Vulvodynia Support
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» Hope to all my suffering ladies
Is There A Natural Cure For Volvodynia EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Is There A Natural Cure For Volvodynia EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Is There A Natural Cure For Volvodynia EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Is There A Natural Cure For Volvodynia EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Is There A Natural Cure For Volvodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Is There A Natural Cure For Volvodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Is There A Natural Cure For Volvodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Is There A Natural Cure For Volvodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Is There A Natural Cure For Volvodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Is There A Natural Cure For Volvodynia

+3
Heidi
Melissa777
viollette
7 posters

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Is There A Natural Cure For Volvodynia Empty Is There A Natural Cure For Volvodynia

Post  viollette Sun Aug 21, 2011 6:20 pm

Hi, just joined this forum today I was just wondering if there are more natural cures for volvodynia? I have tried taking St. John's Wort but it made my problem ''flare up '' even more.I just don't know how good it would be to keep taking antidepressants for the rest of my life science i don't see my problem going away any time soon.The Dr. that i see for this has never talk about alternatives to drugs? Has anyone had any luck with something other than drugs.Maybe vitamins or accupunture if so please give some suggestions.

viollette

Posts : 11
Join date : 2011-08-21
Age : 46
Location : Saginaw Mi.

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Is There A Natural Cure For Volvodynia Empty would suggest

Post  Melissa777 Sun Aug 21, 2011 8:38 pm

seeing a really good acupuncturist- and many times the herbal supplements they give you do help
=)


Melissa777

Posts : 55
Join date : 2011-07-10

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Is There A Natural Cure For Volvodynia Empty try acupuncture

Post  Melissa777 Sun Aug 21, 2011 8:39 pm

find a good acupuncturist
honestly treatment depends on what caused your vv
and whats going on
a good vulvo vag specialist cant hurt either

Melissa777

Posts : 55
Join date : 2011-07-10

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Is There A Natural Cure For Volvodynia Empty Re: Is There A Natural Cure For Volvodynia

Post  Heidi Mon Aug 22, 2011 3:04 am

Bio feedback for pelvic floor dysfunction has helped a lot of women (see a physical therapist who specializes in pelvic floor dysfunction).
The low oxalate diet with calcium citrate supplementation has helped a lot of women also. It has been a huge help for me (about 80% reduction in pain with touch and almost 100% reduction in the burning/itching).
These are the most natural cures that I know of that really have helped a significant number of women through the Vulvar Pain Foundation.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

Posts : 28
Join date : 2011-07-17
Age : 55
Location : Missouri, USA

http://lowoxalatefamily.wordpress.com

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Post  BlondeLawyer Mon Aug 22, 2011 12:51 pm

I have tried biofeedback and just about everything else. I just went and saw my gynocologist.
I know for me that it is SEX that aggravates it. So Im now using estrogen cream and not having sex for a month to really rule out that it just needs some time to heal.

BlondeLawyer

Posts : 4
Join date : 2011-08-01

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Post  Heidi Mon Aug 29, 2011 7:08 pm

I forgot to add that a lot of women are helped with skin stabilization therapies that were pioneered by Dr. Solomons and the Vulvar Pain Foundation's Pain Project. NAG (N-Acetyl-Glucos-amine) and HTO (hexadecyl tetradecenoyl oxtodecanoate) are supplements that many women have found helpful. If you click on the following link you'll find a short article on effective treatments and the order/time you are encouraged to try each one before adding the next treatment (you add it to the others, you don't stop it--only ox-absorb should be discontinued in this protocol if you do not see improvement over a month.) I will also add it took almost six years for me to reach my full relief, not 1 year as Dr. Solomons suggests in this article.

http://thevpfoundation.org/effective_treatment.htm

Hope this helpls.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

Posts : 28
Join date : 2011-07-17
Age : 55
Location : Missouri, USA

http://lowoxalatefamily.wordpress.com

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Is There A Natural Cure For Volvodynia Empty acupuncture

Post  red Tue Aug 30, 2011 2:00 am

Hi there

Peope have been saying on this blog that they get acupuncture for there pain relief? i would just like to know more about what this entails

Where do they stick the needles? how do you find an acupuncturist who has heard of V?

thanks

red

Posts : 4
Join date : 2011-08-20

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Is There A Natural Cure For Volvodynia Empty Acupuncture

Post  let's kick this Wed May 18, 2016 2:59 pm

Hi Red,

The needles are not inserted in your Vjj, I thought the same thing. I did 6 sessions it did not help my V.  I have tried lots of treatments the best so far for me is the vaginal probe used with tens machine. I'm still in pain but learning to cope.

let's kick this

Posts : 29
Join date : 2016-03-29
Location : USA

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Post  Minneapolis Sat Jul 09, 2016 4:46 pm

I'm on a weekly acupuncture routine and my Pelvic Floor Dysfunction has been reduced significantly! I've only had 3 sessions but my pain went from a 6 to a 2. I can have sex for about 30 minutes now before I have to give up, whereas it used to be around 10. Granted, my most problematic pain now is my vulvodynia. I have redness that is stubborn as hell. For that, I apply coconut oil at least 3 times a day and ingest around 2 tablespoons daily. Redness has gone down slightly but not quite enough.
This week I'm adding pelvic floor exercises.
I've been dealing with this for almost 4 years and alternative methods have helped me significantly more than the estrogen cream.
Hope this helps!

Minneapolis

Posts : 2
Join date : 2016-06-15

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