Vulvodynia Support
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» Hope to all my suffering ladies
Thoughts on pregnancy? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Thoughts on pregnancy? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Thoughts on pregnancy? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Thoughts on pregnancy? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Thoughts on pregnancy? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Thoughts on pregnancy? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Thoughts on pregnancy? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Thoughts on pregnancy? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Thoughts on pregnancy? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Thoughts on pregnancy?

3 posters

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Thoughts on pregnancy? Empty Thoughts on pregnancy?

Post  sailor_moon Sat Jul 25, 2015 11:19 am

Hi everyone,

Just wanted to know if anyone has been pregnant with this condition?

I am literally the only person in my age group I associate with that has not had a child. I had to go to a baby shower and it was really hard to hold it together when being bombarded "Oh when are you having kids/Why havn't you had kids?" questions. And having to lie about it by saying I have no interest in it. I just wish the topic would go away. My husband has been talking about it more and more, which hurts a lot. I have been asked by people so so so many times it is starting to really get to me.

I have hormone problems which at this point I have no idea if and how they are going to get treated, all of which basically cut my chances of getting pregnant in half. Add this ridiculous non-provoked itching and burning on a daily basis and my chances of falling pregnant are basically down to 1%.

This V shit is so unbearable I can not even imagine how much worse it would be if my issue is nerve related and there is a baby adding extra pressure to the area. And my skin seems to be quite fragile downstairs too as it is [I have torn during sex and have inflammation] so I hate to think what further damage pushing a baby out would do. Not to mention the stress of looking after a child while in such chronic pain every day. And the chance of my husband leaving me eventually because of this condition.

So yeah....adding up the above info I think a child is not an option for me as long as this shit is hanging around.

It really pisses me off how doctors say "Oh but the pain is worth the end result"...no it isn't because having to live with this and raise a child would be even more stress 24/7!!! I know I would not be able to handle it...I am fighting a serious nervous breakdown every single day as it is without a child involved. I have contemplated suicide. Who would want someone with these issues as a parent? what sort of crazy person would see anyone in my position fit to be a parent?

I see unfit drop-kicks who do not deserve children and it pisses me off that their is nothing wrong with them, yet here I am, i have been a "good girl" all my life, never done drugs, never smoked, never slept around yet I'm the one who is plagued with this.

I need some advice...it is driving me insane thinking about it. To try and speak about it to someone makes me feel like a failure and it embarrasses me.

sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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Post  x_chelss@live.com Mon Jul 27, 2015 11:12 am

I'm so sorry you feel so sadly about having children, and the fact you feel like you cannot speak about it with people who care for you. Saying that, I do think you need to confide in your husband and tell him how you really feel, having had this condition in the past I found talking to my boyfriend so much better it relieved a lot of stress in my head, and didn't stress me out as much.
I think the first step for you would be talking to your husband about your feelings, and then depending on how that goes then see a doctor about hormone therapy or treatment. You can't have a child if you feel like it would make you even worse than you already are now and if that's how you feel nobody can try and change your mind on that, and slthlugh you have constant burning and irritation down there sex isn't the only way to get pregnant, there's inseminstion and all sorts now.
I got pregnant in May 2014 I was 2 months pregnant and then later lost the baby but I can honestly say my vulvodynia had never been the same since falling pregnant. The constant burning had almost stopped whilst I was pregnant due to the high amount of hormones and after loosing the baby my vulvodynia HAD NOT been as worse as it once was. Not long after that I had the surgery, but that's another story.

You not wanting to talk about your problems isn't going to make them go away, your a strong person for having to deal with this every day- just don't do it alone when you have a husband who loves you.

x_chelss@live.com

Posts : 50
Join date : 2014-02-12

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Post  PainBlogger Mon Jul 27, 2015 12:18 pm

Hi,

I don't think I can offer you any advice, but I just wanted you to know that you are not alone in feeling as you do if that helps at all. I'm in a similar situation, approaching my late 30s, childless and not physically able to have marital relations due to burning vulval and urethral pain and very tight pelvic floor muscles.

The majority of my friends and relatives my age have got kids - several in some cases. I've got to the point where I can't bear to hear about anyone else getting pregnant. I try to shut myself off from it all by not looking at Facebook etc and I even try to avoid socialising with certain people, especially those that are of what I call the "gloating/bragging parent" kind. Because I have pain elsewhere in my body which people know about I've not been asked the dreaded 'are you thinking of having kids?' (and variations on that) for some time. But I know I'd go to pieces if someone was to ask me. Personally, I think it's downright rude for people to ask that question of anyone.

I also get really annoyed when I see or hear on the news of unfit parents. I've also led a really sensible life and I actually now regret the fact that my husband and I were sensible and didn't even consider a pregnancy until we were married with our own home.
Anyway, I know that's not really any advice, but I hope you can manage to talk about the problem with someone either a professional or your husband as I think it can be helpful to talk it through even if you get upset it can be a release of pent up emotions.

PainBlogger

Posts : 219
Join date : 2015-07-27

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