Vulvodynia Support
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» Hope to all my suffering ladies
Tired of being tired. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Tired of being tired. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Tired of being tired. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Tired of being tired. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Tired of being tired. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Tired of being tired. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Tired of being tired. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Tired of being tired. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tired of being tired. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Tired of being tired.

5 posters

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Tired of being tired. Empty Tired of being tired.

Post  noni Tue Jul 05, 2011 10:11 pm

There. I said it. My brain is in a mush of tangled emotions...stress, trying to stay positive. I feel burnt out.

noni
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Post  Sarah001 Wed Jul 06, 2011 10:41 am

Me too!
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Post  noni Wed Jul 06, 2011 11:39 am

I hope theres a light at the end of this tunnel.
noni
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Post  Sarah001 Wed Jul 06, 2011 7:10 pm

It's truly exhausting trying to remain positive isn't it? I'm in the middle of a flare up right now because I've done some decorating and it was too much for my wobbly pelvis so my pelvic floor has just clamped right up again. I was doing a bit better before that and hoped I was on the right path. Even my mind numbing medications aren't doing anything in any respect at the moment, except make me fat of course. Rolling Eyes
Sarah001
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Post  noni Thu Jul 07, 2011 12:39 am

Hey Sarah

Yeah flare ups defintely are a downer, big time.

I hope you are doing better and can continue with decorating. Thats one of my favourite things to do.

Take care Smile
noni
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Post  Sarah001 Sat Jul 09, 2011 8:22 pm

Oh my god, I hate decorating!! I've finished the thankless task now, I'm actually sprucing up my house to sell it so I'm not even going to get to enjoy my efforts! It looks brilliant though and is making me even more sad to have to sell. Sad
Sarah001
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Post  Sebby (Admin) Sun Jul 10, 2011 8:41 am


@ Noni I can so relate. Work is so stressful right now and Im having a flare up and family issues blah blah blah feel like I can just about cope. My anxiety is so high!

@ Sarah, have you found somewhere else to live yet? I do wish you peace soon with that situation.

To both, a song I love to listen too is 'This Too Shall Pass' by India Arie (she is singing about love being crap lol but the sentiment that all bad things pass helps me to know I'll get through these times)

Sebby (Admin)
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Post  Sarah001 Sun Jul 10, 2011 12:08 pm

Well Sebby, I've spent the last few months refusing to get the house valued until it's in the best shape it can be as it was my Mum's house I will not let it sell for peanuts but he hasn't helped me at all and swans off with his new girlfriend and leaves me to it. As I have joint problems I've continuously set off my pelvic joints (not to mention my shoulders too) which in turn has set off my V so I'm having flare ups on a weekly basis which is very hard work. I borrowed money from my brother to get the roof repaired as my ex with his big salary wouldn't contribute and as of the start of August he'll be moving out permanently with his new partner and taking all the kitchen appliances with him and leaving me to struggle to run a 4 bedroomed house on benefits which is a huge worry right now as it can't be done. The house I was thinking would be perfect for me and my boy that had been on the renting market for months has just gone so I've no idea where we'll end up now. It's all a massive stress that's just gone on and on and the new woman is being a total bitch about everything because she's jealous of me for some unknown reason so she's making sure she constantly makes life more difficult for me wherever possible. I don't mind admitting this year has so far been the worst of my life so far and I can't wait to be in a position where neither of them can have an impact on me anymore. The stress levels are just ridiculous. Sad
Sarah001
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Post  naomi Sun Jul 10, 2011 9:56 pm

When i need to recharge my batteries and im cried out and exhausted i listen to my fav chill out cd....hang on i'll find it online...

http://www.amazon.co.uk/Chilled-Euphoria-Various-Artists/dp/B00004TQO1/ref=sr_1_2?s=music&ie=UTF8&qid=1310334973&sr=1-2

works wonders xxxxxxxxxxxxx
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Post  Zazu Mon Jul 11, 2011 1:45 pm

Sometimes I catch myself wishing that I could disappear all the rest of my life so that I could have time to work exclusively on dealing with v. and then I think "oh my god, I'm so far gone down this rabbit hole". It's like have two full time jobs, or caring for two people - my normal life and my vulvodynia Razz
But thinking like that just gives you total burn out, eh?
Definitely exhausting ...

Zazu

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Post  Sebby (Admin) Tue Jul 12, 2011 6:24 am


@Sarah

Seriously your ex needs such a good damn kicking!! In the balls!!

I so hope and pray you soon find a lovely home and that you can get a decent sum of money from the sale of the house. I can't believe he is being such a barstad when he has basically pissed off with another women! She needs a good kicking aswell (in the vulvar!) sorry I'm having a hissy fit. I do wonder how some people go to sleep at night with the way they treat others Question

Deff try and chill out as much as possible. I know it isnt easy but this crappy time for you will end. Look to an independant future without that dumb ass.

Sending you prayers xx I love you
Sebby (Admin)
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Post  Sarah001 Wed Jul 13, 2011 10:32 am

I agree, about the kicks!! Laughing Thanks for your prayers, gratefully received and I'm counting down the days until he goes even though I'll struggle badly to keep the house even close to afloat. He's been vile to live with all year and has made my life hell, he shouts and swears and throws my things around until they break. I've moved some bits I had left from my Mum to my brother's house because I know they'd have got broken here to upset me. I even thought about getting an injunction on him after he threatened to push me through a window but just keep thinking he'll be gone soon. I can't believe what he's turned into, I don't even recognise him and thanks to all my medication I've actually been far too reasonable about the whole situation but the Ami in particular has taken any fight out of me! I can't wait for him to leave, roll on calm quiet days.
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