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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Have got dialators!
+2
Sarah001
Sebby (Admin)
6 posters
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1, 2
Re: Have got dialators!
Mouse Mon Jan 31, 2011 8:15 pm
Hey I'm a leftie as well!!!
I have the bunched up muscles on the left side and 95% of my pain comes from there. As I've mentioned before it does like to jump around a bit and expecially since physio has been making things interesting. I now get pain in the most random spots, right through my backside and down my legs, the physio said that would be from the squats. I'm going to confess today that I had forgotten to do those
Since physio started I've noticed how much I tense everything up. Off for more this afternoon Yaaaayyy!!!
I have the bunched up muscles on the left side and 95% of my pain comes from there. As I've mentioned before it does like to jump around a bit and expecially since physio has been making things interesting. I now get pain in the most random spots, right through my backside and down my legs, the physio said that would be from the squats. I'm going to confess today that I had forgotten to do those
Since physio started I've noticed how much I tense everything up. Off for more this afternoon Yaaaayyy!!!
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Have got dialators!
Sebby (Admin) Mon Jan 31, 2011 8:19 pm
Another leftie!
Methinks I must create a poll, lets do some research of our own
Sebby (Admin)- Admin
- Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK -
Re: Have got dialators!
tweety Tue Feb 01, 2011 10:20 am
hey Sebby,
noticed you mentioned using KY. My physio mentioned using just vegetable oil... I find the consistency is a little more fluid and doesnt irritate.
just a thought... may make the whole "experience" more enjoyable?
noticed you mentioned using KY. My physio mentioned using just vegetable oil... I find the consistency is a little more fluid and doesnt irritate.
just a thought... may make the whole "experience" more enjoyable?
tweety- Posts : 71
Join date : 2010-03-14
Location : Melbourne
Re: Have got dialators!
Sarah001 Tue Feb 01, 2011 7:35 pm
Ok this pain on the left side thing is getting odder and odder, I've just been on a couple of other sites I use and found various people mentioning tightness in the left pelvic floor mainly too, there has to be something in this.... 
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Have got dialators!
Sebby (Admin) Tue Feb 01, 2011 9:40 pm
My mum has athritis, suspected fibromyalgia and chronic facial pain..
I asked her if she had a side that she felt was more painful..she said the left!!!!!
I think there is deff something in this with chronic pain..it could be the nerves???? Hmmm
Sebby (Admin)- Admin
- Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK -
Re: Have got dialators!
Mouse Tue Feb 01, 2011 10:10 pm
I asked my physio about the "leftie" theory she didn't know. Damn!!!
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Have got dialators!
Sarah001 Wed Feb 02, 2011 10:17 am
I don't know Sebby, I've got Fibro and Hypermobility Syndrome and I find the right side is more painful on the external muscles but the left in the pelvic floor! 
I tried googling it but found nothing new except more case studies of women (and men on a prostate site) with tight left side pelvic floors. Curious... It's kind of like the pelvis usually rotates anteriorly on the right side when it's misaligned but nobody knows why, it makes no difference if the person is left or right handed, where they live in the world or what they do for a living it's still right side anterior 95% of the time. I hate not knowing the answer to things!!
I tried googling it but found nothing new except more case studies of women (and men on a prostate site) with tight left side pelvic floors. Curious... It's kind of like the pelvis usually rotates anteriorly on the right side when it's misaligned but nobody knows why, it makes no difference if the person is left or right handed, where they live in the world or what they do for a living it's still right side anterior 95% of the time. I hate not knowing the answer to things!!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
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» Please tell me this can get better
» By no means cured, but doing much better!
» How I cured my Vulvodynia!
» 7 months since the diagnosis
» Gabapentin Gel. or other topical creams
» IMPORTANT FOR UK SUFFERERS
» Help New Diagnosis
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!