Vulvodynia Support
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» Hope to all my suffering ladies
Newbie here - with a good news story ( which is why I joined). EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Newbie here - with a good news story ( which is why I joined). EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Newbie here - with a good news story ( which is why I joined). EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Newbie here - with a good news story ( which is why I joined). EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Newbie here - with a good news story ( which is why I joined). EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Newbie here - with a good news story ( which is why I joined). EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Newbie here - with a good news story ( which is why I joined). EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Newbie here - with a good news story ( which is why I joined). EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Newbie here - with a good news story ( which is why I joined). EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Newbie here - with a good news story ( which is why I joined).

5 posters

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Post  Ozgirl Sun Jun 12, 2011 11:27 am

Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Ozgirl

Posts : 10
Join date : 2011-06-12
Location : australia

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Post  Sarah001 Sun Jun 12, 2011 11:47 am

Excellent, I look forward to reading your story and thanks for sharing good news with us.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Sebby (Admin) Mon Jun 13, 2011 9:11 pm


Welcome to the forum and thanks for giving us hope Smile I to am doing biofeedback and yes it helps x
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Aussie Tue Jun 14, 2011 6:43 am

Hi Ozgirl.

Where abouts in Aus are you? did you see Marek for this? I have had improvment, especially after intesive treatment, sex is much better. I just get burning afterwards now not much during at all.

Daily pain still remains though. Any tips?

Thanks,

Claire

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Melanie Fri Jul 22, 2011 9:58 am

Ozgirl wrote:Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Just wondering what your story was with having children? Did you give birth naturally or Cesarian section? I am terrified of both options.

Melanie

Posts : 11
Join date : 2011-07-21

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Post  Aussie Mon Aug 01, 2011 6:19 am

I have spoken with Ozgirl, it was natural births.

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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