Tipped uterus?

Hello...

Do most of us with these V issues have a tipped uterus? I think this is all so inter connected...one part of the V affects other parts of our anatomy...

Thoughts anyone?

Well funny you should mention that! When I had my smear before Christmas my Dr had a little trouble because I have the tippy thing. No one has even mentioned it before.

Hey Vicki!

It was just a thought floating around in my head...one of my many theories these days....im just trying to piece together and make sense of all this, really.

I suspect a lot of us here have other underlying V issues that contribute to our vulvodynia/vaginismus/vestibulus problems.

Hi Noni, my specialist said she doesn't have 20 patients to do research on and yet here we all are. It would be fantastic if you found a commonality that no one else has thought of! =)

Hey!

I feel like a detective with this whole vulvodynia ordeal...Im trying to connect all the dots...

...I would love to find a combo that would help most (if not all) women out there!

1. Oral meds
2. Topical natural ointments
3. Physical therapies

It would be amazing to find a combination of all 3 above that would be beneficial to us.

There's a really interesting treatment program on another site. I don't know the name of the Dr but she is in Canada as well. The woman with V has been posting her progress. It seems to be working. She's having nerve blocks and applying lidocaine. I think the blocks are lidocaine as well. She's having the nerve blocks in different areas as well. I'll hunt it out and send it to you.

V.

Thx Vicki...

Nerve blocks sound real scary to me.

But i am curious...

Thanks

not sure if i have a tipped uterus. but, i'm all in on finding a great treatment program. i had two nerve blocks in my spine...they were a little scary and did not help. i'm interested to see how this person in Canada is doing. let's find a cure or a damn effective treatment....i'm getting a little sick of this.

Ok this is what I've got so far... Oh and it also names the Dr but I don't know where she is in Canada. There are other posts that explain the treatment in full will have another hunt:


[i]Dr. Robert, as well as many researchers my GP contacted, stated that the etiology or the causes of PGAD remain unclear. Does PGAD start in the brain and send signals to the genital area? Or is it the reverse and the clitoris or penis bombard the brain with arousal signals which are really pain signals?

Dr. Robert is using a top-to-bottom approach:
1. The top: soothe the brain pain signals by giving medication specifically for the irritated nerves, like gabapentin, lyrica, amitryptyline, etc.
2. The middle: for pain in the lower abdomen and specifically to the pelvic area, the use of nerve blocks to try to stop pain messages for a few hours or hopefully up to 2 weeks
3. The bottom: for the genital area confuse pain messages by applying 5% Lidocaine Ointment every time after urination and before going to bed for an 8-week trial. If Lidocaine Ointment is too difficult to tolerate, the next option would be trying a gabapentin compound to apply to the genital area.

My results with #3 so far:
I have been on the Lidocaine Ointment for 5 days and applying it consistently. It does sting when it is first applied, but that usually only lasts a few minutes, and gets shorter as the day progresses with multiple applications already done.
I have found that it reduced my level of arousal significantly. As for the vulvodynia pain, it lessens the level of burning quite a bit.

and the this:

You were asking what the effects of the nerve blocks had been. I've had two sets of blocks so far, two months apart to both the sacral nerve and the pudendal nerve on the right and left sides. Within a week of my first nerve blocks the raw burning pain in the genital area, the vulvodynia would go on and off, for several hours at a time, resulting in the pain diminishing significantly! But as soon as that pain dropped to mild discomfort, the arousal increased to the point of constantly being on the edge. A week following my first set of blocks, I started using 5% xylocaine ointment on the vulva 5-8 times a day; within a few days, the arousal was down to a level where I said to myself - this is what normal feels like, no annoying sensations or horrible pain. As long as I keep using the lidocaine, the arousal is kept at bay. I wish to add that I do not think that the lidocaine would have worked if I had not had the blocks first.
For many months, I had no choice but to wear skirts or dresses to go out; the pain wasn't aggravated as much that way. Now, I can wear pants for the whole day which certainly simplifies life.
I do believe like Mousey and Gia that in my case PGAD is a rare form of vestibulodynia, that responds with the same kind of treatment as that condition.
Have others had good results with basic nerve blocks? I mean just with the use of lidocaine in the needle and the procedure done in a regular office (no MRI scanning at the same time, no cortisone).

I don't have a tipped uterus and have V but a friend of mine does have a tipped uterus and doesn't have V so I think it's back to the drawing board on the detective work!

The doctor told my aunty she had a uterus that tipped back but she has never had V.

I asked my doctor once if I was normal during a smear like physically. I wasnt sure what I was asking just wanted to know if there was something structurally different as I had the Vaginismus and she said I was normal

Thanks for that info Mouse, Im gonna ask for that ointment just for the hell of it.

Thanks Mouse,

I have tried the lidocaine and it does sting. i couldn't get past the stinging and the fear that it would create more problems for me like all the creams and gels have. the numbness only lasted for maybe 10 minutes when my pain was really bad. but, once again..different things work for different people.

Bugger it! i'll rub some cocaine on it! dont even know where to get cocanie! I'd bloody try anything right now..

Sebby you are funny, now you've posted that we'll no doubt get some fake spammer offering cocaine!

I have a tipped uterus and have Vulvar Vestibulitis... I too am wondering if there's some sort of correlation?

Hi all!

I have VVS. I also have a tipped uterus (tilted slightly backwards) and many fibroids. My VVS pain began about the same time the fibroids got rather large. But my chronic V pain didn't begin until after having sex with a new boyfriend. After that, I've had chronic pain with any kind of touch to the vulvar vestibule. I was pain free until that intimate moment with that boyfriend. After that, my life changed forever. No jeans. No underwear. No bicycle riding. No sex.

Who knows what causes this darn thing+ I wonder though if there are any women who had this condition prior to any penetrative sexual activity. It seems like that brings it on. I wonder if women who've been celibate for their entire lives have this condition.

Yeah, we have to be our own detectives... sigh

Happy New Year! We are all more than this condition. We must believe that. Open your heart and give what you can, and your life will be richer...

Mine's tipped too! This is crazy.

Why can't one of the top V doctors just get us all in one place together and research us all, eh?

Anyway, a question... (a bit TMI!)

Ever since I've been having sex (5 years) I've found that if my bf enters me quite deep then it feels like he's hitting my cervix, and then after a minute or so it stops hurting. Now, after doing some research I found that it is possible that he is hitting it, and that once you get warmed up (haha!) then your cervix moves up and he'll no longer hit it. I think that's right anyway.

However, the other day I was thinking...

Whenever he enters me from behind it is extremely uncomfortable. It's exactly the same sensation and I'm adament he's hitting my cervix, but it's a lot more painful and takes a bit longer to get comfortable.

Now... Could this be because my uterus & cervis are tipped backwards!?!?

This is a long post for such a quick question, but it never really occured to me before the other day that that could be why it's more uncomfortable from behind than it is from the front.

Has anyone else found this, or am I just an oddball?

Apologies for the detail guys!

Holy shit, haven't been on the forum in ages .... lots of views on this thread though, thats for sure !