Vulvodynia Support
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» Hope to all my suffering ladies
Pelvic ultrasounds EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pelvic ultrasounds EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pelvic ultrasounds EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pelvic ultrasounds EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pelvic ultrasounds EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pelvic ultrasounds EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pelvic ultrasounds EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pelvic ultrasounds EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pelvic ultrasounds EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pelvic ultrasounds

4 posters

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Pelvic ultrasounds Empty Pelvic ultrasounds

Post  seagirl88 Wed Mar 16, 2011 8:05 pm

I know we've all experienced how absolutely excruciating having a pelvic exam can be, but I was wondering if any of you ladies have ever had a transvaginal pelvic ultrasound? I'm going to get one soon and I want to know if I should expect it to be much more painful than an internal exam (which is already the most painful thing EVER so I'm not sure how it could get any worse Shocked) I'm terrified, but my doc wants to get a look at my reproductive organs since I'm not getting my period anymore.

seagirl88

Posts : 14
Join date : 2011-03-14
Age : 35
Location : Washington, USA

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Pelvic ultrasounds Empty Re: Pelvic ultrasounds

Post  Mouse Wed Mar 16, 2011 10:04 pm

Hey there,

I had an ovary scan last year I'm not sure if that's the same thing. I had to drink lots of water and the initial part was on my tummy the same as they do on pregnant woman. Then I was allowed to pee - thank God!!! The rest was no more invasive than a smear so of a similar size and I was allowed to insert that myself. I have generalised so have no trouble with insertion.

Take some rescue remedy before you go or maybe get drunk affraid Kidding about that one of course! I found this clip on youtube which shows how it works. If you need insertion it looks like the head is fairly small only about half an inch. Can you tolerate that?

I know someone with V who also has no periods. She's just turned 30 so hoping to crank that up to eventually be able to have a baby. Not sure how the sex part will happen but we're all doing baby steps I suppose.

I hope this helps Smile

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Pelvic ultrasounds Empty Re: Pelvic ultrasounds

Post  Aussie Thu Mar 17, 2011 3:35 am

I had one at the start of all this to rule out anything serious (I think I would rather have something serious that they can treat anyway)

but it really wasn't all that bad. I just told the nurse dong it about my sensitivity and she let me put it in myself there was heaps of lube on it. If your allergic to latex ask them to use a non latex glove i find it helps. Put it in yourself, the best way to relax the muscles I find is to push the thing your inserting away, do you understand what I am saying? bear down kind of - and as your doing that push it in slowly. They can use anesthetic gell too.

I am sure you will be fine. Breathe through your tummy not your chest for about 6 breaths before, that will help relax also.

Good luck Smile

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Pelvic ultrasounds Empty Re: Pelvic ultrasounds

Post  seagirl88 Thu Mar 17, 2011 5:17 am

Thanks for the replies guys. I'm glad that they have an anesthetic gel-- hopefully that helps.

seagirl88

Posts : 14
Join date : 2011-03-14
Age : 35
Location : Washington, USA

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Pelvic ultrasounds Empty Re: Pelvic ultrasounds

Post  Sebby (Admin) Thu Mar 17, 2011 7:51 pm


Asked the question on the fb group (linked to forum) and I got several responses...

One member said that she found it helpful to be allowed to insert the instrument herself - maybe something you could ask
Another didnt like it and found it difficult but got through it
another said it was ok and not at all bad and just made sure the lady doing it knew about the V
and another said it was better and easier than a smear

Overall the majority were more positive accounts! Smile
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Mouse Fri Mar 18, 2011 12:44 am

Bloody hell I forgot to put the link up. I hope this helps.

https://www.youtube.com/watch?v=Rdt6De4_2h4

V.

hmmmm I also realised that I've been signing myself as V. for years and that's the same abbreviation I use for this bullshit. I'm getting a new name!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  seagirl88 Fri Mar 18, 2011 5:00 am

Thanks Sebby for forwarding those responses to me, and thanks Mouse (or "V" Wink ) for the YouTube link. The picture of the ultrasound microphone thing looks terrifying though! We'll see how it goes...

seagirl88

Posts : 14
Join date : 2011-03-14
Age : 35
Location : Washington, USA

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Pelvic ultrasounds Empty Just got back

Post  seagirl88 Mon Mar 28, 2011 9:57 pm

Well, I just got back from my ultrasound. The initial insertion of the wand was literally the most painful thing I have ever experienced. I think that even if I got shot the pain wouldn't compare to the pain I feel with my vulvodynia. I'm sure all of the results will come back normal, too. WHY WHY WHY do we have such horrific, unexplainable pain? It's getting harder to pretend to be happy and lead a normal life. I'm feeling pretty hopeless right now.

seagirl88

Posts : 14
Join date : 2011-03-14
Age : 35
Location : Washington, USA

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