Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Newly diagnosed EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Newly diagnosed EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Newly diagnosed EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Newly diagnosed EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Newly diagnosed EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Newly diagnosed EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Newly diagnosed EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Newly diagnosed EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Newly diagnosed EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Newly diagnosed

2 posters

Go down

Newly diagnosed Empty Newly diagnosed

Post  drivenbyambition Mon Mar 02, 2015 11:35 pm

My story started when I noticed a burning sensation last year. My period was late and I wore a maxi pad in fear of my period starting unexpectedly. I got very irritated and eventually ended up with bacterial vaginosis (that I believe happened due to the maxi pads). When I went for my pelvic exam, I was diagnosed with the previous mentioned condition, but was told treating it would not heal my inflammation. I was told to use diaper rash cream, hydrocortisone, etc. Nothing helped. Fast forward to this year, I began seeing another doctor, an OBGYN. He prescribed a cream at first, which gave a little bit of pain relief the first few days, but discontinued when I realized it was not working. He said if this cream did not solve my issue, it would be time for a biopsy. He said it could be a number of conditions because vulvar issues do not present themselves the same way in each woman. This past appointment, last Monday, I had the biopsy. I cannot describe the pain I went through with the lidocaine injection. It was bearable, I did not cry, but I never want to have another one. I was absolutely miserable this past week. I received the official call that I have vulvodynia and will be referred to a specialist. I have been prescribed Gabapentin, which the side effects scare me, and my husband I both wonder how an oral medicine is going to help with the redness and inflammation. I am so very scared to never be the same again. I'm scared about the long-term effects of this medicine on fertility, because I am yet to have children. Sorry for the long post, and as much as I hate this condition, I am glad I have found a place where I'm not ashamed to talk to others about it. It's been hard this past year, because no one has understood my every day struggle. Thanks for reading.

drivenbyambition

Posts : 8
Join date : 2015-03-02

Back to top Go down

Newly diagnosed Empty Re: Newly diagnosed

Post  meelie Thu Mar 05, 2015 1:04 am

Please let us know what your specialist says. Gababentin (Neurontin) is actually a seizure medication that has been discovered to help to numb nerves and decrease nerve pain. It is prescribed a lot for what we have. Also Lyrica is one of those that is newer but costs more. It is also prescribed for people with Fibromyalgia and Diabete nerve pain. You can look it up on the net, google it. It should tell you if it's been okayed if you get pregnant. Don't know anything about a long term effect for when you bet pregnant later. I imagine it doesn't change in Chromosomes so it should not affect a future pregnancy especially if you are already off of it. I can't imagine, though, pushing a baby out of my vulva burning like it does. Ouch. Or even getting pregnant for that matter. Good luck. Hope this helped and don't forget to tell us if your specialist has any new methods.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

Back to top Go down

Newly diagnosed Empty Re: Newly diagnosed

Post  drivenbyambition Thu Mar 05, 2015 7:23 am

I am still waiting for my appointment to be scheduled. I do know that she will begin by prescribing medicine. Starting with one and going through about five. She has her full treatment plan listed online. Last resort would be surgery.

I have decided not to take the medicine yet if at all until I have my first child. I would prefer to have a C-section due to this condition, which I never thought I would ever say that.

Thanks for taking the time to reply. I'm quite nervous and scared.

drivenbyambition

Posts : 8
Join date : 2015-03-02

Back to top Go down

Newly diagnosed Empty Re: Newly diagnosed

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum