Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Cushion question EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Cushion question EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Cushion question EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Cushion question EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Cushion question EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Cushion question EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Cushion question EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Cushion question EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Cushion question EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Cushion question

+4
JemimaSurrender
key_lime_teddy
Aussie
Joolibee
8 posters

Go down

Cushion question Empty Cushion question

Post  Joolibee Thu Jun 30, 2011 9:49 pm

Hello everyone, I've seen a cushion on Amazon.com, designed especially for people with vulval type pain. It seems to be sold via the IC network. Instead of having a hole in the middle, it has a kind of trough down the centre. I thought I would order one, as the normal doughnut cushions put too much pressure on the backs of my thighs, thus causing more pain. Unfortunately, when I tried to order it, I received a message saying the item could not be delivered to my address. I am currently in France, but I assume it could not be delivered to my UK address either. I am wondering whether anyone else in UK / Europe has come across this type of cushion and if so, where did you get it from? And did it help? Question

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

Back to top Go down

Cushion question Empty Re: Cushion question

Post  Aussie Fri Jul 01, 2011 3:05 am

I got one from the IC Network but the gap between where your legs go and the gap for the vulva was too small, it still touched and hurt. I can't stand any pressure at all.

I made my own:

I got one of those cushions that go on outdoor chairs and I took out the stuffing in the middle bit so there is a huge gap between where my bottom/legs are and where my vulva goes. There is still slight pressure but it is better than nothing, and way cheeper too! Smile

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

Back to top Go down

Cushion question Empty Re: Cushion question

Post  Joolibee Fri Jul 01, 2011 11:53 am

Hi Aussie,thanks for the advice. There's loads of outdoor cushions in the local supermarket at the moment, (it being early summer here). I'll give that a try. Like you say, it will be much less expensive as well. Thanks again. J cheers

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

Back to top Go down

Cushion question Empty Re: Cushion question

Post  key_lime_teddy Tue Jul 05, 2011 12:28 am

I use a boppy as a cushion to set on... I just sewed up the two parts that is not joined and just set on it.. It's works as good as any other cushion out there. I like it cause I can take off the cover and wash it any time..
key_lime_teddy
key_lime_teddy

Posts : 7
Join date : 2010-10-07
Age : 50

Back to top Go down

Cushion question Empty Re: Cushion question

Post  Joolibee Tue Jul 05, 2011 8:52 am

Thanks for that. I had never heard of boppy cushions before, but just googled it. Are they softer than donut cushions? I think it's the memory foam in donut cushions that I have a problem with - it creates too much pressure on the back of my thighs and creates a type of sciatica. I'm busy experimenting at the moment with some cheapo cushions I bought at the supermarket. Not quite got it right yet, but it's bringing out a new creativity in me Smile

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

Back to top Go down

Cushion question Empty Re: Cushion question

Post  JemimaSurrender Wed Dec 28, 2011 1:10 pm

I've just bought one of these...

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5209585479785673753

I actually don't tend to sit up straight generally, as I don't have to sit for my job, and when I'm at home I tend to sit further back, almost on the bottom of my spine so the whole vulva/bottom area is off the seat.

However, I eat at my boyfriends house the majority of the week and there I sit on a settee and eat our food off a coffee table which means I have to sit right forward and my, oh my! I'd never noticed that sitting in a certain position hurt before, but lately it's been very awkward and painful, so I'm soooooo excited to get this cushion!

I had been fashioning my own seating device, by putting a cushion under each cheek, thus creating a canal in the middle. Not comfortable whilst you're eating your tea, but it seemed to do the job.

I'd looked at similar cushions before and found them to be quite expensive, and I wasn't keen on a memory foam one either, so I was delighted when I found this as it's a bit cheaper than the others, and it looks very cute and comes in different colours!

Plus, as it doesn't look so clinical I thought it might be a bit more subtle and people wouldn't ask too many questions. As it goes... Whilst searching eBay for one, I found the same as the above, but also a square version, and you can get Hello Kitty, and a Nightmare Before Xmas one.

I'll look forward to my delivery!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

Back to top Go down

Cushion question Empty Re: Cushion question

Post  ButterflyLiz Wed Dec 28, 2011 5:33 pm

Hiya! Getting a special cushion is definitely a great idea, I bought one for my chair at work when it was getting to the point where I really couldn’t sit on a normal chair all day and it’s made SUCH a difference. I’ve got one for my car now, too. I know what you mean about the slouchy type of sitting too, I catch myself doing it all the time and I’m sure I’m just making problems for myself in the future. Must try not to do that but it seems to just happen!

I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

Can get a few funny looks when I carry them around but I just tell them it’s for back problems, unless I feel like getting into the whole sorry saga!!

Liz x
ButterflyLiz
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK

Back to top Go down

Cushion question Empty donut cushion

Post  sadone Wed Dec 28, 2011 8:15 pm

The worst pain for me is when I am driving because I can't adjust my sitting position. I'd end up with burning discomfort any time I drove anywhere. Then, I bought a donut cushion, and the pain just disappeared. Thank goodness. Now I can drive on long trips with no pain.

The cushion definitely made a difference in my life. I thought I wouldn't be able to drive again without pain.

If the donut cushion doesn't work for you, I'm sure the other kind mentioned will make a HUGE difference.

It changed my life!

Good luck and let us know how it works for u! Smile

sadone

Posts : 53
Join date : 2011-12-12

Back to top Go down

Cushion question Empty Re: Cushion question

Post  Chinchilla Tue Jan 03, 2012 9:28 pm

Ugh, I know what you mean about sitting on your tailbone! I slouch like that, too, to avoid sitting on my vulva, and unfortunately I have to go to the chiropractor somewhat regularly to get my pelvic/hip joint put back in.

And then there's going to people's houses...one of the first things I notice when I go somewhere for a meal is "oh goody, look at their nice set of wooden chairs". And then after the meal they want to continue sitting there chatting - hello, in agony here!

At home we have wooden chairs too, but I've put cushions on them. My husband has gotten to liking the cushions, too, haha! My computer chair I've put a neck pillow on - you know, the kind people have on airplanes? It's kinda gotten squashed flat though, and so I might look into some of the ideas and links people have posted here.
Chinchilla
Chinchilla

Posts : 24
Join date : 2010-03-16

Back to top Go down

Cushion question Empty Re: Cushion question

Post  JemimaSurrender Sat Jan 07, 2012 3:29 pm

So... I received my cushion on Thursday, which already had me impressed as it had come from Japan in around about a week, wow!

So far I've got to say... I absolutely love it!! It's fantastic. Soooo comfy, stops almost all the pain when I'm sitting eating my tea, and is just the right size to get in the perfect position. Infact, it's so good my boyfriend even had a nap on it yesterday.

I'm so happy I bought it, I really recommend it to anyone. Here's the link again if anyone's interested:

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5443813816860167611

Please, go buy now! It will save your life. Ha ha!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

Back to top Go down

Cushion question Empty Re: Cushion question

Post  Loveactually Mon Mar 23, 2015 4:45 pm

ButterflyLiz wrote:
I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion


Completely agree with you Liz, this cushion is fab! Glad you agree!

Loveactually

Posts : 3
Join date : 2015-03-13

Back to top Go down

Cushion question Empty Re: Cushion question

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum