Vulvodynia Support
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» Hope to all my suffering ladies
Intro to My Scattered Brain and One WEIRD QUESTION EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Intro to My Scattered Brain and One WEIRD QUESTION EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Intro to My Scattered Brain and One WEIRD QUESTION EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Intro to My Scattered Brain and One WEIRD QUESTION EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Intro to My Scattered Brain and One WEIRD QUESTION EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Intro to My Scattered Brain and One WEIRD QUESTION EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Intro to My Scattered Brain and One WEIRD QUESTION EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Intro to My Scattered Brain and One WEIRD QUESTION EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Intro to My Scattered Brain and One WEIRD QUESTION EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Intro to My Scattered Brain and One WEIRD QUESTION

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Post  Minneapolis Thu Jun 23, 2016 4:51 am

Hey guys, this is my first post.
I got diagnosed in Oct 2013 with pelvic floor dysfunction and vulvodynia. My doctor prescribed me with the hormonal cream and sent me to physical therapy. Both lessened my pain. I used to feel 9s across the board on the pain scale. I feel 4s and 5s now upon initial insertion, then if it gets too long or too fast I'm back up to 9. The past few years I've been single because I was too afraid that A) No one would want me as a partner after discovering my problem and B) that I would never be free of pain and always feel guilty for not being fun to have sex with.

Well, I'm still in pain, but I got a new partner (3 weeks ago! So New!). Now that I have him as motivation, I am regular with my hormone cream and I even tried acupuncture today. I have yet to test whether it was helpful for my PFD but it definitely made me relax. Some days I truly believe that I will never be free of the pain. I want it to go away completely, but I'm afraid it won't.

One good thing has come out of all this. I take better care of my body and exercise a lot more often. I'll keep you guys posted. This disease is extraordinarily sticky and my healing has been slow. Making slow progress is better than no progress, right? RIGHT?!

WEIRD (possibly incredibly stupid) QUESTION:
Has ANYONE on here improved their condition by having sex? It could act as physical therapy, where the partner is very slow and calm and then the pain eventually decreases. Let me know. Also, thanks to anyone who read this.

Minneapolis

Posts : 2
Join date : 2016-06-15

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Post  PainBlogger Thu Jun 23, 2016 9:07 am

I actually found that abstaining from attempting to have sex for a year while I made progress with dilators was what worked for me. Initially we were persisting and despite good communication just making things worse and getting frustrated. We didn't try again until I was able to use the fourth dilator out of the five without pain and the last couple of months I've been able to have pain-free sex again (and I do mean pain-free not just bearable). I know that's probably not what you want to hear. I do understand what you mean by it acting as physical therapy, but with the best will in the world and the most considerate partner, it's not the same as practising with dilators.

You are absolutely correct that slow progress is better than no progress. I would just hate for you to undo any progress by attempting to have sex if your body is not cooperating because pain makes the pelvic floor muscles tighter and just exacerbates the situation. But we're all different. This condition is so variable, with different triggers, causes and symptoms. Ultimately you have to go with your gut instinct.

Whatever you decide I wish you all the best Smile

PainBlogger

Posts : 219
Join date : 2015-07-27

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Post  WaahwaahUK Thu Jun 23, 2016 9:36 am

I have abstained for over a year now, but ultimately I feel it is worth it in the long run as I'm just now getting to the stage where I'm considering it. I found when I did try and wasn't ready to it was painful afterwards and really didn't help. I might have felt reasonably ok during, but the pain after was awful. I think going with your gut instinct is always good though. Your body will guide you. I think the key is though, everything gently does it. Don't try and force anything when you're already in pain.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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Post  fairlight10 Thu Jun 23, 2016 1:54 pm

Hi minneapolis . So glad you have found someone new. Only have intercourse if you are feeling comfortable before hand. Use lubrication. Yes yes water based has suited me. You maybe uncomfortable for a while. Take some painkillers if you want. Keep up with the acupuncture. It relieves stress, that's why you felt calm. I think and this is only my theory that your vagina has to get used to being penetrated again. Hopefully each time will get better and easier. Also remember you can please each other in other ways. You don't have to be penetrated every time. Good luck and relax.

fairlight10

Posts : 72
Join date : 2016-04-17

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