Vulvodynia Support
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» Hope to all my suffering ladies
Anyone tried botox?  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Anyone tried botox?  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Anyone tried botox?  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Anyone tried botox?  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Anyone tried botox?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Anyone tried botox?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Anyone tried botox?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Anyone tried botox?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Anyone tried botox?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Anyone tried botox?

+2
Alana3
yoginimom
6 posters

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Anyone tried botox?  Empty Anyone tried botox?

Post  yoginimom Tue Oct 21, 2014 2:45 am

I went to my internal physio again today and she recommended i try botox injections in the vaginal muscles. Has anyone tried that approach? Any thoughts?

yoginimom

Posts : 60
Join date : 2014-08-08

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Post  Alana3 Tue Oct 21, 2014 7:20 pm

I was going to, but too many side effects. If you do decide to go that road it's perfectly fine if you have vaginismus! But only muscular problems. Make sure you have a doctor who knows what they are doing. There are a ton of side effects that could occur if your doc is not proficient in injecting the Botox. I won't scare you with side effects, because it's a good treatment option with the right doctor (just like everything else).

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  yoginimom Tue Oct 21, 2014 7:22 pm

what is vaginismus?

yoginimom

Posts : 60
Join date : 2014-08-08

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Post  Alana3 Tue Oct 21, 2014 7:24 pm

when your muscles are affected.

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  annealexander Wed Jun 10, 2015 3:49 am

I’ve never even heard of any treatment that involves taking botox injections in the vaginal muscles. What Alana3 said is right. You need to do your due diligence to find the best surgeon around who does something like this. I can only imagine the side effects if something goes wrong.  Sad  I spent a whole 3 months searching for and shortlisting good surgeons for my botox lip injections in Langley. I finally chose a nearby skin care clinic called Beauti-med. I don’t know if they do vaginal botox injections though. You may check on their site- beauti-med.com

annealexander

Posts : 1
Join date : 2015-06-08

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Anyone tried botox?  Empty Tried Botox twice not worked

Post  teresa6115 Thu Oct 15, 2015 11:09 am

Hi Ladies,

I am new to this but desperate for help, I have suffered for three years now having paid private for several specialists after useless Doctors appointments. I have tried Botox twice under a specialist it is very painful and did not work for me. I have yet another appointment today with Womens Hospital to discuss the use of dialators! Creams have not worked I am on Pregabalin which works a little to relieve the constant pain. I am a little down at present and this is difficult as I am not in a great place. I have a very supportive husband of 33 years who has been my rock through this. My family are very close and are always there for me. However I know I do not have the dreaded C or anything life threatening but I feel this is wearing me down. I have had constant back ache since March and do not know if this is related or I am just getting old 53. My husband has encouraged me to join this forum for support. He is amazing!

teresa6115

Posts : 4
Join date : 2015-10-15
Age : 61
Location : Birmingham

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Anyone tried botox?  Empty Botox

Post  amyhp Thu Oct 15, 2015 7:42 pm

I have had Botox many times and it did not work to take away my pain. It relaxed my muscles, but my pain stayed the same. I would say if your pain is just with sex, it would be worth the shot. I know a lot of women have had success.

amyhp

Posts : 34
Join date : 2015-09-22

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Post  web96 Thu Oct 15, 2015 11:16 pm

I believe the idea of Botox is to paralyze the nerve to reduce pain. I haven't had Botox before but I am planning on undergoing Prolotherapy/Neural Therapy with a Naturopathic Doctor, that is, injections of a Dextrose Solution with Lidocaine over the next few months to numb the nerve. I have contact nerve pain localized to the vestibule area after experiencing severe irritation for years caused by a sulphate allergy.
web96
web96

Posts : 24
Join date : 2015-03-15
Location : Canada

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