Vulvodynia Support
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» Hope to all my suffering ladies
Pain after Vestibulectomy - Solved ? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pain after Vestibulectomy - Solved ? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pain after Vestibulectomy - Solved ? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pain after Vestibulectomy - Solved ? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pain after Vestibulectomy - Solved ? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pain after Vestibulectomy - Solved ? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pain after Vestibulectomy - Solved ? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pain after Vestibulectomy - Solved ? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pain after Vestibulectomy - Solved ? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pain after Vestibulectomy - Solved ?

2 posters

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Pain after Vestibulectomy - Solved ? Empty Pain after Vestibulectomy - Solved ?

Post  jen007 Mon Feb 08, 2016 7:19 pm

Hi Ladies,

For those of you who haven't seen my more recent posts, you can type in "vestibulectomy" in the search bar to see my most recent posts on my recent new pain.

Luckily enough, I got an opportunity to be seen by my surgeon, Dr. Andrew Goldstein, this past Saturday. He examined me quite a bit before finding what he felt was the source of my newly discovered pain. He found a small lump under my skin, which turned out to be a small cyst - the size of a bb gun pellet. He could only find one and when he pressed on it, it cause me to feel the awful pain I had been sitting on for the past 3 months. He called it a "Skenes Gland Cyst" - never heard of this before. He told me they are actually quite common after a vestibulectomy, but that mine appeared in somewhat of a weird location. He removed it right then and there in his office. I had no time to think about it. It just happened - somewhat traumatizing, but hopefully worth it. The cut wasn't too too big, but did required 6 stitches. Similar to my vestibulectomy recovery, I'm on bed rest for a bit. The total healing period is 6 weeks. I need to ice it constantly and take sitz baths.

I hope this helps other women who discover some random pain near the urethra! He told me they're hard for doctors to find because they are under the skin and are not visible. You have to feel for them by doing a careful examination.

I'll be doing an update in about a month to let you all know if the procedure helped/ worked.

-Jen

jen007

Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A

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Post  amyhp Tue Feb 09, 2016 12:46 am

I am so glad he found the cause! I bet you are so relieved!

amyhp

Posts : 34
Join date : 2015-09-22

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Post  jen007 Tue Feb 09, 2016 1:13 am

amyhopexoxo,

I'm hoping that by removing the cyst, my pain will be over. He seemed pretty confident that the cyst was the source of my pain. In a way I do feel better knowing there was something to be removed, but I'll only feel happy when I know for sure. These next 6 weeks are gonna be slow, but hopefully worth it!


jen007

Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A

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Post  amyhp Tue Feb 09, 2016 2:09 am

Please keep me updated!
I spoke with him on the phone and he is so confused on why I am still in pain.

amyhp

Posts : 34
Join date : 2015-09-22

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