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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Dr Oz - Vulvodynia video clip
2 posters
Page 1 of 1
Dr Oz - Vulvodynia video clip
Link to 5 minute video clip of Dr Oz show in USA talking about the causes of Vulvodynia. You can now view a 5-minute clip of the segment by visiting http://www.doctoroz.com/videos and clicking on "What Causes Vulvodynia." To read a thorough summary of the entire 15-minute segment, please visit the show's web site.
Afterwards, please send a brief e-mail to Dr. Oz and the show's producers to let them know that this topic matters to you and that you'd like to see it expanded upon in a future episode. You may do so here: http://doctoroz.com/contact.
We expect the full episode to re-run later in the year. We will be sure to send an announcement when it does.
Im am hoping that those of us outside the USA will be able to view the episode or at least get a summary we can read.
Sebby
xxx
Afterwards, please send a brief e-mail to Dr. Oz and the show's producers to let them know that this topic matters to you and that you'd like to see it expanded upon in a future episode. You may do so here: http://doctoroz.com/contact.
We expect the full episode to re-run later in the year. We will be sure to send an announcement when it does.
Im am hoping that those of us outside the USA will be able to view the episode or at least get a summary we can read.
Sebby
xxx
i am in the process of having a copy mailed to me because i tried to have a friend burn it for me of his computer but it did not work, therefore i have a friend that has a copy of it she happen to tape for me cause it was something that was interesting to
Sebby (Admin) wrote:Link to 5 minute video clip of Dr Oz show in USA talking about the causes of Vulvodynia. You can now view a 5-minute clip of the segment by visiting http://www.doctoroz.com/videos and clicking on "What Causes Vulvodynia." To read a thorough summary of the entire 15-minute segment, please visit the show's web site.
Afterwards, please send a brief e-mail to Dr. Oz and the show's producers to let them know that this topic matters to you and that you'd like to see it expanded upon in a future episode. You may do so here: http://doctoroz.com/contact.
We expect the full episode to re-run later in the year. We will be sure to send an announcement when it does.
Im am hoping that those of us outside the USA will be able to view the episode or at least get a summary we can read.
Sebby
xxx
hawkss- Posts : 11
Join date : 2011-03-17
Age : 58
Location : chicago, il
i will share that when i get the copy and give the whole story to others on this site
hawkss wrote:Sebby (Admin) wrote:Link to 5 minute video clip of Dr Oz show in USA talking about the causes of Vulvodynia. You can now view a 5-minute clip of the segment by visiting http://www.doctoroz.com/videos and clicking on "What Causes Vulvodynia." To read a thorough summary of the entire 15-minute segment, please visit the show's web site.
Afterwards, please send a brief e-mail to Dr. Oz and the show's producers to let them know that this topic matters to you and that you'd like to see it expanded upon in a future episode. You may do so here: http://doctoroz.com/contact.
We expect the full episode to re-run later in the year. We will be sure to send an announcement when it does.
Im am hoping that those of us outside the USA will be able to view the episode or at least get a summary we can read.
Sebby
xxx
hawkss- Posts : 11
Join date : 2011-03-17
Age : 58
Location : chicago, il
i will be possibly getting the video sent to me and i hope it is useful i look forward to seeing it thanks shelby i will get the copy and watch it at home i dont have a computer at home have to use at the library thanks
Sebby (Admin) wrote:Link to 5 minute video clip of Dr Oz show in USA talking about the causes of Vulvodynia. You can now view a 5-minute clip of the segment by visiting http://www.doctoroz.com/videos and clicking on "What Causes Vulvodynia." To read a thorough summary of the entire 15-minute segment, please visit the show's web site.
Afterwards, please send a brief e-mail to Dr. Oz and the show's producers to let them know that this topic matters to you and that you'd like to see it expanded upon in a future episode. You may do so here: http://doctoroz.com/contact.
We expect the full episode to re-run later in the year. We will be sure to send an announcement when it does.
Im am hoping that those of us outside the USA will be able to view the episode or at least get a summary we can read.
Sebby
xxx
hawkss- Posts : 11
Join date : 2011-03-17
Age : 58
Location : chicago, il
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer