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» 7 months since the diagnosis
Yeast Infections and Vulvodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Yeast Infections and Vulvodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Yeast Infections and Vulvodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Yeast Infections and Vulvodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Yeast Infections and Vulvodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Yeast Infections and Vulvodynia EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Yeast Infections and Vulvodynia EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Yeast Infections and Vulvodynia EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Yeast Infections and Vulvodynia EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Yeast Infections and Vulvodynia

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Yeast Infections and Vulvodynia Empty Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Wed May 05, 2010 9:17 pm

http://www.obgyn.net/pelvic-pain/pelvic-pain.asp?page=/pelvic-pain/articles/yeast_infections_candida_allergy_vulvodynia

http://ezinearticles.com/?Vulvodynia-and-Candida&id=3834455

http://yeastfreeliving.com/

http://www.yeastinfectionadvisor.com/vaginalyeastinfection.html

http://www.empowher.com/news/2008/10/01/laura-lehrhaupt-unlocking-mysteries-vulvodynia-and-candida

Hi All, here are some links I found after a couple of members bringing up the issue of chronic yeast infection. As well as our first male member!

I havent had much time to read through all these articles (i have to get up early to see gynea so have just done a quick google!) so I am not indorsing the use of any of the products or medications suggested as i havnt tried them myself.

Hope these are useful, I will definately be looking into this seriously as I have had chronic yeast infections in past.

Take care all

Sebby
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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  itchyandscratchy on Mon Apr 11, 2011 1:50 pm

Thanks for this post I've been suffering from chronic yeast infections for two years and just today been iformed that my current symptoms are nothing to do with any kind of infection because the last test result came back negative. I may take some of this info to my GP the next time I go (and there will be a next time lol).
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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Mon Apr 11, 2011 6:56 pm


Your welcome

A few of us are also doing a yeast free diet (well I have cut down not totally yeast free!)




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Post  itchyandscratchy on Mon Apr 11, 2011 9:03 pm

Yeah, it's a very difficult diet to follow, and difficult to explain to people as well as it isn't a well known condition.
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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  EmmaAte on Fri May 20, 2011 8:54 pm

itchyandscratchy wrote:Yeah, it's a very difficult diet to follow, and difficult to explain to people as well as it isn't a well known condition.

It's difficult but I followed it strictly for a few weeks. Didn't notice one iota of difference so I started adding things back into my diet. Still didn't notice a big correlation. I think I would have worried about it's benefits if I hadn't given the diet it's fair shot however, it was an expensive experiment! I did make a few "life style" changes that seem to have been beneficial -- no more caffeine! Yay! And no more milk. I like almond milk and I've discovered that it's an excellent as a milk replacement in recipes too.

Good luck to you! Keep a food diary to document your success.
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Post  itchyandscratchy on Tue May 24, 2011 7:38 pm

I have been following the diet (mostly...) for a couple of months have noticed a lot of improvement, but ultimately I'm hoping to cure this condition in such a way that I don't have to stick to a crazy-strict diet at all times, it's not practical and it depresses me.
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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  Aussie on Wed May 25, 2011 6:28 am

I still firmly believe this is all connected to yeast, or at least the creams we use to treat yeast. This all started for me with 4 infections in 3 months after alot of sex and bubble bath on our honeymoon. I still get infections every couple of months. Currently on Nizoral and then Difflucan long term. With the Nizoral I have no burn or itch just that deep ache that feels muscular, perhaps I am onto something.

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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Thu May 26, 2011 7:17 pm


I know most women who end up with Vuvlodynia do have a history of yeast infections or urine infections. They are not sure though if it is the infection that sets off the vulvodynia or the creams used to treat it.

I wont use creams anymore...no way I would take the oral pill and I have done when needed.

The muscular thing is intresting tho as I have experienced that...Im so wondering if that is something to do with the pelvic floor muscle????


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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  Aussie on Fri May 27, 2011 2:31 am

Thats right Sebby, it's the pelvic floor muscles, they are all knotted. It is the same pain you get when you have been standing for ages and get a sore back or sholders from hunching over. Or sometimes like period pain. In fact when I get my period I can feel 'period pain' all over my vulva, all the muscles just cramping up. Warm baths are wonderful things Smile but so far so good, no/limited rawness.

Does anyone else get the rawness near their bottom hole?

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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  noni on Fri May 27, 2011 8:49 pm

@Aussie: rectal pain comes with the Vulvodynia package.
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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  Mouse on Fri May 27, 2011 9:56 pm

Hey there, I get pain in my bum hole =\ hahhaa nice description. Sometimes it's part of the achey stabby pudendal nerve scenario and other times it's more irritation. I'm guessing that's from using different loo paper or maybe laundry liquid. Soap doesn't generally irritate me at all BUT it could be that also.

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Yeast Infections and Vulvodynia Empty not so sure- about yeast infection adviser

Post  Melissa777 on Sun Jul 10, 2011 8:22 pm

you know this is all theory until its proven- this is my opinion anyway.

See here is what I did- i contacted the Lady of the yeastinfectionadviser.com page
the "expert on yeast"
and while she constantly reminded me I owed her money $30 ever 1/2 hour or $1 a min afterwards
I started to feel- maybe she is in this for the money

I did buy her packet-i read it to its entirty- all of it.
I even gave it to my GYN who I talked into giving me an RX for diflucan
initally i was supposed to take 200 mg a day every day for a month
and I started this- by the 6th day, my tongue became pale- NOT white coated- it wasnt yeast in my mouth
I started to feel "crazy" yes this amount of diflucan did this to me
all the while- before this i had been on the candida diet for 5 months or so- and doing natural yeast cleansers like candi gone, coconut oil, undeclynic acid, using dr mccombs yeast cleansing theory

anyow Im NOT convinced yeast is the problem
not only have I had yeast cultures
I have had specific DNA candida cultures
as well as the GEN PAP (twice) which tests for many strains of yeast

Oh and i even did boric acid for 1 and 1/2 months- which is what left me in this condition- totally irritated my skin
my internal med doc thinks it gave me what may be like a chemical burn

so i think what im trying to say "red yeast" or intercellular yeast is an interesting theory
but until someone proves to me this is yeast related- im no longer convinced
especially when diflucan and other natural antifungals have done nothing for me-
nor other people on here

it is frustrating that the lady who formed the yeast infection adviser page wont give out info for free
when information really shouldnt be paid for
she will charge you for everything
and you really get little free info on her site
so this makes me skeptical

yes i think she should charge for her packet
but to give someone advice- NO i dont think she should charge
and she shouldnt try and convince us that we need to talk our doctors into giving us antifungals when they can do more harm then good
I hope you all know these antifungals can create resistance of fungal infections just like overuse of antibiotics can
so people- be careful
I ended up only taking the diflucan for 16 days
because when i saw my healthcare pract here- he said Melissa you dont have yeast, and really you need to get off this stuff before it does more harm then good!

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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  hoping on Sat Dec 17, 2011 9:21 am

Aussie wrote:Thats right Sebby, it's the pelvic floor muscles, they are all knotted. It is the same pain you get when you have been standing for ages and get a sore back or sholders from hunching over. Or sometimes like period pain. In fact when I get my period I can feel 'period pain' all over my vulva, all the muscles just cramping up. Warm baths are wonderful things Smile but so far so good, no/limited rawness.

Does anyone else get the rawness near their bottom hole?

Aussie - you've got me thinking - I've always had quite long periods and use tampons. By then end of them, my internal muscles are really tired and sore - I'm going to try the moon cup, although nervous - I had a test run the other day and although eays to put in, the pain to take out was pretty horrendous. Might take a few test runs.

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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  Sarah001 on Sun Dec 18, 2011 8:11 pm

Funny you should mention that hoping, I find the vaginal sensor to the biofeedback machine a bit painful to insert but agony to remove and it's because my pelvic floor muscles have clamped round it and won't relax. It might be an idea to get your pelvic floor checked out.
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Yeast Infections and Vulvodynia Empty Yep long history of yeast

Post  pollysobreperez on Tue Mar 13, 2012 6:50 pm

I am also convinced its related either to yeast or to yeast treatment, however I never use clotrimazole and it has still come back!!

What we really need is one of the gynaecologists or dermatologists to get it (sorry)

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Yeast Infections and Vulvodynia Empty Re: Yeast Infections and Vulvodynia

Post  Gizzy on Mon Oct 01, 2012 4:13 pm

Yeah i always get yeast infections and urine infections so i do think maybe its to do with Vulvodynia.It's horrible when i do get these problems on top of Vulvodynia because the pain amplifies! Sad
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