Vulvodynia Support
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» Hope to all my suffering ladies
Started a new relationship EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Started a new relationship EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Started a new relationship EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Started a new relationship EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Started a new relationship EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Started a new relationship EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Started a new relationship EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Started a new relationship EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Started a new relationship EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Started a new relationship

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Sebby (Admin)
Sarah001
ria
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Started a new relationship Empty Started a new relationship

Post  noni Wed Jul 13, 2011 1:29 pm

Hey girls,

Im wondering if you girls can help me out. I have started a new relationship with a man who for the longest time was a best friend for me...and still is. He's a kind and caring man. Nevertheless, I still haven't gotten around to telling him about my condition. I'm scared and I dont know... I feel terrible for not telling him sooner and when I do tell him I'm worried he might go the other way.

Honesty is a big part in any relationship...and I have a track record of being in horrible relationships, so I dont really know the first thing about having a healthy relationship with a man. And vulvodynia just makes things more difficult for me.

Sorry i'm rambling and i'm scrambling my brain wondering how I can break this ''news'' to him.

Thanks for reading

Noni
noni
noni

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Post  ria Wed Jul 13, 2011 6:24 pm

Hi Noni,

I am so pleased for you. You got me thinking about when I first met my Husband, you know all loved up couldnt wait to see each other, and I wondered what I would do in your situation. I am looking on the positive side, what if your love hormones stop the pain or discomfort and you are ok with him? Why not wait and see how things go. You never know until you try,when your love juices ooz you never know, it may be the best cure so far. Laughing Laughing Laughing Let all your new feelings come to the surface and see what happens.


So thrilled for you Noni, you go girl Smile Smile Smile Smile Smile Smile Smile Smile


Ria

ria

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Post  Sarah001 Wed Jul 13, 2011 6:48 pm

I totally understand your fear about this, since becoming single I've been thinking I probably should consign myself to being on my own forever now even though I'm only 38 and have wondered if I met someone I really liked how would I tell them. I don't really know the answer but if this guy was and is your best friend then it should be ok to be honest, I don't think all men would do a runner if they knew so I say be honest. It's going to come out at some point when you're getting ready to be intimate so just explain it as best you can. Good luck and I do hope he turns out to be a keeper.
Sarah001
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Post  Sebby (Admin) Sun Jul 17, 2011 10:03 pm


Hi Noni

Im in a new relationship and took advice from a couple of the girls on here that I had a meet up with.

I first said that I had a Pelvic Pain condition and that ment that sometimes I couldnt have sex or 'go all the way'. He was ok with this and then I just started telling him more and more. About the forum, the biofeedback, the name of the condition etc. I had to tell him to be gentle with me in all aspects of anything sexual etc as sometimes even touching would be painful. Once I got the initial 'I get pain and cant always have sex' thing out the way then the rest just followed for me.

He has been great and very supportive and I do hope your boyfriend is the same. It is such a difficult thing to say but once you get the first sentence out the way and see his reaction (hopefully ok!) then you will feel that the rest will follow

I know its scary but take a risk and if he legs it then he wasnt the one for you hun.

Good Luck
Sebby (Admin)
Sebby (Admin)
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Post  noni Mon Jul 18, 2011 3:12 am

Thank u girls for you support and advice.

Sebby-- i think ur right...i should just initially say i have pelvic pain and go from there...

Wish me luck!

This whole V situation has made my life for the past 9 months a living hell and I really would love to focus my energy on other things in life and maybe find a partner who could support me through this ordeal.

Girls we deserve to be happy.

xo -- noni
noni
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Post  Sebby (Admin) Mon Jul 18, 2011 7:28 am


Good luck hun,

We do deserve happiness and partners who support us and we can find them Very Happy

Wishing you blessings xx
Sebby (Admin)
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Post  Melanie Fri Jul 22, 2011 10:37 am

Hi Noni.
That other lady may have been right with the love juices, ha ha. My partner I was with about 10 years ago I could not have sex with once ( we were together 4 years) when we broke up it wasn't long before I was meeting other guys. I told them as soon as I met them on the night or whatever. Then the first guy after the long term one was reasonibly ok, he actually said ot wasn't as bad as he had thought it would be. Then my next partner who I have been with for 8 years slowly got better. at first no sex, then slowly we got to know each other better and things slowly happened. I have to still to this day use Xylocaine cream before sex as it hurts on the outside. We will just cuddle naked as we call it. Then rest there for a while whilst i take deep breaths and relax my muscles which automatically go into spasm. However still try to keep him interested in the mean time or things will go down pretty quickly. Hopefully things will start to happen for you.
Melanie

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Post  Melanie Fri Jul 22, 2011 10:38 am

Melanie wrote:Hi Noni.
That other lady may have been right with the love juices, ha ha. My partner I was with about 10 years ago I could not have sex with once ( we were together 4 years) when we broke up it wasn't long before I was meeting other guys. I told them as soon as I met them on the night or whatever. Then the first guy after the long term one was reasonibly ok, he actually said ot wasn't as bad as he had thought it would be. Then my next partner who I have been with for 8 years slowly got better. at first no sex, then slowly we got to know each other better and things slowly happened. I have to still to this day use Xylocaine cream before sex as it hurts on the outside. We will just cuddle naked as we call it. Then rest there for a while whilst i take deep breaths and relax my muscles which automatically go into spasm. However still try to keep him interested in the mean time or things will go down pretty quickly. Hopefully things will start to happen for you.
Melanie

PS: Men really care less than you think as long as they're getting a load off if you know what I mean.

Melanie

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Post  Sebby (Admin) Sun Jul 24, 2011 6:29 pm


Lol Melainie that is very true

I wanted to ask about the anesthetic creams. I have a tube for practise lol I have only tried it once (on my own) and found it does sting at first, although the dr did say that will wear off. I didnt find it numbed me (I was having a flare up) but I dont think I put much on.

I was wondering if it would numb the man also! (would be a very long night if it did lol)

Also how would you apply it before sex? and how long does it take to work?

Thanks
Sebby (Admin)
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Post  noni Mon Jul 25, 2011 3:03 pm

Hey Girls!

I appreciate your advice and feedback. The man i'm seeing doesnt put any pressure on me to put out, so to speak. He is in no rush and he's very gentle. I hope this lasts.

I told him not too long ago that I have ''pelvic pain'' ...he then asked if its short term or chronic...and he wanted to know the name of the condition. I said I would explain at a later time as i'm not very comfortable talking about my condition. I only said that i'm on medication for it for an undetermined period of time.

Anyways... maybe not all men are dogs. Intimacy is ofcourse an important part of a relationship, but there are so many other ways to express that.

@Sebby and Melanie: What am I to do with the Xylocaine/Lidocaine my doctor prescribed me? Is it just for flare-ups or is it to be applied before sex? I'm so confused... does sex cause you ladies pain on the outside or inside...or both???

Grrr.... i'm so confused...

Anyways..take care girls

Luv, noni
noni
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Post  Sarah001 Mon Jul 25, 2011 7:10 pm

When I was given lidocaine (I couldn't get on with it) I was told to apply it to the vestibule 10 minutes before sex. You can also apply some during the day or overnight if you get on with it.
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Post  Yangle Tue Jul 26, 2011 12:55 pm

I was actually surprised by how good some men are. The media often stereotypes them into being sex-mad penis driven creatures.

When I told my partner about it I was just bluntly honest. I said I had a chronic pain disorder there and that sometimes I wouldn't be able to have intercourse - although that 'sometimes' is actually 'most times' so I suppose I wasn't too honest! But we find it fine, intercourse isn't the only intimate thing you can do. In fact he's often said sometimes he prefers just hugging than doing anything.

Plus, to be honest, if they do react badly to it then they probably aren't the relationship type character that you want around.

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Post  lolainslacks Tue Jul 26, 2011 1:02 pm

Sebby (Admin) wrote:
Lol Melainie that is very true

I wanted to ask about the anesthetic creams. I have a tube for practise lol I have only tried it once (on my own) and found it does sting at first, although the dr did say that will wear off. I didnt find it numbed me (I was having a flare up) but I dont think I put much on.

I was wondering if it would numb the man also! (would be a very long night if it did lol)

Also how would you apply it before sex? and how long does it take to work?

Thanks

What I have found is that you have to be prepared to hurt yourself a little whilst applying it. The first time I used it, I just squeezed it in there and though that would be enough, but that's not the case. You have to use your fingers to really push it around and make sure it's covering all of the places that hurt you. My pain is right at the entrace, all around there, so I have to insert my fingers and really rub these places. It's painful, but not unbearable. After about five minutes you should be numbed. If you've never used it before, or if it's been a while, it will burn you a little before it numbs you, but that's nomal and it will fade. Also, you do have to use quite a lot of the stuff.

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Post  Sebby (Admin) Sat Jul 30, 2011 7:47 pm


I've only used lidocaine once to try (not before sex) it stings at first and I didnt like that but I am told the stinging gets better the more you use it

I have pain on the outside and inside during sex (mainly just within the entrance). But once I relax and am not so tight intercourse starts to feel much better. I cant always go 'all the way' so often do 'outercourse' as its called. I find that if you start out on top then you can control how fast or slow and by how much he enters you until you relax.

It also helps to be really really turned on like crazy before trying intercourse lol
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Post  Aussie Mon Aug 01, 2011 6:04 am

Penetration from behind also helps me, it seems to avoid him bumping on the most sore bits (around my ureathra and clitoris) and as Sebby said turned on like crazy helps so much. I'd give 40 mins of forplay prior to trying sex.

Aussie

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Post  Aussie Mon Aug 01, 2011 6:11 am

Also yes lidocane can numb your partner, we have tried. Use condoms. Smile

Lidocane did not work for me at all, but numbed him!

Aussie

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