Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
I've had increasing vaginal burning/rawness for about a year and a half, and have been seen by a gyno, a GP, and a dermatologist, all to no luck. When I found you all by Googling, I assumed I'd found my issue.
I read your posts on chiropractors and yoga poses helping. I had low back pain problems starting around the same type as my vulvodynia problems (from doing a jump squat), so I called a chiropractor and started doing stretching exercises immediately.
The chiropractor was amazing (Dr. Matt Suntken at Quality of Life MN). He said he hadn't treated any patients with vulvodynia, but that he saw guys with painful testicles all the time and that at least in my case, it seemed like the same set of nerves. After the appointment, I was able to have penetrative sex for the first time in two months.
Other things I've done to help my low back this past week: slept on the floor. Stretching exercises including: the runner's stretch, that one where you lay down and hug your bent leg and bring it towards your chest, the one where you lay on the ground and raise your leg in a split as far as you can, the one where you twist your legs together while laying down and then move them to one side and then the other, touching my toes with straight legs, reaching opposite arm over towards opposite side and leaning, the stretch where you put one leg in front, bend the other horizontally, and lean forward. Given these pretty rough descriptions, I can go and find pictures online and link to them if anyone is curious about them.
A bunch of other information in case it's relevant to anyone else:
-My coccyx started hurting way before my lower back or vulvar region did and that might be in the same nerve path.
-My hips are uneven and that might be a contributor
-I tried steroid cream briefly as suggested by gynecologist; I switched to the SCD diet (which I love but didn't help); I took a ton of yeast infection medicine prescribed by my gynecologist and also stuff for BV which didn't help; I took probiotics recommended by my GP and that didn't help
-A analysis of a recent spine for my lower back pain xray said: Normal osseous mineralization. Mild thoracolumbar dextroscoliosis with apex at T12-L1. Vertebral body heights are preserved. No acute fracture identified. No significant listhesis. Mild disc space narrowing L5-S1 (ADDED NOTE: This comes up in one of the studies below as something leading to our type of pain). Posterior elements unremarkable. Trace lower lumbar facet arthropathy. Sacroiliac joints symmetric.
I'm going to post updates--not sure how much this will take my pain down from here, but I felt I owed it to you guys to post. You helped me so much!
Also, here's a link to a case study about a successful chiropractic intervention and about a different type of intervention (but that shows the issues are connected for at least some people):
[EDIT: I can't post links for seven days because I'm a new member, but if you google:
"Resolution of Vulvodynia Following Chiropractic Care Using Chiropractic Biophysics & Diversified Techniques: A Case Report" it's possible to find a PDF version of it without journal access.
If you google: "Pelvic Neuralgias by Neuro-Vascular Entrapment: Anatomical Findings in a Series of 97 Consecutive Patients Treated by Laparoscopic Nerve Decompression" you can find an abstract.
Thanks again everyone.
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