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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Hormones and Regular Periods
4 posters
Page 1 of 1
Hormones and Regular Periods
My period is 6 weeks late. Ive had a pregnancy test (might have transferred things during outercourse) which was negative and Im waiting for some blood test results. I usually have a very regular period, but i thought id ask you ladies how regular your cycles are- as a kind of test of how 'normal' all our hormone levels are. Has anyone had their levels of testosterone and other sex hormones tested? I haven't done any research into the influence of hormones on this condition so I dont really know what Im talking about. I did read that female hormones affect joint pain because around ovulation they make the ligaments holding the pelvis and other bones together relax, which comes in handy for childbirth but can exacerbate conditions based on hypermobility or wonkyness of joints. Why do our bodies have to be so damned complicated? Anyway, fingers crossed god isnt playing cruel jokes on me and giving me forced celibacy for 5 years as well as an accidental pregnancy.
lisa98- Posts : 33
Join date : 2010-07-31
Re: Hormones and Regular Periods
I wanted my hormones tested but the doctor refused, my periods have got alot closer together in the last 2 years but as my Mum was fully menopausal at 45 and I'm almost 38 now I suspect it's my hormones starting to decrease because of that. It's right before and during a period when the ligaments get looser, mine are loose all the time anyway but at that time my pelvic joints are alot worse and more prone to dislocation than at other times. Do you have hypermobile joints normally?
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Hormones and Regular Periods
I feel like hormones might have some effect on my condition also, I notice the cyclic patterns, but my doctor seems skeptical. Think I'll ask again if I can get my hormone levels tested, I'd just like to be able to rule it out if nothing else. You'd think doctors would be willing to check up on and test everything when they don't know the cause of a condition, but too often they're resistant to ideas they didn't come up with.
itchyandscratchy- Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK
Re: Hormones and Regular Periods
In the book 'When Sex Hurts' by Dr. Goldstein(s) and a psychologist whose name I forget, he says there are three underlying causes of provoked vestibulodynia (VVS). The first is nerve-related, the second is pelvic-floor related and the third is hormonally related. The science behind the last one is pretty interesting. Apparently, when we are all tiny embryos, our vestibules develop from different tissue than the vaginal tissue (I think it's related to the urinary tract system). This different tissue actually relies on testosterone to remain healthy. If you have low levels of testosterone, it can throw the tissue into crisis. One major cause of this is the birth control pill which binds to active testosterone in the blood and deactivates it. Apparently those of us who started on the pill from a young age (I was 15) have an astronomically higher chance of developing VVS (something like 900 x more likely). I'm writing this from memory so don't quote me on it but that's the gist. The Dr. has had a lot of success with hormone modulating creams which increase testosterone in the vestibule but also supply estrogen in the surrounding vaginal tissue. Anyway it seems pretty conclusive that hormones affect V.
Zazu- Posts : 64
Join date : 2011-04-05
Location : Canada
Re: Hormones and Regular Periods
It's infuriating isn't it? I've seen quite a few posts from women who improved using testosterone and oestrogen cream mixed but they are all from the U.S and not a single one from the U.K. My doctor was very, very reluctant to give me even oestrogen cream and ended up giving me pessaries instead which didn't work. I know for a fact she'd never consider giving me testosterone cream! I also started on the pill at 15 but haven't been on it for about 6 years now. I've also seen alot of women who took Yasmin with V and VVS and that was the last pill I was on too.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Hormones and Regular Periods
Wow, I was on Yasmin too!!
Zazu- Posts : 64
Join date : 2011-04-05
Location : Canada
Re: Hormones and Regular Periods
Did a quick search for "low tesosterone in women" - this is the first result http://www.buzzle.com/articles/symptoms-of-low-testosterone-in-women.html
Pretty interesting, dryness and pain during sex are apparently symptoms of low tesosterone in women, but it sounds like the research is pretty cutting edge.
That book sounds really interesting Zazu, think I'll look into getting a copy.
Pretty interesting, dryness and pain during sex are apparently symptoms of low tesosterone in women, but it sounds like the research is pretty cutting edge.
That book sounds really interesting Zazu, think I'll look into getting a copy.
itchyandscratchy- Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK
Re: Hormones and Regular Periods
My copy of that book is winging its way to me right now from Amazon! Another to add to the collection. Andrew Goldstein wrote the foreword in Amy Stein's Heal Pelvic Pain, I posted a link to it somewhere on here, can't remember where but if you find the link you can read what he thinks about treating V with physiotherapy. Or read it in Amy Stein's book of course if you have it!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer