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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Please help
+4
A2015
mikan92
sgw11
LadyDi44
8 posters
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Re: Please help
Hi sgw11,
No he didn't prescribe anything for now.
I'm concerned that Ami cream or other antidepressants (topical or oral) simply mask the symptoms, rather than actually curing the Vestibulitis for good. Though I imagine that'll be my next treatment. I wonder if it actually would have resolved completely if you had used it for longer? I'm not sure. Does anyone know of someone cured for good after doing this?
I commented yesterday on a post by anon99 titled 'Stop taking your birth control!'. She had been taking BC since 16 with no problems til she was 21, came off the Pill and was cured. I feel you should consider this as it sounds like your situation!
Positive thoughts. Again, while it feels like a permanent situation, my body went back to normal completely (tampons, painless sex) so it has to do be able to do that again, one way or another.
No he didn't prescribe anything for now.
I'm concerned that Ami cream or other antidepressants (topical or oral) simply mask the symptoms, rather than actually curing the Vestibulitis for good. Though I imagine that'll be my next treatment. I wonder if it actually would have resolved completely if you had used it for longer? I'm not sure. Does anyone know of someone cured for good after doing this?
I commented yesterday on a post by anon99 titled 'Stop taking your birth control!'. She had been taking BC since 16 with no problems til she was 21, came off the Pill and was cured. I feel you should consider this as it sounds like your situation!
Positive thoughts. Again, while it feels like a permanent situation, my body went back to normal completely (tampons, painless sex) so it has to do be able to do that again, one way or another.
A2015- Posts : 53
Join date : 2015-05-21
I'm 16 now
Hi Lady I was 14 when I started experiencing problems with my vulvar area. When I was 15, I was diagnosed with vulvodynia. Nobody in my family really cared until I stopped going out, I got depressed, I started crying more often, and I felt utterly depressed and hopeless. I thought my dreams were crushed because of this condition. However, I didn't fully give up. I started doing intensive research and found that what I was experiencing was like a REALLY BAD yeast infection. So this is what I did to cure myself (I've been cured for almost a year now! )
-Core exercises
-Calcium Citrate everyday (you can get it at Walgreens or CVS)
-NO MORE SPINACH. I used to have it three times a day. (cut down on high oxalate foods)
-No more bubble baths
-Vitamin pills everyday
DO NOT USE ANYTHING ANTI-FUNGAL. You'll only make the imbalance of bacteria in your vaginal more imbalanced.
Do it the natural way, and you'll be cured. It takes time, but it does work
-Core exercises
-Calcium Citrate everyday (you can get it at Walgreens or CVS)
-NO MORE SPINACH. I used to have it three times a day. (cut down on high oxalate foods)
-No more bubble baths
-Vitamin pills everyday
DO NOT USE ANYTHING ANTI-FUNGAL. You'll only make the imbalance of bacteria in your vaginal more imbalanced.
Do it the natural way, and you'll be cured. It takes time, but it does work
EverythingIsDifferentNow- Posts : 33
Join date : 2014-09-13
New diagnosis
Hey all,
I'm 23 and was diagnoses with provoked vestibulodynia about a month ago.
I've just read through the previous threads and am amazed by all the different treatments you have all been offered!
My consultant, who diagnosed me, has given me oestrogen pessaries and an numbing gel. He believes the disease was triggered by a change in hormone levels (I've tried about 5 different oral contraceptives in 2 years) so the oestrogen is meant to help. However, the pessaries are so painful to put in, even with the numbing gel, and I'm feeling really hopeless. I wasn't offered an oral alternative to the pessaries, but surely they would make so much more sense.
I've also read a lot about about women taking calcium tablets- Are these worthwhile trying?
To be honest, I'm really struggling at the moment. The diagnosis is just hitting home and I'm starting to feel really low. I try to have non-penatrative sex with my boyfriend to try and keep some passion, but every time I do I end up in tears because it reminds me of what I can't do anymore. I worry I will never have a healthy, passionate sex life again and it makes me so sad to think about all the wonderful sex I've had in the past.
I don't know how to move forward really, what treatments to pursue or how to handle my relationship with this issue. At the moment I've asked my partner not to initiate anything sexual as it makes me so upset. Maybe I'm just coming to terms with it.
Any advice or help would be amazing, I'm so grateful there is a forum available!
I'm 23 and was diagnoses with provoked vestibulodynia about a month ago.
I've just read through the previous threads and am amazed by all the different treatments you have all been offered!
My consultant, who diagnosed me, has given me oestrogen pessaries and an numbing gel. He believes the disease was triggered by a change in hormone levels (I've tried about 5 different oral contraceptives in 2 years) so the oestrogen is meant to help. However, the pessaries are so painful to put in, even with the numbing gel, and I'm feeling really hopeless. I wasn't offered an oral alternative to the pessaries, but surely they would make so much more sense.
I've also read a lot about about women taking calcium tablets- Are these worthwhile trying?
To be honest, I'm really struggling at the moment. The diagnosis is just hitting home and I'm starting to feel really low. I try to have non-penatrative sex with my boyfriend to try and keep some passion, but every time I do I end up in tears because it reminds me of what I can't do anymore. I worry I will never have a healthy, passionate sex life again and it makes me so sad to think about all the wonderful sex I've had in the past.
I don't know how to move forward really, what treatments to pursue or how to handle my relationship with this issue. At the moment I've asked my partner not to initiate anything sexual as it makes me so upset. Maybe I'm just coming to terms with it.
Any advice or help would be amazing, I'm so grateful there is a forum available!
curlyblondegirlie- Posts : 1
Join date : 2015-07-10
Age : 32
Location : Bristol, UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer