Hi from Scotland

Hello, I am new to this forum obviously, I was always too scared to join one. But now after nearly 4 years I feel completely alone and have ran out of ideas.

I've asked on so many websites that now I don't know what to post!

I'm 19, I've been in agony with what has been recently diagnosed as vulvodynia (went from IC, to over active bladder, to endometriosis, now to vulvodynia)

I feel like I have no one to talk to, ecpecially when my pain gets worse, all my family and boyfriend can say is "aw" and they don't and can't understand the pain.

I don't really know what I'm aiming for here! But hopefully I find some people to talk to!

Feel free to ask any questions etc, I know this is a bit vague! It's 5am and I'm in agony. Not a good sleep for me tonight I think

Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

- must be the pain medication talking..........lol

saskatownv wrote:Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

- must be the pain medication talking..........lol

Hello
My name is Alana, hehe, although it wouldn't surprise me if I wrote Sam and didn't notice.

6 years? The thought of any more time like this depresses me. I don't want to live anymore. What do you do at this stage, when I'm tired of life like this?

I don't think I will make it to six years.

we are here for you

Hi Alana, have you looked at the IC network forum? Alot of women with IC get vulvodynia and they both have a tight pelvic floor element so I'd guess physio for your pelvic floor is probably the way forward. I often find myself reading posts on there because alot of them mention vulvodynia and biofeedback. I can't remember the exact address, just google IC network and it should come up. There seems to be alot of women with other pelvic issues that get vulvodynia, far too many for it to be just coincidence.

Anyway, welcome to the forum!

here for you chick! we are going to get through this xxxxx

Hey Alana and welcome to the forum and our facebook group!

I can relate to not wanting to live with this anymore..some days I just feel I dont want to go on anymore

Its been over 2years for me with full blown constant pain, but have had VVS and Vaginismus since a teenager which has always made sex painful and tampons a no no

We are all here to help each other search for answers and treatments..If I had not started this forum I really dont know what my mental health would be like now! The girls are amazing

Right back at you Sebby And now for one of Naomi's group hugs!

You know we'll get famous and they'll make a film about us one day!

Whos gonna play you Sebby?

..hmmm...Angelina Jolie? or ....?

Ummm well I bagsy Natalie Portman (wish I looked like her lol) She was great in V is for Vendetta...great film oh V I just realised the link!

Owww this might be a stretch but can Nicole Kidman play me... I've always wanted to be tall.

I want Thora Birch to play me...she was great in Ghost World

Plus I really liked her wardrobe in that film !

catherine zeta jones for me....just cuz we look so alike.

fnar fnarrrrr! *snorts*

bet you wouldnt sleep with Michael Douglas for all the chocolate in china (doesnt everything come from china?) he scares the hell outta me and I dunno why!

if i could have sex HELLLLLL YEHHHHHHHH!!!!! hahahaaaa

actually, second thoughts, i dont think i could!

If michael said "naomi if you have sex with me i will cure your Lady la-la, no joke" YES YES YES!!! (put a bag over his head and think of england)