Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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» Hope to all my suffering ladies
Need Readers for a New Book - Vagina Talks EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Need Readers for a New Book - Vagina Talks EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Need Readers for a New Book - Vagina Talks EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Need Readers for a New Book - Vagina Talks EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Need Readers for a New Book - Vagina Talks EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Need Readers for a New Book - Vagina Talks EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Need Readers for a New Book - Vagina Talks EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Need Readers for a New Book - Vagina Talks EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Need Readers for a New Book - Vagina Talks EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Need Readers for a New Book - Vagina Talks

5 posters

Vulvodynia Support :: Vulvodynia Info

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Post  vagina talks Mon Aug 25, 2014 4:52 pm

Good Morning,
I was a member of this group years ago when I suffered with vulva pain and irritation for over 15 years. I've been cured for 5 years now and want to share what I learned with other women in a book I've written, Vagina Talks.
It looks at vaginal health within the larger cultural context of women's health and sexuality.
I want this book to be truly helpful to women who suffered like I did with no hope in sight.
I am looking for about 5 readers for each chapter of the book.
I want to know what questions your chapter leaves unanswered. What topics you would add. What information you are looking for on the topics in your chapter that I haven't already addressed.
Each reader will receive a free copy of the book when it goes to press in December.
If you are interested in being a reader, please let me know!

You can also join the Facebook Group at: Vagina Talks
Thank You,
Alison Buehler

vagina talks

Posts : 1
Join date : 2014-08-25

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Post  Alana3 Mon Aug 25, 2014 5:50 pm

Sounds interesting!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  meelie Tue Aug 26, 2014 3:25 pm

I would be interested in helping but will admit I am most interested in knowing how you cured it.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  Alana3 Tue Aug 26, 2014 5:57 pm

Meelie- I'm sorry, I do read your stuff, but it tends to be overwhelming in remembering everyone's specific problems.  Is yours provoked or all the time?

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  meelie Tue Aug 26, 2014 8:24 pm

We think mine is from pelvic floor dysfunction. It is burning all the time but seems to o away while I sleep, I take xanax to sleep, and then after about 2 hours after being up out of bed it starts again. So, of course, I can't wait till bed time. Makes for a miserable way to dread my days. GYN says skin looks okay, I take a hormone replacement and have been for years and years and years. Have had a hysterectomy, my pain started after a bad bout with constipation three year ago in Sept.
Hope that helps. Neurontin didn't help. Amitriptyline drove me crazy. No one will give me pain med. Got some tramadol the other day for bad back, it was like squeezing blood out of a turnip to get it. I haven't tried it yet. Been taking out of date percocet but I am about out. I am panicked to think I will not have anything to give me a break once in a while. Everyone who asks for pain med IS NOT AN ADDICT. But Dr.'s don't understand. I would love to pour acid on their vulva's or penis's and see what they think.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  zarli Wed Aug 27, 2014 12:24 am

I would love to be apart of your book. Thank you for the opportunity.
Kind Regards

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  Qu_789 Sat Apr 30, 2016 5:15 pm

Hi, I know these posts were from a while ago...but did you ever publish the book?

Thanks

Qu_789

Posts : 6
Join date : 2016-04-30

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