Vulvodynia Support
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» Hope to all my suffering ladies
What does pt do EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
What does pt do EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
What does pt do EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
What does pt do EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
What does pt do EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
What does pt do EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
What does pt do EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
What does pt do EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
What does pt do EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


What does pt do

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Post  Ouch123 Thu Dec 10, 2015 12:35 pm

Hi all
I have provoked vulvodynia.  Very oainful.  Orobably from multiple infections.  Does pt help with this type of vulvodynia?  How does it help?

Ouch123

Posts : 19
Join date : 2015-08-29

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Post  PainBlogger Thu Dec 10, 2015 1:42 pm

Tight pelvic floor muscles caused by the guarding reflex that can happen with long-term pelvic pain can, in turn, make the pain of vulvodynia worse. PT can help by giving you home exercises/stretches to do to reduce pelvic muscle tension and also a PT can work on trigger points, not only in the PF muscles but in the surrounding area like thighs, lower back, buttocks. A PT can also do mobilization of joints, tissues - myofascial release and visceral release. I found PT very helpful for my bladder symptoms in particular.

PainBlogger

Posts : 219
Join date : 2015-07-27

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Post  Ouch123 Thu Dec 10, 2015 4:28 pm

Thanks for your response. I am trying to figure out whether to spend the money

Ouch123

Posts : 19
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Post  PainBlogger Thu Dec 10, 2015 5:24 pm

I don't know how expensive PT is where you live, but all I can say is if you are able to afford it - even just an initial assessment - then you may find something helpful comes from it. I think vulvodynia is a problem that responds best when tackled from multiple treatment angles as treatments (diet, drugs, PT, psychological help) will compliment each other.

PainBlogger

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Post  WaahwaahUK Thu Dec 10, 2015 9:27 pm

My vulvodynia was most probably triggered by an infection originally, but as a consequence of being in pain for some time I then developed nerve problems (most likely pudendal) and pelvic issues. I'm seeing an osteopath and he deals in womens health and is very knowledgable. It's not the only thing that is helping, but I believe it is helping. However I would say physio can be a lengthy process, and it's easy to feel disheartened, I certainly do at times. Overall I do feel its worth looking into. Tackle it from any angle you can, and empower yourself.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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