Vulvodynia Support
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» Hope to all my suffering ladies
When things cant get any worse... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
When things cant get any worse... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
When things cant get any worse... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
When things cant get any worse... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
When things cant get any worse... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
When things cant get any worse... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
When things cant get any worse... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
When things cant get any worse... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
When things cant get any worse... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


When things cant get any worse...

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Post  sailor_moon Wed Aug 27, 2014 6:59 am

I never thought my life could possibly get any harder. Dealing with this V shit, feeling ill and fatigued all the time, in constant fear of losing my job and marriage.

The last 4 days have been hell for me and it is only going to get harder. I had a tragic accident happen that has completely ruined my world.

My cat, which is the closest thing I have to a child, got attacked by a dog. My husbands dog. My cat is an indoor cat and despite constant introduction to cats, the dog has never been able to be trusted.

My cat managed to sneak outside past me when I opened the door. My husbands dog attacked her and I ran in to save her. I got bitten and injured my knee in the process. The hospital believes I may have torn ligament.

I rushed my cat to the vet. The vet kept her in and put her on antibiotics and pain relief. 2 days later they told me I could bring her home. At home the wounds looked really deep and smelled really bad. She would not eat. It was a devastating sight to see. My other cat has been so distressed.

I took my girl back to the vet today and the wounds are deep and badly infected. They said it is not looking good and she may have to have a $3000 operation to try and fix her, which only has a 50/50 chance of working. They are giving her different antibiotics, putting her on a drip and giving her pain relief.

I have never been so sad and scared in all my life. I know to many people reading this it is just an animal, but my cats are my children.

I can't stop crying. I can not afford to pay $3000 for an op that only has a 50 / 50 chance of recovery. If it guaranteed recovery I would do it and redraw on my house loan. But I may have to have a vestibulectomy which will cost thousands and I do not have insurance. I am distraught....I don't know how I am going to cope if I have to put her to sleep, my cats are all I have.

I have an incredible amount of guilt for not realising she had snuck out. I feel like it is all my fault. I am the reason my pet is fighting for her life.

I do not want to keep the dog. She was so vicious, it was scary. There are many cats in the neighbourhood in danger as this dog can jump our 5ft fence. I told my husband many times that we need to get rid of the dog, she has killed neighbours chickens and a goat in the past. No matter how we discipline, she does not change.

I am so sorry for ranting on here about a cat, but I am literally lost. I feel sick in the stomach. I can not believe I am dealing with this on top of this V shit. I feel so alone. I can't stop crying. I do not know how I will cope if I lose her. My cats are the closest thing I have to children. I feel like I am cursed.
sailor_moon
sailor_moon

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Join date : 2014-07-06
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Post  meelie Wed Aug 27, 2014 1:46 pm

I am so very very sorry about what is happening to you. I understand that your cats are your children as my animals are also my children, even my 1000lb horses. I know your physical and emotional pain is great.
I wish you had taken your baby to a different vet in the first place. I have worked for a vet ad I'm also an RN and I don't think he did right for you in the first place. But that isn't my call.
I will pray for you and your baby. Do not feel guilty. Cats sneak out. That is what they do. The dog did it not you. As for the dog and I love all animals, I think he is dangerous. If he would do this to a cat and other animals who knows when it will turn to little children.
It is not the end of the world. I know it feels like it. I so wish I could send you the money you need for your vet and med bills but we are retired and on a very fixed income that we can hardly make it on.
If you have a faith, pray for strength and healing. I don't know why we have such trials. I am a believer but I don't the study the Bible like I should. I just know that there is a God and Jesus Christ died for us.
Please let us know how things work out. Your baby loves you and knows that you will do the right thing for her. God bless.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  sailor_moon Sat Aug 30, 2014 7:12 am

Thankyou for your kind words Meelie.

My darling girl had to be put to sleep yesterday. Her wound was too badly infected, she was being force-fed through a tube but the infection was just too much. I couldn't let her suffer anymore. When I saw her I burst into tears...she had no life left in her. Though she was dosed up on morphine, I could see how badly she was suffering. As heartbreaking as it was, I had to think of my poor cat, and not myself. I had to let her go, not continue to let her suffer, knowing that either way the outcome would be the same.The vets even stopped charging me for treatment because they wanted to continue trying to save her even though it was beyond my financial circumstances. I am not happy with the way they treated and dismissed my baby either...I can't help but wonder if I had sent her to another vet would she have survived?

My poor baby purred right up until she took her last breath. It broke both mine and my husbands hearts.

I can not stop crying. I can not eat without wanting to throw up, so I just havn't eaten at all. I can't get the images of the whole event out of my mind. I can't sleep. The guilt I feel makes me sick.

I told my husband the dog has to go. He won't accept it, even though he has been devastated and in tears himself over our cats death. I have another cat, a beautiful Siamese, who I CAN NOT afford to risk losing. The dog can jump over a 5ft fence and we have had nothing but problems ever since we got her, she has killed a goat and chickens previously and I told him to get rid of her then, but he wouldn't. I look or hear the dog and I am so full of hate. He owns 2 dogs and while the other one has never sown any sign of aggression, I no longer want either of them on my property.

No-one understands that through all this vulvodynia shit, my cats [now one cat Sad ] are all I have. Pets are the only living creature who are never going to turn around and say they don't love me anymore or can't deal with me anymore or can't help me anymore. People can just leave you at any time, pets love unconditionally no matter what. So many times I have been home alone and just cried and cried, and one or both of my cats would come over and sit on my lap and show their affection. While everyone else just tells me to get over it. Most women on here probably think I am an idiot for posting about a cat. Sad I just feel lost.

sailor_moon
sailor_moon

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Join date : 2014-07-06
Location : Australia

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Post  meelie Sat Aug 30, 2014 1:48 pm

I am so very sorry to hear this. I do know your pain, I've been their many times in my life. The pain for people like us is equal to losing a human baby. Time does not heal but it will make the pain duller so that you can function. I would think of changing vets though.
Are you in the USA? If you could get the people who have lots animals due to the dog to complain and make a case against the dog you have a better chance of getting it off the property. I love all animals but I could not have one that tries to kill another and another thing although the other dog doesn't show any agression their is a thing called "pack instinct". When one dog attacks an animal the others join in. This happened years ago to our own goat and dog. My animals got a long great, dogs loved the goat played with him and accepted him. A strange dog came up and attacked the goat without us knowing and our dogs joined in. A neighbor called when he heard the commotion and i could not believe my eyes. My dogs were a part of it.
The goat lived, touch and go for while, and my dogs never bothered him again. It's this pack instinct that will never be bred out of them.
Maybe you could talk your husband into finding him another home without cats.
The damn V makes everything worse and no one can understand. I have spinal stenosis and my back has gone out again yesterday. I started on Wellbutrin because the situation has caused me such depression that I have had some really bad thoughts. Not working yet, maybe a little less anxious, but the depression is still here.
Doesn't matter what others think about how we love our animals. I raised to sons, both of whom are productive members of society but both are so busy with their lives that I rarely see them. They just don't need me anymore. Raising them was the happiest time of my life but now that I am not needed I feel useless. My animals are the only things in my life that need me. Not being wanted is one thing, not being needed is worse.
Prayers for you. And please let me know how you are doing.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  lavrose Tue Sep 02, 2014 2:49 am

ok, first of all, Get rid of that dog!!! Maybe its a sign you should get rid of your husband too .. Rolling Eyes

I have had many dogs in my life who co habituated with my cats and never had a dog viciously mall any of my cats, yes they chased tormented, or scared them, and actually Ive had cats scratch my dogs in the face, and that's as violent as it ever got..its not normal and that dog is vicious..period.

as far as you feeling bad about accidently letting the cat out. first of all, Cats are sneaky.. its IMPOSSIBLE to be able to guard the door and the cat all the time 24/7, when there is a million other things going on, the cat was BOUND top sneak out , out of your sight, at some point, I used to have cats escape outside all the time, even when I was HYPER VIGILANT, cats are curious, and they will sneak out sometimes, its NOT your fault! That dog, on the other hand is a vicious, dangerous, animal.
lavrose
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Post  lavrose Tue Sep 02, 2014 2:51 am

what Im saying is, this was bound to happen. at some point. and the dog being the way that it is, you cant control that. Most dogs aren't like that.
lavrose
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Post  lavrose Tue Sep 02, 2014 2:58 am

and by the way , my mother and I are very attached to our animals, they have a spirit just like we do, I feel very strongly about my animals. It sound like right now, they are all you've got, so its completely normal and actually healthy for you to feel this way. It sounds like you feel very alone, and your husband is being a douche. Its ok, most men are.

No one understood me about my Vulvodynia, no one did. And I lost most of my relationships because of it. animals do Love unconditionally.

Don't feel guilty, your heart is in the right place, sometimes things happen that we cant control, even with the best intentions.
I ended up leaving my old cat in a hotel room with a carrier ,  a note to the hotel manager, and $40, when I was on the road, trying to find a place to live. She was sick and losing control of her bowls, and I had that cat for years.

It was sad, and to this day, I still feel guilty about it. I should have just put her down at the vet, and held her in my arms, but I was on the road, in a strange town, and had to leave that morning with our Uhaul, and my 4 month old baby girl. I was under a lot of stress. I carry the guilt but what could I have done.

Your situation is different tho, its that dog.
lavrose
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Post  sailor_moon Wed Sep 03, 2014 11:05 am

Thankyou ladies.

It has been so hard but I am trying my best.

I told my husband that either he find another home for the dog, or I will be calling the local pound ranger myself to come and collect the dog. He might hate me for it if I do it but yo be honest I couldn't really give a sh*t with everything I have had to go through.

I will not put up with it. I told him, it is like when you see on the news a child gets murdered and the childs parents can't get their closure and peace until the killer gets put in jail. Same feeling. He did not see the dog being vicious so he does not get it!!!
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