Vulvodynia Support
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» Hope to all my suffering ladies
cold laser therapy seems to be working EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
cold laser therapy seems to be working EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
cold laser therapy seems to be working EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
cold laser therapy seems to be working EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
cold laser therapy seems to be working EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
cold laser therapy seems to be working EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
cold laser therapy seems to be working EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
cold laser therapy seems to be working EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
cold laser therapy seems to be working EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


cold laser therapy seems to be working

2 posters

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cold laser therapy seems to be working Empty cold laser therapy seems to be working

Post  Melissa777 Tue Aug 23, 2011 8:46 pm

so some exciting news (except i had a slight flare up on L side that lasted a few days)
the cold laser therapy seems to be working.. Ive only had 3 so far
but almost all the RED areas are gone
and my right side is starting to feel NORMAL.

I am not sure if this therapy is avail where you live, but I know they make the laser my Chiropractor uses in Sweden. I live in USA

basically how the treatment works
doc sets up laser for me and leaves room
I undress waist down, lay on the table, and use a pillow under my hips
let the laser beams directly hit my areas that need to be improved on
and whalaaaa its working

at the same time i do acupuncture
take phellostatin and si miao wan

But dont take those supplements unless your diagnosed with damp heat in lower area

I also am doing candida diet
agrisept
coconut oil
mineral supplement
vit d-3
fem dophilus
and probiotic for vaginal support with no FOS from renew life

finally noticing improvement... thank you jesus

of course- and prayer and healing through prayer
so stay positive

Im not really using anything topical
i find most dont work
except maybe my estroil topical compunded cream.... but thats really just to thicken skin


Melissa777

Posts : 55
Join date : 2011-07-10

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Post  Sarah001 Thu Aug 25, 2011 12:01 pm

That's great, I'm not sure if what I had done around my hips is the same thing but I used to have some for of treatment on the lumps of knotted tissue behind my hips and it was designed to break it up a bit and reduce inflammation. In my case the results were short lived but I never got rid of the perpetuating factors so it couldn't possibly last long. Good luck and keep us all posted.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Melissa777 Thu Aug 25, 2011 5:45 pm

Cold laser or Low laser therapy can work. There are many lasers out there.
It depends though on HOW deep the laser has to penetrate and how strong the laser is. There are all levels out there. My chiros laser was VERY expensive and a very strong one.
I used it in the past when I broke my toe- and it healed my broken toe in 2 weeks - normally broken toes take 6 weeks- a few months to heal.

here is the catch
if you have a lot of MUSCLE mass on the area your getting cold laser- it may not work... because the light can't penetrate through that as well.

But since its my Vulva- wow I noticed a difference in only a few short treatments. I need at least 12 treatments to see most improvement, i have had 4

I looked with my mirror- redness is almost all gone

NOW here is the thing if your VV is caused by possibly bacteria or yeast even if they can't diagnose it- this type of laser- at a strong strength will work.

Its proven to work on killing- hard to kill toe nail fungus.

and its also shown to calm down nerve endings...
so all and all its def working- but you have to do a LOT of treatments before seeing results

Melissa777

Posts : 55
Join date : 2011-07-10

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cold laser therapy seems to be working Empty 10th treatment and feel so much better

Post  Melissa777 Mon Sep 05, 2011 12:20 am

So yesterday (Sat) was my 10th cold laser treatment. Guess what I feel and look so much better. In fact, I went in for a check up with my NP and she said I am not as RED or INFLAMED as I was in July. I can actually touch my vestibule area now without it really bothering me... and able to use tampons! =)

Also acupuncture and the herbal Phellostatin is def working. Im also doing Adya Clarity for heavy metal detox =)

Ill keep you all posted- but so far so good

I also ordered my free sample of neogyn, ill give it a try to see if it helps
Im not using my estra cream as much anymore

=) yaya

Melissa777

Posts : 55
Join date : 2011-07-10

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