can v return after vestibulectomy?

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can v return after vestibulectomy? Empty can v return after vestibulectomy?

Post  Alana3 on Wed Mar 07, 2018 3:03 pm

Hi guys!

I used to be a big time member on here, but got my surgery in 2012 and was good to go- don't worry the surgery is still successful and if it's recommended to you, I say go for it. My question is, does anyone know if v can come back after surgery? I went off birth control pills, but suffer from extremely heavy periods, depression, nausea and let's not get into my boobs (but seriously I am at work and want to die and I keep picking fights with my boyfriend this needs to stop). Naturally, this shit disease coming back scares the hell out of me, so i was wondering if anyone here knew if it could come back after the vestibule was removed?

Thanks!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Guest on Sat Jul 28, 2018 6:35 am


Ladies!!!
I am trying to get the word OUT!!! 20 years of “vulvadynia”, ic, vestibulitis. Whatever the docs want to calll it. It’s been beyond depressing and has made me feel downright crazy at times. Incredibly painful, living in silent pain, going to doctor after doctor just to hear that “my mind is causing my vestibular area to flare up”.
PLEASE INSIST ON GETTING TESTED FOR A MICROORGANISM BACTERIA CALLED UREAPLASMA!!!!!!!!!!!!!!!!!
It’s a VERY hard bacteria to find!! Does NOT show up in urine cultures!! There’s a very specific test to find it and you MUST insist on being tested!!!! PLEASE BELIEVE ME!!! After 20 years of this craziness I FINALLY was diagnosed with this bacterial uti and THIS is what has caused the vulvadynia!!!
Doctors don’t even know about this. My new primary care tested me after showing up with a Walgreens uti rest showing positive leukocytes. The urine culture came back negative as usual. She had a sad talk with me about vulvadynia.
I don’t know what came over her to send the urine off to a lab and get it checked for ureaplasma, but she did. I am SO grateful. I am FINALLY HEALING quickly!!
Ueraplasma only responds to certain antibiotics. I’m on doxycycline. 14 days and it may take several rounds. This is a serious bacteria and it can kill you.
Some doctors will dismiss this test and bacteria and say it’s part of our flora. NO-INSIST. If it shows up as an infection because it’s colonized, it IS the cause of vulvadynia.
GET TO THE BOTTOM OF THIS VULVADYNIA LADIES!!! DO NOT BACK DOWN!! FIND A DOC WHO WILL TEST YOU for UREAPLASMA!!! DO NOT WASTE 20 YEARS OF YOUR LIFE GOING THROUGH THIS HELL LIKE I DID.
I’ve been through biofeedback, neurontin, creams, specialist after specialist.
I’ve found small handful of other ladies on the internet who have posted the SAME about their ureaplasma diagnosis. They are doing cartwheels like I am!!!
I am really trying to get to word out!!! I promise you ladies!!!! There is a CURE!!!
DO NOT GIVE UP!!!!! Trying to respond to as many women as I can with my message!

Guest
Guest


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Post  Alana3 on Sat Aug 11, 2018 12:45 pm

Thanks but I've had that 4 times and no it cannot kill you. Stop fear mongering. That's really messed up you would put that on a post where someone got a vestibulectomy for their "vulvodynia." I have the top specialists in the country working on my case. While I have tested positive for ureaplasma, my v didnt go away and still had to have surgery. While it's good to advocate new ideas, this didnt answer my question and actually pissed me off due to the fact that while YOU may have gotten relief I had to have surgery from what was positively identified as vulvodynia. Stop and think before you post.

Alana3

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Post  emalita on Sat Aug 11, 2018 5:07 pm

Hi Alana3,

I believe thankGod posted in another message that the treatment she was recommending didn't work to cure her pain, and I had gotten a really nasty message from her when I sent her a private message politely asking her to use her own post versus replying. She did eventually apologize, but just so you are aware, she copied this reply to a lot of posts sadly.

Hope you are doing well!!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  emalita on Sat Aug 11, 2018 6:39 pm

Looks like she just deleted her account after sending me yet another nasty PM. I'm sending the screenshots to the moderators Very Happy

emalita

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Post  Alana3 on Sun Aug 12, 2018 12:01 pm

Glad I wasnt alone there! I dont want to be nasty but really??? I'm good hope you're well too!

Alana3

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Join date : 2012-09-25

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