Vulvodynia Support
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» Hope to all my suffering ladies
Amitriptyline! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Amitriptyline! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Amitriptyline! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Amitriptyline! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Amitriptyline! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Amitriptyline! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Amitriptyline! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Amitriptyline! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Amitriptyline! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Amitriptyline!

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Post  ilovebaxter1 Tue Sep 20, 2011 12:49 am

My gyno just prescribed me Estrace cream that I have been using for 2 nights now with no burning but a little itching after I apply it. Her office called me today saying that if I did not want to wait to see a specialist (my appointment will be in december or later) and wanted to try out Amitriptyline to see if it will help me out. I have not been diagnosed with vulvodynia yet and I'm still not 100% sure if I have it. I have irritation/itching when walking at the top of my vulva and around my vagina. I also have a dull pain/ache in my vulva a few times a day for a few seconds. Other than that my vulva looks normal except after I walk it becomes a little red.

I've read good and bad feedback on this antidepressant and it seems to be hit or miss with it. Has any one used this? What were the results? Should I wait to see the specialist to see what's really going on with me? My gyno hasn't really ruled out much besides stds, bv, yeast. I've seen a derm who ruled out eczema, contact dermatitis, psoriasis. Thanks everyone! Razz

ilovebaxter1

Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston

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Post  Sarah001 Tue Sep 20, 2011 7:11 pm

I say give it a go, if you've had stds and dermatology problems ruled out Ami is the next step. I take 50 mg and it doesn't work much for me as far as V goes but it helps me sleep which was a Fibro problem I was having. 10mg is a tiny dose but it can make you feel woozy initially, the wooziness will pass over time but give it a full month before you decide if you can take it or not. It also tends to increase appetite and you may find you eat more (I'm always hungry and I used to be a light eater) so watch out for that but some women get great results with it and there's little point delaying until you see a specialist because they tend to let your usual Dr decide on dosage etc of this anyway so you've not got anything to lose by trying it now, if it doesn't suit you then the specialist can try something else so it essentially speeds up the process by getting on it now.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Mette Wed Sep 21, 2011 8:57 am

I've been on amitriptylin for 5-6 years now and it's the reason I can lead a normal life.
I only have pain when provoked, so my case might be different from yours, but I definately think you should give it a try.
It's important that you take your time with it. It took a couple of months for me to feel the difference. For me it had really heavy side effects for the first couple of days-weeks. I wasn't actually physically able to be at school for a few days, because I was so drugged up. I also had some mood swings, which is the reason why I when down from 25 to 10 mg.
It's important that you know that most of the side effects will go away after some time and that it takes more than a month to take effect in a positive way. Plan to start it at a time when it's possible for you to take some days off work if you need it and stay optimistic. It has really been a cure for me and I haven't had any side effects for years now.

I hope it works out for you!
Mette

Mette

Posts : 13
Join date : 2011-09-14

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Post  ilovebaxter1 Thu Sep 22, 2011 2:13 am

thanks girls <3 ill have to give it a shot Smile ill update on the results!

ilovebaxter1

Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston

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Amitriptyline! Empty Quick Question!

Post  ilovebaxter1 Thu Sep 22, 2011 4:34 am

I'm also wondering...Are you able to drink alcohol on ami? I've read it can just make you more tired and kick in the sedation effect more. I drink occasionally when I go out with friends so it kinda bums me out I might have to give up having a few drinks once in awhile No

ilovebaxter1

Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston

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Post  Sarah001 Thu Sep 22, 2011 10:01 am

You're not supposed to but I do and I can still drink the same amount I could before even though I'm on Ami and Pregabalin Embarassed lush!! Some people can't drink on it though and others are like me and don't get any different effects, depends on your tolerance to alcohol before the Ami I think.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Mette Thu Sep 22, 2011 10:27 am

I don't feel a difference now, but in the beginning I got drunk really really fast (one beer would do it). After a couple of months I didn't give it a thought though.
I recently discovered that I'm not able to take motion-sickness pills (Postafen). They interact with the ami and just makes me more sick.
But like Sarah001 says it probably depends on how your body reacts to the drugs.

Mette

Posts : 13
Join date : 2011-09-14

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Post  ilovebaxter1 Thu Sep 22, 2011 6:52 pm

oh good Smile phew! drunken lol I mean i'm only 19 turning 20 in a few days so i didn't want to not be able to party once in awhile haha ill keep everyone posted on my results! i'm probably going to try it in the next few weeks because I'm have to take time off from work to start it just incase the side effects are bad!

ilovebaxter1

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Age : 32
Location : Boston

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