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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2
3 posters
Page 1 of 1
Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2
sgw11 Tue Feb 21, 2017 5:08 am
Hi everyone,
I just thought I'd share my experience with pudendal nerve blocks and botox for my provoked vulvodynia. For those who haven't seen some of my other posts, I've had vulvodynia for about 3 years now, and have tried many different treatments - amitriptyline cream, lyrica and amitriptyline oral medication, mona lisa laser, physio, cupping, chinese herbs...and I think that's about it. I was recommended surgery, but I told my gynaecologist I wanted to exhaust all options before I went down that path. She referred me to Professor Theirry Vancaille in Sydney, Australia (I'm originally from Melbourne) for pudendal nerve blocks and botox. First he examined me to see if I was a candidate and told me I was, then I had the procedures done the next day.
I had my first one done in April last year and it changed my life, I can now have pain free sex, although I still get the irritation for a day or two afterwards most of the time, although sometimes I don't! I do still have some bad days, which are usually exacerbated by drinking alcohol the night before. The effects of the procedure is supposed to last around 6 months, but it lasted longer for me. Towards the end of last year I noticed the pain started getting worse again, so I re-booked in with Theirry and he did the procedure again in January this year. Once again I pretty much instantaneously experienced the benefits of the nerve blocks and botox.
I know that everyone is different, but may I suggest for those looking for other avenues to explore to ask your gynaecologist about these procedures. It costs about $1500 all up including the anaesthetists fees. Feel free to message me with any questions!
Steph x
I just thought I'd share my experience with pudendal nerve blocks and botox for my provoked vulvodynia. For those who haven't seen some of my other posts, I've had vulvodynia for about 3 years now, and have tried many different treatments - amitriptyline cream, lyrica and amitriptyline oral medication, mona lisa laser, physio, cupping, chinese herbs...and I think that's about it. I was recommended surgery, but I told my gynaecologist I wanted to exhaust all options before I went down that path. She referred me to Professor Theirry Vancaille in Sydney, Australia (I'm originally from Melbourne) for pudendal nerve blocks and botox. First he examined me to see if I was a candidate and told me I was, then I had the procedures done the next day.
I had my first one done in April last year and it changed my life, I can now have pain free sex, although I still get the irritation for a day or two afterwards most of the time, although sometimes I don't! I do still have some bad days, which are usually exacerbated by drinking alcohol the night before. The effects of the procedure is supposed to last around 6 months, but it lasted longer for me. Towards the end of last year I noticed the pain started getting worse again, so I re-booked in with Theirry and he did the procedure again in January this year. Once again I pretty much instantaneously experienced the benefits of the nerve blocks and botox.
I know that everyone is different, but may I suggest for those looking for other avenues to explore to ask your gynaecologist about these procedures. It costs about $1500 all up including the anaesthetists fees. Feel free to message me with any questions!
Steph x
sgw11- Posts : 46
Join date : 2015-02-18
Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2
mary jane Thu Jun 08, 2017 12:27 pm
pretty cool and glad it worked !
what were your symptoms ?
what were your symptoms ?
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2
Hopeitworks Fri Aug 04, 2017 7:14 pm
sgw11,
I am so HAPPY for you! I have been thinking my vulvodynia is caused by nerve but no one will listen to me. So I had a Vestibulectomy a week ago because I felt I was out of options. Thank you so much for sharing your experience and if I need to I will figure out a way to get a nerve block.
I am so HAPPY for you! I have been thinking my vulvodynia is caused by nerve but no one will listen to me. So I had a Vestibulectomy a week ago because I felt I was out of options. Thank you so much for sharing your experience and if I need to I will figure out a way to get a nerve block.
Hopeitworks- Posts : 36
Join date : 2017-08-01
Location : United States
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» Please tell me this can get better
» By no means cured, but doing much better!
» How I cured my Vulvodynia!
» 7 months since the diagnosis
» Gabapentin Gel. or other topical creams
» IMPORTANT FOR UK SUFFERERS
» Help New Diagnosis
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!