Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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    » Hope to all my suffering ladies
    Meditation/ Guided Imagery? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    Meditation/ Guided Imagery? EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    Meditation/ Guided Imagery? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    Meditation/ Guided Imagery? EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    Meditation/ Guided Imagery? EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Meditation/ Guided Imagery? EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Meditation/ Guided Imagery? EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Meditation/ Guided Imagery? EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Meditation/ Guided Imagery? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Meditation/ Guided Imagery?

    2 posters

    Vulvodynia Support :: Support and Advice

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    Meditation/ Guided Imagery? Empty Meditation/ Guided Imagery?

    Post  ringostarr26 Wed Jan 20, 2016 6:43 pm

    I just wanted to share a site that my physio shared with me yesterday. Meditation and audio podcasts never really spoke to me but when you are in a situation where you are feeling pain, you are willing to try anything. My Physio said as much as we can work on calming the muscle tension, our nerves need to be calmed as well. Whether you are like me and deal with anxiety or not, being in a good state mentally is important. Last night i tried one of these audio podcasts to help me relax before I went to bed, and I must say it helped me fall asleep and I woke up with less tension in my pelvic floor. I am still in pain, but not nearly as bad as yesterday. Now this is not a cure or anything but more of a method of relaxation that may help soothe some of our nerves.

    The site is kaiserpermanente.org
    From there you click health and wellness> live Healthy> Podcasts

    Then you pick from any of the audio files you feel may be beneficial. These podcasts are free. It is worth of try. Heres to pain free days i hope!


    ringostarr26

    Posts : 59
    Join date : 2012-07-31

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    Meditation/ Guided Imagery? Empty Re: Meditation/ Guided Imagery?

    Post  PainBlogger Thu Jan 21, 2016 9:04 am

    That's useful advice. I have tried meditation also and, whilst not a miracle cure, it does help to calm me down and as a consequence reduce pain perception.

    PainBlogger

    Posts : 219
    Join date : 2015-07-27

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