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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Experienced Vestibulectomy Surgeons in England?
2 posters
Page 1 of 1
Experienced Vestibulectomy Surgeons in England?
Kezz Tue Mar 28, 2017 10:37 am
Hey everyone!
Wat are the names and locations of experienced vestibulectomy surgeons in England? The only experienced vulvodynia consultant I've read about so far is David Nunns but I'm not sure if he actually carries out the vestibulectomy surgery.
Thanks in advance :- )
Kezz xx
Wat are the names and locations of experienced vestibulectomy surgeons in England? The only experienced vulvodynia consultant I've read about so far is David Nunns but I'm not sure if he actually carries out the vestibulectomy surgery.
Thanks in advance :- )
Kezz xx
Kezz- Posts : 24
Join date : 2017-03-28
Location : London, England
Sorry it is so late
infinitelywondering Thu Aug 03, 2017 6:10 pm
Hiya,
Miss Gabrielle Downey in Birmingham does Vestibulectomy. She is retiring soon so better catch her quickly!
I know she still does clinics privately at BMI Edgbaston- it would be worth it !
Hope you see this,
lots of love
x
Miss Gabrielle Downey in Birmingham does Vestibulectomy. She is retiring soon so better catch her quickly!
I know she still does clinics privately at BMI Edgbaston- it would be worth it !
Hope you see this,
lots of love
x
infinitelywondering- Posts : 34
Join date : 2016-12-04
Re: Experienced Vestibulectomy Surgeons in England?
Kezz Fri Aug 04, 2017 10:27 am
Thanks hun! I got an email alert for your reply. Since posting I've actually been to see her lol! I'm scheduling the appointment for hopefully sometime in October! Oh no I didn't realise she was retiring, do you know when she is? I have to pay for the operation because I don't have private health insurance so that sucks but I feel like it'll be worth, nearly 4 grand. But if that means I get my life back, money means nothing. Do you have it done? Lovely to hear from you and thanks so much for the reply lovely. Xxx xxx
Kezz- Posts : 24
Join date : 2017-03-28
Location : London, England
Just had the operation
infinitelywondering Fri Aug 04, 2017 11:02 am
Yes! I just had the operation done on Wednesday... so feeling a little rough at the moment ! I'm only 17 so hopefully I should start healing pretty soon and yes, I don't think you can put a price on getting your life back. For me it's not so detrimental because I'm not at the age of having children and so on, but in the future it would've meant that I couldn't do any of that. I'm praying that the operation worked for me and i get better soon!
I think you should know that you won't reap the benefits of this op for a while- healing does take quite sone time. I'm giving it at least 6 months to fully heal. Then I'll start using dilators. It is a long process (and painful!) but I think it's worth it
If you need any more help then please don't hesitate to message me privately !
Lots of love
I think you should know that you won't reap the benefits of this op for a while- healing does take quite sone time. I'm giving it at least 6 months to fully heal. Then I'll start using dilators. It is a long process (and painful!) but I think it's worth it
If you need any more help then please don't hesitate to message me privately !
Lots of love
infinitelywondering- Posts : 34
Join date : 2016-12-04
Re: Experienced Vestibulectomy Surgeons in England?
Kezz Fri Aug 04, 2017 11:39 am
Hey hun thanks for reply! I'm a bit clueless on this lol. How do you private message? I hope you're not in too much pain but so happy for you that you had it done. I'd absolutely love to have a chat with you about it! Xxx
thanks for reply! I'm a bit clueless on this lol. How do you private message? I hope you're not in too much pain but so happy for you that you had it done. I'd absolutely love to have a chat with you about it! Xxx
Kezz- Posts : 24
Join date : 2017-03-28
Location : London, England
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» Please tell me this can get better
» By no means cured, but doing much better!
» How I cured my Vulvodynia!
» 7 months since the diagnosis
» Gabapentin Gel. or other topical creams
» IMPORTANT FOR UK SUFFERERS
» Help New Diagnosis
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!