Vulvodynia Support
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» Hope to all my suffering ladies
V and W ...for Work EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
V and W ...for Work EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
V and W ...for Work EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
V and W ...for Work EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
V and W ...for Work EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
V and W ...for Work EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
V and W ...for Work EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
V and W ...for Work EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
V and W ...for Work EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


V and W ...for Work

2 posters

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V and W ...for Work Empty V and W ...for Work

Post  Antaea Thu May 12, 2016 8:07 am

Vulvodynia and Work... just curious:
How do you manage to work with V? How did your colleagues react? Were you open about your condition? How did your employer react?
Just now I find it very exhausting to work as a teacher. I am open to my colleages and of course my headmaster, even towards my students - I work as a music teacher at our local School for Culture. I "classify" my information, but all know that I suffer from uncurable nerve-pain " downstairs". If I react somewhat "weird" it may have its reason in my pain just now.
The reaction so far from all colleages and parents of my students has been positive without exception.
But I have to motivate me every second to work. And when I have closed the door to my room at 8.30 pm I could cry of pain and exhaustion.
Antaea
Antaea

Posts : 29
Join date : 2016-05-11
Age : 74
Location : Gotland/Sweden

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V and W ...for Work Empty Re: V and W ...for Work

Post  emalita Thu May 12, 2016 2:02 pm

Hi again! I'm sure you're sick of hearing from me on your posts Wink

I am lucky enough to work from home; so I don't have to explain to anyone (other than my fiancé) why I'm sitting very unladylike or taking a long time in the bathroom.

Personally, I don't feel that it is anyone's business what I'm going through unless I want to tell them, which I don't, or unless it impacts my job. However, due to seeing many different specialists that are often several hours away from me, I did send my boss a confidential email briefly indicating that I have a medical condition that requires care from doctors several hours away from me, and I reassured her that it would not impact my job other than the occasional last minute time off request. The only reason I told her anything was so she knew that there may be a need for me to take last minute time off. I am extremely lucky to work for a great company in a very flexible position where I get to pretty much call the shots on my schedule. As I know this isn't the case for most people, I can certainly understand the need to be more open about the nature of the condition.

I cannot imagine how difficult it must be to be in front of students all day while being in pain. That takes great strength to not only withstand the physical pain but the emotional pain as well.

Stay positive. Although my pain isn't gone, I've come a long way from where I was several months ago. Just keep trying new things, and it will get better with time.

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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