Vulvodynia Support
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» Hope to all my suffering ladies
feeling really down this evening EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
feeling really down this evening EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
feeling really down this evening EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
feeling really down this evening EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
feeling really down this evening EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
feeling really down this evening EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
feeling really down this evening EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
feeling really down this evening EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
feeling really down this evening EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


feeling really down this evening

4 posters

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feeling really down this evening Empty feeling really down this evening

Post  maryjane Thu Mar 24, 2011 9:05 pm

Hi everyone

Just came on to just say I am feeling really down this evening. As I have said in my last post I have been really lucky and haven't had this dreadful pain for about 4 years but it has flared up again. I have started taking Amitriptilene which helped before but I know it will take a while. The pain is quite bad tonight and I suppose I am feeling sorry for myself but the thought of having this for another few months or more depresses me. I look around at everyone else and think how lucky they are and I ask why me. Sorry for being so negative but it is nice to be able to say how you feel to people who understand the pain Thanks for listening Sad

maryjane

Posts : 3
Join date : 2011-03-13

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feeling really down this evening Empty Re: feeling really down this evening

Post  Mouse Thu Mar 24, 2011 10:00 pm

Hi Maryjane,

Feeling down is part of this crap! Don't beat yourself up you have every right to be mad and sad. Be gentle with yourself and just blob out for a while.

My focus became not letting the dips in confidence be too deep. That worked most of the time. My therapist will tell you (hahhaa if she could) that I had completely crazy times and would email her out of desperation. God I don't know how they do it.

Having someone to unload too takes the pressure off. I found my friends lack of understanding frustrating. People just don't understand unless it's happening to them. Have you got someone to unload to Maryjane. We are all here for you!

Take care
xx.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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feeling really down this evening Empty Re: feeling really down this evening

Post  noni Fri Mar 25, 2011 1:53 am

Hey Maryjane

We have all been there (some of us still there) just down in the dumps...i mean waaaay the fuck down!!! Read my post ``Feeling Really Low``...

I have a feeling you will be getting better soon, just be patient girl.

In the meantime, feel free to unloud here and know that we TRULY know where you are coming from! Today I walked out of my doctors waiting room after waiting 2 hours just to see my GP to get my blood work back!! I said F this.<

This is a beast that we are constantly fighting off. I have done a total 180 on my life. Changed my diet, clothing, activity level.

When I am stressed i just go on youtube and listen to zen meditation music, it helps me sometimes. Other times, I try to occupy my time with crafts, etc....to keep my mind off this crap condition.

Were here for you...

Your V sister,<
noni Smile

noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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feeling really down this evening Empty Re: feeling really down this evening

Post  Sebby (Admin) Sat Mar 26, 2011 5:49 pm


Hi Maryjane, can relate you how you feel hun. I have been feeling like a mad women over the last week or so! When I get like this I have to say to myself just take one day at a time.

If that is too much I just take one half hour or even one moment at a time and try to do something to take my mind off the feelings

Yes unloading on here, with a friend, family or therapist really does help. I been crying on and off for a couple of days, its pmt time again grrrrrrrrrrr

Keep strong and we are all here for you and understand how you feel

Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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