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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Support Group in Manchester or North West
+3
CamperUK
helen4444
mblack
7 posters
Page 1 of 1
Support Group in Manchester or North West
Hi Ladies
Im new to here but have been suffering from Vulvodynia for a year now with my symptoms being bad since last August.
Ive been looking for support groups in the North West and cant find any active ones.
I for one have never met anyone with this condition and I know it would massively help me to meet other women and see how they deal with it.
Im just really trying to find out if there is anyone in the North West who would be interested me.
There may already be one set up I am unaware of I would love to join.
Thanks
Michele
xx
Im new to here but have been suffering from Vulvodynia for a year now with my symptoms being bad since last August.
Ive been looking for support groups in the North West and cant find any active ones.
I for one have never met anyone with this condition and I know it would massively help me to meet other women and see how they deal with it.
Im just really trying to find out if there is anyone in the North West who would be interested me.
There may already be one set up I am unaware of I would love to join.
Thanks
Michele
xx
mblack- Posts : 4
Join date : 2011-02-20
hi
Hi,
Just seen your post.I kept trying to find out when the group in Manchester/north East was meeting.Can't even remember who or what it was called got fed up seeing 'coming soon' for this group.Found this support group and secret facebook group which have been life savers!! Sebby ( admin on this site can get you on facebook group not sure if i can i am crap on computers etc) I live in Leeds How about you? Take care xxx
Just seen your post.I kept trying to find out when the group in Manchester/north East was meeting.Can't even remember who or what it was called got fed up seeing 'coming soon' for this group.Found this support group and secret facebook group which have been life savers!! Sebby ( admin on this site can get you on facebook group not sure if i can i am crap on computers etc) I live in Leeds How about you? Take care xxx
helen4444- Posts : 11
Join date : 2010-09-26
Age : 56
Location : Leeds, uk
Re: Support Group in Manchester or North West
Hi Helen
Thanks for your reply.
I live in Manchester but am from Leeds originally. Do you see specialists in Leeds. Im looking to find someone in Leeds?
Ive just joined here and its seems like a life saver, I wish I had found it sooner!
Ive sent a request for the fb site so just waiting to hear back
Michele
xxx
Thanks for your reply.
I live in Manchester but am from Leeds originally. Do you see specialists in Leeds. Im looking to find someone in Leeds?
Ive just joined here and its seems like a life saver, I wish I had found it sooner!
Ive sent a request for the fb site so just waiting to hear back
Michele
xxx
mblack- Posts : 4
Join date : 2011-02-20
Re: Support Group in Manchester or North West
Hi Michelle
Welcome to the forum! I am very new here but I've already discovered lots of tips and advice, wish I had found it sooner, too. Take care x
Welcome to the forum! I am very new here but I've already discovered lots of tips and advice, wish I had found it sooner, too. Take care x
CamperUK- Posts : 15
Join date : 2011-02-15
Hi
Hi Michele, A bit complicated re: my gyno moving and the rest.Here is my e mail address so you can get in touch with me for more info helen.mcinnes@googlemail.com
Helen xxx
Helen xxx
helen4444- Posts : 11
Join date : 2010-09-26
Age : 56
Location : Leeds, uk
Hello from near Mcr!
Hello,
Just to let you know i'm in East Manchester (near Saddleworth) if you're ever interested in having a meet up!
I admittedly feel like a bit of a fraud on this forum as my vulvodynia is nowhere near as bad as some on here, although it still seems bad to me, i do feel like a lucky one, even though this condition just came out of the blue and i was a perfectly normal sexually active 17 - 21/22 year old before it and sometimes i have felt like my life might as well be over because of it, i would give anything for a cure (not my husband or cats but almost anything else!! Definitely all the chocolate and sweets in the world!).
Get in touch if you want, either on here or email me, my address is hannah21n@hotmail.com.
Hannah x
Just to let you know i'm in East Manchester (near Saddleworth) if you're ever interested in having a meet up!
I admittedly feel like a bit of a fraud on this forum as my vulvodynia is nowhere near as bad as some on here, although it still seems bad to me, i do feel like a lucky one, even though this condition just came out of the blue and i was a perfectly normal sexually active 17 - 21/22 year old before it and sometimes i have felt like my life might as well be over because of it, i would give anything for a cure (not my husband or cats but almost anything else!! Definitely all the chocolate and sweets in the world!).
Get in touch if you want, either on here or email me, my address is hannah21n@hotmail.com.
Hannah x
Hoping23- Posts : 9
Join date : 2010-08-26
secret FB
P.S can someone help me get on the secret facebook?? i can pm my name etc.
Thanks x
Thanks x
Hoping23- Posts : 9
Join date : 2010-08-26
Re: Support Group in Manchester or North West
Now listen very carefully.... you just email sebby who is the admin and in charge of all things secretive. Ask her what her hobby is. If that fails email Naomi.
See you on the other side.
Vicki
See you on the other side.
Vicki
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Support Group in Manchester or North West
heheeee mouse u do crack me up....'see you on the other side' so cryptic put a smile on my otherwise pissy looking face today
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Support Group in Manchester or North West
haha! Vicki! you cant tell everyone my hobby!
I have sent a friend request to hoping so we will see her soon *opens portal* (cue twilight zone music)
Re: Support Group in Manchester or North West
Oh and I wanted to add that no-one is a fraud on this site (well apart from the person trying to sell us handbags!)
This forum is for anyone with 'vulval pain' as this is what Vulvodynia means...from itching, to soreness to burning with or without provocation..mild or severe.. in other words if ya vulvar dont feel right then this is the site for you!
Similar topics
» New to the support group and have just been diagnosed
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» Dallas Vulvodynia Support Group
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» Dallas Vulvodynia Support Group
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
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» By no means cured, but doing much better!
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» How I cured my Vulvodynia!
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» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
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