Log in
Similar topics
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Ureathra and clitoral pain
4 posters
Page 1 of 1
Ureathra and clitoral pain
Hi Guys,
Since I came back from Adalaide I have not suffered with this except from once because Marek desensitised the trigger points around the ureathra and bladder neck.
It has come back in full force with that horrible burning heavy bladder feeling and frequency it feels like someone is trying to stick a tooth pick up my wee hole
Any tips to get rid of this? I don't see my physio for another week and I am not game enough to get my husband to try and get to those trigger points it is way more sensitive than the ones in the vagina.
Help...it hurts too much to bear.
Since I came back from Adalaide I have not suffered with this except from once because Marek desensitised the trigger points around the ureathra and bladder neck.
It has come back in full force with that horrible burning heavy bladder feeling and frequency it feels like someone is trying to stick a tooth pick up my wee hole
Any tips to get rid of this? I don't see my physio for another week and I am not game enough to get my husband to try and get to those trigger points it is way more sensitive than the ones in the vagina.
Help...it hurts too much to bear.
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Re: Ureathra and clitoral pain
Hi hon,
I'm so sorry to hear that you're hurting so much. It sounds like at least a urinary tract infection ... sounds like you should see a doc or even go to emerg. Is there burning when you go, and horrible pressure after? Have you had this before? If so, you might want to investigate interstitial cystitis.
Hope it gets figured out asap!
I'm so sorry to hear that you're hurting so much. It sounds like at least a urinary tract infection ... sounds like you should see a doc or even go to emerg. Is there burning when you go, and horrible pressure after? Have you had this before? If so, you might want to investigate interstitial cystitis.
Hope it gets figured out asap!
Zazu- Posts : 64
Join date : 2011-04-05
Location : Canada
Re: Ureathra and clitoral pain
I had that exact pain when my V first started, I used to describe it as a knitting needle in the urethra though. I don't know what to say about the trigger points though as I've not had mine done there. Do you think switching from relaxing to strengthening has set this off? Was it too soon to start the strengthening after all?
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Ureathra and clitoral pain
no I have had this one on and off for a while. Seems to coninside with my period. I have not changed the approach I am not doing strengthening yet. Hope you are well Sarah
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Re: Ureathra and clitoral pain
Apologies I thought you'd switched to strengthening with a different PT. I'm still trying to get back to physio myself and want my physio to start helping me relearn how to use the deep stabilisers functionally so I'll update when I finally get there! Do you have very stingy painful areas either side of the urethra? I have those and have no idea what to do with them, I went through a phase of thinking they were the skene's glands but I'm not sure if they are now.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Ureathra and clitoral pain
Hi Sarah,
Those stingy points either side of your urethra will be the trigger points there. I have got my Husband releasing them now for me in between physio appointments. I went to physio yesterday and she said my trigger points were releasing so quickly and asked what I had been doing. I told her my Husband was doing the trigger points and internal massage daily for me. She said KEEP GOING it's working. Get your physio to get some lidocane on the urethra even put it inside and then do the trigger point work. Trust me if you haven’t had these touched before do not try and do it without lidocane, it is murder. After a while you won't need to use the lidocane and they should start releasing slowly.
Best of luck! xxx
Those stingy points either side of your urethra will be the trigger points there. I have got my Husband releasing them now for me in between physio appointments. I went to physio yesterday and she said my trigger points were releasing so quickly and asked what I had been doing. I told her my Husband was doing the trigger points and internal massage daily for me. She said KEEP GOING it's working. Get your physio to get some lidocane on the urethra even put it inside and then do the trigger point work. Trust me if you haven’t had these touched before do not try and do it without lidocane, it is murder. After a while you won't need to use the lidocane and they should start releasing slowly.
Best of luck! xxx
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Re: Ureathra and clitoral pain
Thanks for that, is your huband doing a press and hold technique on your trigger points or a massage method? I've got horrible pain in the superficial pelvic floor muscles which causes stinging, nerve pain, aching and soreness when they are pressed but they don't seem to be releasing very well (tightening up immediately afterwards because of my loose SI joints is more like it). Oddly my left side feels really tight but the right side isn't at all, exactly the same thing I have going on with my external muscles around the pelvis too.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Ureathra and clitoral pain
Same with me, one side is worse than the other. Mine seem to tighten up immediately after but not to the extent they were prior to the trigger point work.
My Husband uses press and hold, but on the real sore ones he might give a bit of a massage. I am in tears sometimes with the ureathra ones but it is working. I know when I get to physio and she has a feel, they release quicker each time but it is getting them to not tighten up again in the first place that I am struggeling with.
I saw an SI Belt in my physio's office last time I may ask her about it. On the plus side I am on my period and no ureathra or bladder pain! that is a first. Hubby must be doing something right. Poor thing, feel so bad for him.
Hope you are having a pain free day Sarah xxx
My Husband uses press and hold, but on the real sore ones he might give a bit of a massage. I am in tears sometimes with the ureathra ones but it is working. I know when I get to physio and she has a feel, they release quicker each time but it is getting them to not tighten up again in the first place that I am struggeling with.
I saw an SI Belt in my physio's office last time I may ask her about it. On the plus side I am on my period and no ureathra or bladder pain! that is a first. Hubby must be doing something right. Poor thing, feel so bad for him.
Hope you are having a pain free day Sarah xxx
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
help
Did you find any temporary things that helped with the heavy bladder feeling? I thought I had a UTI, but the test came back negative and I don't have pain while peeing. It is quite uncomfortable and I am also about to have my period.
annaCA- Posts : 8
Join date : 2011-05-16
Anna
hi Anna, my bladder pain always comes around my period too. As for the clitoral and ureathra pain, i tried coming off lyrica and not had pain there since. It is still sensitive to touch but i have not had provoked pain there in 20 days and counting. To relieve bladder pain hot water bottle is best and avoid trigger foods. i recently went0to urogyne and she has given me oxytrol patch to relieve spazms in bladder causing pain and frequency. It has helped with both. Bladder was only holding 200ml before i thought i was going to burst. Now holding 350 and only been two days. Good luck x
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Similar topics
» My Story- my pain and my advice about possible options for pain
» Dermatologist in Melbourne Australia Cured my Vulvodynia
» Vulvodynia and pregnancy
» Dermatologist in Melbourne Australia Cured my Vulvodynia
» Vulvodynia and pregnancy
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer