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    » 7 months since the diagnosis
    Change in birth control question EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Change in birth control question EmptySat Jun 15, 2019 5:22 pm by mary jane

    Change in birth control question EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Change in birth control question EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Change in birth control question EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Change in birth control question EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Change in birth control question EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Change in birth control question EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Change in birth control question EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    Change in birth control question

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    Change in birth control question Empty Change in birth control question

    Post  Jo44 on Wed Jul 18, 2018 3:47 pm

    Hi Ladies

    So I’ve been on Microgynon for approx 30yrs give or take when I had my children, so last stretch after my son was born  is 19.5yrs. 3.5yrs is when my Generalised Vulvodynia started, after I’d withdrawn from Mirtazapine!

    I have been on Lyrica/Pregabalin for about 3yrs along with 50mgs of Amitriptyline. As the Lyrica has helped me pile on 3.5stones I want off so am weaning off it very gradually ie; 1-1.5ml every wk to 2wks to let withdrawal symptoms settle etc. I went for my annual birth control check and it was suggested that I switch to the mini pill (Norgeston) as my BMI is too high to stay on Microgynon.

    I have been on the new one 10 days. The day I started it I had a headache in the evening, but the morning after the discomfort started below again. ( It hadbeen fairly good, upto starting the new pill the odd day here & there etc.) Is it too coincidental that the new pill has caused it?

    GP is puzzled cause it’s the same Progesterone as the combined pill it’s just there’s no oestrogen in it! I’ve also been feeling slightly queasy about 2hrs after taking it & mood & period pains last week were awful. You’dve thought id’ve had an awful period, really heavy but it was quite light just like when I was on the combined pill. The symptoms didn’t match the flow! Lol

    I don’t know whether to persevere with the mini pill or stop birth control all together ?

    Advice or experiences please?




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    Post  emalita on Thu Jul 19, 2018 3:27 pm

    Hi Jo,

    I'm so sorry to hear you're in this situation. Switching medications can be so stressful and tricky.

    I had to Google Mirtazapine to see what it is, and it appears to be an antidepressant, correct? And your pain started after stopping Mirtazapine?

    Strangely antidepressants are sometimes used to treat vulvodynia, and if your pain started after stopping it, I wonder if there is a connection there. Are you willing to try going back on it?

    Unfortunately from my experience, even if birth control is similar, the reactions we have to each one can vary wildly. Plus, hormonal birth control and vulvodynia have a horrible connection for many women where the pills actually cause a sometimes permanent change in the body, which results in chronic pain even after stopping the pills.

    Are you able to try non-hormonal birth control options?


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    Post  Jo44 on Thu Jul 19, 2018 4:31 pm


    Thanks so much for replying.

    I was out in mirtazapine because of insomnia & anxiety. I came off it as it didn’t help & took me a year to withdraw from it!

    I think coming off it wrecked my central nervous system, which made it go crazy down below! I’d never go back on it.

    Today I didn’t take the birth pill this morning as I had been & no queesy feeling but very emotional, crying at the slightest thing etc! Although my 24yr old daughter has been admitted to hospital because of her Crohns but normally I’m strong & get on with it! Have been better this afternoon though!

    I don’t think I’m going to take the birth pill anymore & see if things calm down below. I realise my moods will be up & down but hoping it will help the V!

    Thanks again huni

    Jo x


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    Post  emalita on Thu Jul 19, 2018 4:58 pm


    I was on many different hormonal birth control options pretty much since the day I got my period as a kid due to severe cramping. I also had severe migraines, which resulted in being put on many different antidepressants to try to control the migraines (makes no sense looking back).

    I finally stopped the birth control in my early 20s, and it took many months to let my hormones even out. But the amazing thing was that my migraines disappeared. I told my sister about it, who also was on birth control and suffered with migraines, and after stopping birth control, her migraines disappeared, too.

    Long story short, give it some time before jumping back into hormonal birth control. Condoms aren't so bad, and they make IUDs that don't contain hormones. Try to let your body heal. I promise you that giving this a fair shot will help you in the long run if your pain doesn't go away. I think so many of us, especially me, wish we would've followed through longer on ruling things out versus jumping around and back again to get to the bottom of things finally.

    Keep us posted on how you're doing  Very Happy


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    Post  Jo44 on Thu Jul 19, 2018 7:34 pm


    I’ve been better emotionally this afternoon. Still sore below, but I’m not taking the birth pill again.......... well for now anyway! Will be interesting to see if anything changes below by stopping it! Sadly my V started 3.5yrs ago & ive been on the combined pill for 19.5yrs so it didn’t start this awful journey.

    I don’t get migraines but I’ve certainly been the type of person who had frequent headaches over the years, was even tested for neurological disorders in case it was that!

    Will keep you updated huni. ????


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    Change in birth control question Empty Update

    Post  Jo44 on Mon Jul 30, 2018 8:57 pm

    Hi all

    So an update!

    I stopped the birth pill 12 days ago, 8 days have been good as in no pain! 1 day sore following sex & the other days the discomfort has been about a 4/10. Today there is discomfort pelvic area, but I had spotting & a lot of mucus with dark blood so I’m guessing I might’ve been ovulating?! Hormones all over the place as had bad anxiety yesterday & some of today.

    I do think I’m dryer down there now, as when on the pill I didn’t have the need for lube? I thought the birth pill could make you dryer not the other way round?

    I would add that I’m not using any birth control except my husband is withdrawing & ejaculating by hand at the end. On the two occasions we’ve tried sex! Sorry if tmi.....

    Will keep updating.

    Love & hugs ???? x


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