New to forum but not new to vulvodynia

[Nelliewelly]

New to forum. Based in UK (south east). Just come from another gynae appointment- you have to laugh or you'd cry. Gynae suggested injections to turn off ovaries then hysterectomy. I am 40 and had 2 major vulvodynia flares lasting months-years since I was 20. This is third flare caused by a dreadful routine cervical smear by professional nurse (?!?!) in December 2013. I try to stay positive, don't we all? But, get fed up with lack of support/advice. I would like to hear from anyone in UK who sees a specialist - i can only only find Dr Wendy Reid but there must be more than one. I think I need to take control of this as am slipping into depression and I need to find a way to deal with this. The previous occasions I had these symptoms I was told I had thrush (yeast) and uti and took tablets and thrush treatment and eventually it went away - frustrating as I never tested positive for thrush and am sure those creams did more harm than good. I believe I had vulvodynia then but this was never diagnosed. I think there are so many things to try that I need to be more proactive and research more than I have done. Just wanted to post here as I read forum all time and am hopeful that we can all find some respite from vulvodynia. I believe there are lots of triggers and lots of treatments but 'one size' does not fit all. Anyway, just wanted to finally post a 'post'. H xx

[Alana3]

what in the world would that do?  Great treatment for endometriosis but certainly not for vulvodynia.  Do not go thru that.

[Nelliewelly]

Thanks for reply. I won't be turning my ovaries off any time soon. Googled all his advice/medications when I got home and thought this is JUST WRONG. I am however now determined to find a decent specialist who is not so dramatic with diagnosis. I was so shocked he suggested it that I didn't ask what effect it would have ... He gave a big old smile and ushered me out of office!! I laughed all way to car park.. and also ran a little a bit as was slightly panicked!! I think he thought it might be hormonal so I would think blood tests first.... I might add he did not examine me or seek any detailed information about my symptoms. Scary and funny at same time. H x

[Alana3]

That's horrifying! I'm glad your smart enough to not do that as it is a very VERY wrong diagnosis!  Find a specialist and I think it'll help you loads  hope you're feeling OK today!!!

[bearferret]

I know it may not work for everyone but I went to the GUM clinic, really embarrasing, but wow was the doctor understanding. Amitryptilin in v low dose for three months and I'm all better, well almost not quite the same sensation down there, but no pain.

Have you tried Amitryptilin? It an anti depressant that you take in a much smaller dose and it retrains the nerves. Worked wonders for me, but the I have a new boyfriend who has been great and understanding so some of it could be his help.

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