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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Anyone else have this?
+2
Mouse
Sarah001
6 posters
Page 1 of 1
Anyone else have this?
Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Anyone else have this?
Sarah, my muscles feel like they are pulling and sometimes it feels like there is a massive bulldog clip (do you have those?) attached. Very ouch!
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Anyone else have this?
Yes, I do! Quite alot of the time too and if I stretch my adductors it often makes them pull worse while I'm doing it. I'm trying an experiment of massaging the twangy bits on one side only to see if it helps. I was really wary of massaging the area because it's already very painful (hence only treating one side so if it makes it worse it isn't all over) but if twangy muscles are contributing I'm going to have to grin and bear it to get any relief. I've done it once on one side only so far and the muscles were very sore to the touch too. I'm not sure which muscles are under there either, can't seem to find out online.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Anyone else have this?
Does anyone get very irritating pinching sensations on buttocks and thighs? Ouch.
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Anyone else have this?
No but I do get burning down the front of the thighs sometimes and other times down the inner thighs. My glute area is a problem anyway because my hip rotators have lots of trigger points and of course my SI joints are problematic and painful too.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Anyone else have this?
Noni,
I went to physio yesterday and she's identified the pain that I get in backside and thighs to be an aggravated sciatic nerve. I think this is self inflicted as I sit with my feet under me a lot of the time because I can't close my legs comfortably. Physio on that was less than pleasant! I have a fairly handsome bruise! I now can't sit down either.
Google the sciatic nerve and see if that's where your pain is. It makes sense that when you overcompensate to accommodate one pain it can put pressure on something else. Fuck it!
I went to physio yesterday and she's identified the pain that I get in backside and thighs to be an aggravated sciatic nerve. I think this is self inflicted as I sit with my feet under me a lot of the time because I can't close my legs comfortably. Physio on that was less than pleasant! I have a fairly handsome bruise! I now can't sit down either.
Google the sciatic nerve and see if that's where your pain is. It makes sense that when you overcompensate to accommodate one pain it can put pressure on something else. Fuck it!
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Anyone else have this?
LOL I like the Fuck it at the end
I get a sore and tender tail bone especially when I sit back cos I cant lean forward when I have a flare up as it puts pressure on the vulva....Fuck it!
Re: Anyone else have this?
I do the tailbone sitting as well, thought that was working quite nicely until yesterday! Fuck it! Owww we have a new motto! I like it!
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Anyone else have this?
Ok, after lots of research I'm fairly sure my twangy muscles are the ischiocavernosus and looking into what they do I found they prevent blood from draining from the area if they contract so it probably stands to reason if they're tight and twangy like mine are they will be stopping proper blood flow as that's what they do. This is very interesting as the inflamed skin I have in the area could well be due to this lack of draining which of course will prevent normal blood circulation in the area which is what Dr Glazer mentions. I was very surprised and interested to find that this is their function and am now attempting to remove the numerous trigger points in them.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
i wanted to know if anyone has this i only have problems at night i sting after i urinate and then i cant sleep it is a mystery to many doctors and we dont know whats going on i am taking elevil and estrace cream at night it only happens i could use some
Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?
hawkss- Posts : 11
Join date : 2011-03-17
Age : 58
Location : chicago, il
i could use some insight on this thanks
hawkss wrote:Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?
hawkss- Posts : 11
Join date : 2011-03-17
Age : 58
Location : chicago, il
Re: Anyone else have this?
I get the buldog clip feeling and the twangy muscles towards my groin area. I had these points massaged about 3 times over a 3 week period wiht deep tissue massage to realease the tightness it hurt like hell and bruised but not had the twangy pain since.
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer