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» How I cured my Vulvodynia!
Hi girls! New in this forum EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Hi girls! New in this forum EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Hi girls! New in this forum EmptySat Jun 15, 2019 5:22 pm by mary jane

Hi girls! New in this forum EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Hi girls! New in this forum EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Hi girls! New in this forum EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Hi girls! New in this forum EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Hi girls! New in this forum EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Hi girls! New in this forum EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

Hi girls! New in this forum

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Post  Gaby on Fri Jul 13, 2018 2:31 pm

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and pills,( triconazol, fluconazol, and all the "azol's" you can imagine hehe)
In march the yeast infection went away but i kept the symptoms, (burning pain in all my vulva, and eventually also the area around my anus ), and I also notice i had a little ball on the left side of my vagina entrance, so i went back to my gyn and she said it was normal after all the medication i had, that eventually all the pain would go away and she gave me only a moisturizing cream. I used it for around 3 weeks but the pain did not go away, so i went to a dermatologist this time, she said that the PH on of vulva skin was affected and she gave a special cream ( to be prepared at the pharmacy). Since the main ingredient was corisone, it was not recommendable to be used longer than 3 weeks, I must say that it help for the skin around my anus but my vulva still burned a lot!.
So here i go again back to the gynecologist, she took a sample and sent it to the lab. All came back negative for infections, so she said to me that there was nothing to be done, that she couldnt do anything!! She had no clue what was going on!, So i started my search on the internet, and i found a post from a girl in the Netherlands ( i live in Belgium by the way) saying she got cured with PEA pills and cream, so i didnt doubt about it and order them. It did help to ease my pain, but then in may i went on holidays ( to the beach) and it was a hell!!!!!!!!!!!!!!. I got the yeast infection back and on top of that the little ball i had got swollen and it hurt as well, i could barely walk!, so i had to go to a gynecologist there.
She told me that my Bartholin gland (i didnt even know what that was) and my cervix were infected, thus i had to take again triconazol and clindamicine ( i dont know the commercial names in the US) for 15 days, also my poor boyfriend had to take them.

After these 15 days the pain was still there but it wasn't as bad as it was with the infection ,but i still had pain! Before this last yeast infection having sex was not painful but after it it is.
So back home after a few temps of painful sex i got an UTI Sad Sad ... since i had it before i knew which meds to take.
When i got the uti under control I went to see another gynecologist, she told me that my Bartholin gland was still swollen but not enough to do something about it, she also mentioned that the source of my pain was due to a chronic vv ( that is also why the after sex is so painful), she prescribe lydocaine to use before sex and another cream with corticoids (which i read are very bad on the long run), she took also a sample for yeast infections that came out negative but she didnt check my urine or anything related to it. She also told me there is no cure for this, that it goes away by itself but it can take months or even years!!! But how can you live like this, always in pain!.

I keep doing research and looking for a cure, i refuse to live like this, and that is how i found this forum, I've been reading it for a while and I saw a post about saginil gel, i've been using it for a week and i must say that my pain on the extern labia has decrease a lot! i almost dont feel it anymore, but i still have pain in the intern labia and on my urethra, I feel like if something is pushing on it all the time and after I pee i have bladder pain Sad Sad Sad Sad ................................ on top of it, I am 34 years old and the biological clock is starting to stress me, my boyfriend and i want to become parents somewhere in the near future but how if we cannot even have sex!!

At the end of this month i will be visiting a new gynecologist, someone specialist in vulvodynia and yeast infections, he is my last hope so we will see.

Has any of you got pregnant with this condition? Is it possible? Can you get pregnant and at the same time follow a treatment for vulvodynia? Any advise is welcome.

Thanks a lot and keep strong!! We'll be cured some day Smile.


Sorry for my bad english I am not an english native speaker.


Posts : 8
Join date : 2018-07-10

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Hi girls! New in this forum Empty Re: Hi girls! New in this forum

Post  Taylor1 on Thu Aug 02, 2018 11:11 am

Hi something very similar happened to me, water infection, antibiotics, thrush and now this for me its been 3 months of pain some day are worse that others. I am just using coconut oil and lidocaine which helps when it is really bad it means I can cope with a day but I am single and desperately want to meet someone but who will want me with this...

I dont have any advice or anything that I can say that will help as I am new and struggling with this too.

I am tempted to try the saginil gel you have mentioned but unfortunately I do not have a lot of money

Good luck x


Posts : 4
Join date : 2018-07-02

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