3 months until I started bleeding all the time and getting cystitis all the time. The doctors were just giving me more and more hormones to stop the bleeding but nothing would work. I started to have a real problem with having sex and with my bladder. I had a constant burning pain and found it hard to urinate with out pain and my bladder would only hold 10-30ml (suppose to hold 300ml comfortably). The doctors finally took my implant out after a year of having it (September 2012, age 15) and was put on the progesterone only injection in the October to stop my bleeding (I never bled while on the injection) I still had all my problems while on the injection. I was finally referred to the hospital to see a bladder specialist (June/July 2013 age 16). I was diagnosed with bladder pain syndrome and bladder pain which I now take solifenacin and amitriptyline for. I thought my constant burning pain and pain during sex would subside along with the bladder problems but it hasn't. I also stopped taking the contraceptive injection because I thought it was down to hormones. I was referred to a gynaecologist who told me I had vaginismus without even examining me and prescribed my dilators... at this point I was willing to try anything... I became so down and it had start to take its tol on my relationship me and my boyfriend had split up last year in the October... I wasn't coping with anything at this point and went back to my bladder doctor(she was lovely) and she examined me and said my skin looked raw and prescribed me a steroid cream which I had a really bad reaction to over Christmas (was back with my boyfriend at this point) I had severe thrush and swelling so I went to the nhs who were really concerned that I was using a steroid cream for a skin condition that hasn't been diagnosed. They then examined me and said I need to come back and see there Doctor. I went and saw the doctor who diagnosed me with vulvodynia but said there isn't anything she can do for me and that I need to get my thoughts in my head to match the thoughts in my vagina, basically telling me its all in my head. I burst into tears when I left the room. I went back to see the gynaecologist at the hospital who felt sorry for me and said it does sound like vulvodynia but she also thought it could have been down to hormones too as it takes a year for the injection to wear off. She prescribed me lidocaine gel, which to begin with really helped, I had good times and bad, sometimes it hurt more than others and there has been some weekends that it hasn't hurt at all. I noticed sometimes I felt like I had a deep bruising pain. (I thought this could be my injection wearing off) I'm starting to have periods again but they are all over the place. I saw the gynaecologist again a couple of weeks ago and she did a scan and blood tests and everything is normal... I was hoping for them to find something!!! So now I feel like I am stuck and I just don't know what I can do. MY cycle is all over the place and even using the lidocaine my burning pain is still there pretty much all of the time, my body just randomly decides when it doesn't want to hurt (very rare) please someone help or give some advice?????

morgaan_xo

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Join date : 2014-07-03

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Post  Zbrown Wed Jul 30, 2014 10:45 pm

It is awful what some doctors come off with :/ I don't really know what started mine tbh I was on cliest 4 years no problems odd spot bleeding , a healthy sex life never no pain cystis thrush was acctully never really sick :/

Then out of the blue gazillion problems Sad it is a hard thing to battle physo has helped me loads about how tight my pelvic floor was and I do understand when the skins so bad not being able to do dialators sometimes I get really sharp burning. I hope we all find something to help I think everyone's has a different cause. Steroid cream was a big no no for me it made my skin fragile I used it without even having a biopsy on my skin bad call caused skin to tear :/ have u tried any meds ? Xox

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  morgaan_xo Thu Jul 31, 2014 5:20 am

Mine was bruing before it a started so wasn't a shock when it all started, just can't believe I'm
Two and a half years down the line and still no answers or help, and that's what's doctor did they just prescribeds the steroid cream by looking!!

I just need to find something that suits me, or I need more tests, my body is on a funny one at they omens and something is seriously not right!! And I'm on nortrytilin For my bladder but that hasn't made any different to my vaginal pain, have you tried any meds?xxx

morgaan_xo

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Post  Zbrown Thu Jul 31, 2014 2:29 pm

It is crazy how unsympathetic they can be , like it's not as bad as you think crazy

Zbrown

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Post  morgaan_xo Thu Jul 31, 2014 3:31 pm

It is I had one doctor tell they can't do anything and I have to live with it... It's shocking!!xxx

morgaan_xo

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Post  Zbrown Thu Jul 31, 2014 10:27 pm

One said to me it was dermatitis learn to live with it and give me some odd cream which done nothing , but she never done any tests just visually looked ! I walked out of there in tears until I finally found this website and went to my proper gp and paid privately and just worked my wY around things from there. It is better but I still think there's room for improvement. Keep trying things will get better xxx

Zbrown

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Post  morgaan_xo Mon Aug 04, 2014 9:28 am

That's exactly what everyone has been like with me and I have joined this to see if I can find help, feel like I'm stuck at a dead end at the moment!xxx

morgaan_xo

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