Vulvodynia Support
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» Hope to all my suffering ladies
How to tell a bloke??? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
How to tell a bloke??? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
How to tell a bloke??? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
How to tell a bloke??? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
How to tell a bloke??? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
How to tell a bloke??? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
How to tell a bloke??? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
How to tell a bloke??? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
How to tell a bloke??? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


How to tell a bloke???

+2
Mouse
Caroline1109
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How to tell a bloke??? Empty How to tell a bloke???

Post  Caroline1109 Sun Feb 13, 2011 12:10 am

I am 33 and trying to find a bloke through online dating as time is getting on now and I have buried my head in the sand long enough waiting for Mr Right to land on my doorstep!! I am so terrified of dating (have been single 6 years now) as I am so scared of telling a bloke about my problem with having sex - has anyone got any tips who has been single and then met a guy and had to explain this to them???

Thanks Smile

Caroline

Caroline1109

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Join date : 2011-02-12

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Post  Mouse Sun Feb 13, 2011 3:58 am

Hey Caroline, I love that there is still a quest for Mr Right. We may have more luck finding the tears of baby unicorns.

Sarah posted on a discussion about a platonic dating site. That could be a good place to find your feet. This shizzer is fairly isolating and it's often easier to just stay home so well done for wanting to get out there.

How about you cross that bridge when you come to it. Honesty is good. Could you say I have a pelvic pain condition that prevents me from having sex? Remember penetration is more beneficial to a guys happy ending, we have a whole other pleasure centre located a bit further up. Maybe get to know yourself and your body. Find out what your boundaries are, what you are comfortable with and go from there.

Do you have a physio? Maybe talk to her/him if you are comfortable doing that. I don't know what sort of V you have, is your pelvic floor an issue?

Good luck! If you happen to find Mr Right could you post a photo please? =)

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Sebby (Admin) Sun Feb 13, 2011 11:26 pm


Hi Caroline and welcome to the forum!

This is something I have been thinking about too. I thought about the Platonic Dating side but despite my V and trouble with Penetration I still have a sex drive! and can do other stuff!

Im 30 and have been single for nearly 2 years and miss the whole dating thing.

I too wonder how to approach the subject? I rekon on a low pain day I could have intercourse but would pay for it with a flare up for days after.

What I would do is firstly only tell a guy I was dating when I was sure I wanted to take things further in terms of regularly seeing them and becoming sexual with them. I wouldnt say anything on a first date or the first few converstions or even the first few dates! Reason being is there maybe many other reasons not to take things further with a potential date other than V... and it will be a waste of time telling them and going through such a difficult thing when they are not suitable for you anyway for a number of other reasons.

As Mouse said I would start by saying I had a Pelvic Pain condition that made sex(intercourse)difficult. I know how scary it will feel saying it when you really like the guy and would fear rejection.

You will need to develop a tough skin and not get TOO attached too early.

I would also look at what I was and was not comfortable with like Mouse said..for instance what are you exact limitations sexually and what can you do comfortably and easily

For instance, on very bad pain days I wouldnt attempt anything. On medium pain days I could be touched outside etc. On low pain days I could be touched outside and inside and after a couple of glasses of wine would even attepmt intercourse...whether or not I would suceed is something I would find out each time lol and would unfortunatly brace myself for a flare up..it depends on how hot he was and if he was worth this! Smile

In the meantime enjoy the dates and continue on your quest for pain relief..look into anything that you have'nt tried yet. Have you tried pelvic floor physio or dilators to help with stretching the vagina..good way to practise intercourse!

This is what I am doing and I do hope I pick up the courage to try dating like you. I really admire what you are doing and wish you the best of luck

Please keep us posted on your progress!

Take Care
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
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Age : 43
Location : London UK

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Post  naomi Sun Feb 13, 2011 11:44 pm

heyhey!

single too!

I'm adopted a really brash approach to it and just tell them straight to the point. If they dont like it then they can hop along! Smile

Sounds harsh but out of the guys ive told (only started going out socialising over the past few months again properly as i struggle really bad with this)theyve told me they really appreciate it. I dont want to waste anyones time if they have a problem with it and likewise.

Granted i tend to chat up cute guys in pubs and clubs where there is alcohol involved and that helps...otherwise i would go the bright red!!!

So yeh, i tell em im not working due to my health at the mo, cant have sex point blank (not because i dont want to but tell them I am left raw and sore) and it gets me really down.

I know its not everyones idea of brooching the subject but i feel ive got enough going on in my life without any more upset to add to it.

hope this helps....subtle as a sledgehammer Smile
naomi
naomi
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Post  noni Mon Feb 14, 2011 12:18 am

Hahaha Naomi you are awesome!

I wish I had the guts!

noni
noni

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Post  jules Mon Feb 14, 2011 2:39 am

Hi..i'm not single, but i'd like to take a stab at this. I personally am very open about my disorder. i'll tell anyone who wants to listen. i've been w/ the same man for 25 years. i asked him what he thinks you should do. from his perspective, he believes you should wait at least a few dates so the guy can get to know you as a person first. back in the day when i turned guys down for sex cause i was Catholic and all (LOL), the ones who only wanted sex were long gone after the first date. the ones who truly were interested in me, stayed around..my husband was actually one of them. I would think someone looking for a woman on a dating site is interested in more than sex, i could be wrong. Otherwise, wouldn't they just go looking for a hook-up in a bar or at a party? I'm with Naomi though..just say it like it is. you have a pelvic pain disorder that makes sex uncomfortable at times or frequently (depending on your symptoms). Let him know you are working on trying to improve the symptoms w/ treatment. Keep us posted. You'll meet your man.

jules

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Join date : 2010-03-17

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Post  Sebby (Admin) Mon Feb 14, 2011 9:48 pm


If you do meet your man ask if he has a single brother ;)lol
Sebby (Admin)
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How to tell a bloke??? Empty You guys are awesome!!

Post  Caroline1109 Tue Mar 01, 2011 10:07 pm

Thanks so much for the advice!! I have a date tomorrow night so wish me luck!! xxxx

Caroline1109

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Post  Mouse Tue Mar 01, 2011 10:57 pm

Good luck with the date Caroline... remember baby steps! Don't plan your whole life Very Happy

We now have 2 newly dating ppl, this is so exciting. I might have to wait up!

Mouse

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Post  Sebby (Admin) Wed Mar 02, 2011 7:07 pm


Good luck and tell us how it goes! did you meet him off a dating site?
Sebby (Admin)
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Post  naomi Thu Mar 03, 2011 1:57 am

dont leave us in suspenders!! howd it go?!!!
naomi
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