Vulvodynia Support
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» Hope to all my suffering ladies
My mental health... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
My mental health... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
My mental health... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
My mental health... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
My mental health... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
My mental health... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
My mental health... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
My mental health... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
My mental health... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


My mental health...

3 posters

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My mental health... Empty My mental health...

Post  Amy Wed Jun 01, 2011 9:26 pm

How exciting I get to post the second thread here!

Just a few weeks ago I was as close to suicidal as I ever have been. I don't think I wouldve actually hurt myself. I have 3 kids 5 yo and under and the thought of leaving them without a mother was enough to keep me from doing anything, but my goodness I just wasn't sure how much longer I could go on. I was in so much pain and I was so scared my dh would leave me. He has been so supportive and sympathetic, truly flawless when it came to dealing with my pain, but how long was he going to be willing to be supportive like that? And the thought of living with this pain for the rest of my life all combined with post partum hormones just about did me in. My kids didn't deserve a mother who cried all the time, my dh didn't deserve a women he couldn't have a normal relationship with. It was bad. I knew it was bad so I called and asked for an anti anxiety medicine. Within a week the Paxil too full effect and now I'm happy!!! I'm actually happy!! I haven't been happy since this pain started July '10. I am so happy to be happy that it's just snow balling lol. Even with the pain I feel like my normal self.

And now it seems like we can have painless intercourse as long as he doesn't touch. Where it hurts and we use enough lubrication (I say seems like because I was too emotional to try sex during pregnancy and we've only done it 3 times since delivery and I was also dealing with post partum pain from a tear that's gotten better). The fact that we can have sex just sends me over the moon.

I hate this pain and I can't stand to hear people complain about colds or allergies or whatnot because it all seems so petty to me and I want to shake them and scream "You don't know how lucky you are!!" but the fact thy my mental health is back where it should be and dh and I can have sex just makes me so thankful and feel so blessed!! The only thing that could make me happier is to have this pain completely go away.

Amy

Posts : 4
Join date : 2011-05-23

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Post  Mouse Thu Jun 02, 2011 9:53 am

Oh my goodness Amy. I can't remember who posted about staring at the "bridge at the back of the house" but figuratively that's where most of us have been in recent times. Was that you Claire? My darkest times were in the middle of last year. I have three children also and couldn't imagine leaving them that legacy. I guess that's the key. When you can think about someone elses wellbeing there is hope. I'm so glad you are making progress. Your husband is there because he wants to be. Life isn't always simple. Your kids love you and you don't have to be little miss sunshine to deserve that. In fact that could be pretty bloody annoying.

Be kind to yourself and take care.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Zazu Thu Jun 02, 2011 3:43 pm

That's so lovely Amy, made me smile Smile
It's funny, yesterday we had an appointment with our sex therapist and the same thing came up for me- where, even though my partner has been a godsend through all of this, I still feel insecure about how much he can put up with. I feel like I'm not the same person he fell in love with. And, first of all he came back saying how committed he was, which was really reassuring. But what I thought was especially moving was that my therapist pointed out that we all change- He isn't the same person any more, either. That doesn't mean we're not still in love. Of course, the effect that this has in our lives may make us feel like we change for the worse, but that discounts the inner strength, patience and perspective/wisdom that we also get. I'm definitely not trying to say that it's all for the best, or it happened for a reason, because I don't believe that, but I'm just trying to say that this experience changes us in good and bad ways, but we're all still lovable Smile

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

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