Vulvodynia Support
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» Hope to all my suffering ladies
Diet... what are the triggers??? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Diet... what are the triggers??? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Diet... what are the triggers??? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Diet... what are the triggers??? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Diet... what are the triggers??? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Diet... what are the triggers??? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Diet... what are the triggers??? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Diet... what are the triggers??? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Diet... what are the triggers??? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Diet... what are the triggers???

+4
Melissa777
Chinchilla
Sarah001
Remi88
8 posters

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Diet... what are the triggers??? Empty Diet... what are the triggers???

Post  Remi88 Sat Aug 06, 2011 10:10 am

I was doing very well on amitriptyline, until i had my period 2 weeks ago. The pain had returned, I thought it may have just been irritation from using pads.. but a week after I'm still in pain. I am thinking it could possibly be something in my diet. I eat quite a healthy moderate diet, no refined sugar and no yeast, lots of protein (chicken, fish), fresh veggies and veggie juice, rice, but I do also have coffee and I have had a fair bit of salt in my diet for the last few weeks. Does anyone else find that salt, coffee, or any other foods could possibly cause flare-ups???

Remi88

Posts : 6
Join date : 2011-03-22
Age : 36
Location : melbourne

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Diet... what are the triggers??? Empty Re: Diet... what are the triggers???

Post  Sarah001 Sat Aug 06, 2011 4:42 pm

Depends on the individual, some things are triggers for some women and not for others. I tried cutting out coffee for a couple of months and it didn't make any difference so I went back on my 2 cups a day and again no increase in symptoms when I reintroduced it. You could try the low oxalate diet if you think that might help (again tried it and not a help for me but some women swear by it) or you could cut out a single item for a while and see how you get on.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Diet... what are the triggers??? Empty Re: Diet... what are the triggers???

Post  Chinchilla Fri Aug 19, 2011 9:21 pm

Diet plays a very major part for me in my pain management!

I avoid the following things like the plague:
-orange juice, cranberrry juice, most fruit juices
-pop/carbonated drinks

I am very careful with the fruits I eat. Almost all are too acidic. The worst are:
-citric fruits (oranges, lemons, limes, grapefruit)
-pineapple
-strawberries
The riper they are the less acidic they are. I eat bananas, pears, blueberries, watermelon. Apples depends on the kind. McIntosh are worse, Golden Delicious are better.

Be careful of anything tomato-based:
-soups
-ketchup
-sauces
-salsa

And avoid spicy food! Or with vinegar. If you end up eating any of the above (sometimes I just can't resist a little) drink LOTS and LOTS of WATER with it!!

Apparently caffeine is also bad but I am not a coffee drinker so I can't tell you on that one.
Chinchilla
Chinchilla

Posts : 24
Join date : 2010-03-16

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Diet... what are the triggers??? Empty menses

Post  Melissa777 Fri Aug 19, 2011 11:49 pm

I find when my menstrual cycle starts- i tend to have vestibule flare ups

its so annoying
and this month it seems worse
mainly on one side
left

my right side this far seems okay

well- took some Excedrin and my herbal from my acupuncture
and praying it kicks in
i cant really use my estro cream while on my period..

ahh i wish us women didnt have to deal with this

Melissa777

Posts : 55
Join date : 2011-07-10

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Diet... what are the triggers??? Empty Re: Diet... what are the triggers???

Post  Remi88 Sat Aug 20, 2011 3:33 am

well maybe thats it Melissa, I was convinced it was something i was doing that stopped my meds from working, but it could very well be to do with my menstrual cycle, that is the time when i noticed my pain returning.

Remi88

Posts : 6
Join date : 2011-03-22
Age : 36
Location : melbourne

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Diet... what are the triggers??? Empty Re: Diet... what are the triggers???

Post  julesywoolsy Wed Aug 24, 2011 10:04 am

My pain seems to be worse in the week leading up to my period. As for diet, the only thing that I have managed to identify as a trigger so far is Orange Juice!


julesywoolsy

Posts : 3
Join date : 2011-08-16

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Post  Heidi Wed Aug 24, 2011 7:06 pm

When I was really raw and in bad shape my triggers were:

All High Oxalate Foods (especially chocolate, spinach, nuts and rhubarb, but also whole wheat, potatoes, carrots, etc.)
Eating too many "medium" oxalate foods in one day
All high acid foods, but especially tomatoes and tomato products, vinegar and orange juice

I usually had a bad flare-up 6-24 hours after high acid foods and 24-48 hours after high oxalate foods. I found this out by keeping a food journal and starting to see patterns over the years. When I cheated on the low oxalate diet I would also have flare-ups which allowed me to see how oxalates also triggered my pain (and especially burning sensations).

After following a low oxalate diet for a number of years, my pain levels improved by about 80% and I no longer had the raw/burning feeling and severe pain. I also no longer am sensitive to high acid foods. I now eat tomatoes and vinegar A LOT in the summer with very little problem. I also can tolerate most medium oxalate foods if I don't go crazy and eat too many in one day. My thinking is that the high acid foods were triggers because they made my raw, painful tissues hurt even more (they make a bad situation worse), but that high acid foods and drinks are not the reason I had vulvar pain in the first place (for me, this was an oxalate metabolism issue).

Hope this helps.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

Posts : 28
Join date : 2011-07-17
Age : 55
Location : Missouri, USA

http://lowoxalatefamily.wordpress.com

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Diet... what are the triggers??? Empty diets

Post  Tamara Tue Oct 18, 2011 11:59 am

Hello to all! Well i agree with chinchilla! You can try to avoid juices, instead drink a lot of water this is really helpful for me! Smile

Tamara

Posts : 1
Join date : 2011-10-18
Age : 43

http://www.dr-dukan-diet.com/

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Post  naomi Wed Oct 19, 2011 2:59 am

im not sure on allergies or triggers but i just forked out 200quid on IGG testing (delayed reactions to foods) to see if that shows up anything. 113 foods which are common in todays diet.

will let u know if that helps.

i think it was from York Testing, in the uk

xxxx
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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