Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Mum emailed the Royal College of Obstetricians and Gynaecologists to ask if they could suggest a good dr for vulvodynia..see the email below..they dont know..or even care to do the work to find out.. (Barstads!)

Thank you for your email.

I have spoken with my colleagues here at the College and it has been suggested that you contact the Vulval Pain Society website for further information.

We hope this proves of some and help and wish you and your family well.

With kind regards,

Sakinah Takeram
Executive Secretary
Royal College of Obstetricians and Gynaecologists
27 Sussex Place, Regent's Park
London NW1 4RG, UK
Tel: +44 (0)20 7772 6319

Lazy bastards. The vulval pain society website's pretty crap too, I was given a leaflet about it when I got diagnosed and thought it would be full of excellent information only to find it isn't. I really don't get why doctors aren't interested in this, you'd think because they don't actually know for sure what causes it they'd be curious to try and find out.

I got a list of vulval clinics off the vulval pain society website so that was ok..will have to see if they are any good.

Oh but it proves that my local hospitals are liars! cos they kept saying 'oh this is a vulval clinic' they were not just normal gynae and they knew sod all about vulvodynia!

Cant believe the Royal College cant even be asked to look for a consultant for me..Im keeping that email in case I ever need to leak it and shame them!!

I thought medical folk were caring and compassionate. A career looking after cats may seem a better option. Bloody patients asking awkward questions!

There's a NZ based Vulvodynia website. I emailed last year, no reply as yet. I guess that was your lucky day =)

I was told if I didn't get any joy from the vulvar dermatologist I could go to a vulvar clinic (the one I was told about isn't on that list oddly) but I'm really not sure they could do anything other than what I've already tried as I'm not suitable for surgery and botox tends to be more help with localised pain rather than diffuse pain. I'm not sure it would be worth trekking the few hours to my nearest vulvar clinic to be told they couldn't add anything to my treatment but the option's there if I want it.

Aren't they supposed to be vagina doctors? When I was finally diagnose 14 years ago ( about 6 doctors later) Not much helped, now I don't even bother. I took it into my own hands which most women seem to do to try to find my own answers. Then I just told the doctor what i wanted to try. I found that Naturopaths were the ones that helped the most. So much so that I am now Studying it. Doctors are I guess too busy trying to cure cervical cancer that whats our pain got to do with them. They probably just figure that it won't kill us so why bother. Most general doctors haven't even heard of Vulvodynia.

I totally agree waste of time. Seeing the experts just makes me want to cry they havent a clue , we are on this journey together, so girls we need as much info as possible on what each of us are doing to BEAT THE V.


Ria

When I first got the V (didnt know what it was then) I asked my then GP for a referral to a Gynea

She said "Why do you want to see a gynea?"

I said "cos I hurt and I need to find out why!"

She said "but gynea's dont deal with vaginas"

I was stunned, but after seeing the ones at my local hospital I kinda agree with her now!!

Best dr I saw was at the Vulval Clinic, general gyneas that I have seen dont seem to have a clue!