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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Met with specialist!
3 posters
Page 1 of 1
Met with specialist!
ilovebaxter1 Mon Oct 31, 2011 11:21 pm
Hello everyone and happy Halloween ! As you might already know I have been havig vulvar irritation as pain for the past 4 months. Today I met with a wonderful specialist in dr. Elizabeth Stewart's office and things went great! I have been diagnosed with vulvitis which is a inflammation and irritatation of the vulva which can cause discomfort and pain. I was prescribed a topical cream to apply every day for a month and she said things should be looking better by then:) she said it just takes time to heal because some type of irritant caused it. I have no power right now because of a snowstorm and my drug store doesn't have power either so I can't get my prescription until they get it back but then I'll be able to tell you what I'm using! My dr. Was so helpful and showed me exactly how to apply the cream so I'll update you after ie been using it for a month. I'm happy to say someone finally knows what's wrong with me since for the past 4 months i thought I had vulvodynia. Stay strong everyone ! <3 finding the right doctor has finally given me relief so I can stop stressing about what could be wrong.
ilovebaxter1- Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston
another question?
Melissa777 Thu Nov 03, 2011 10:16 pm
what cream did she prescribe?
your so lucky to see her, i wish i could
your so lucky to see her, i wish i could
Melissa777- Posts : 55
Join date : 2011-07-10
betta val
ilovebaxter1 Sat Nov 05, 2011 12:30 am
its called betta val its a steriod cream i believe 
. i also have to use vasaline down there when i get out of the shower and do sitz baths a few times a day!
. i also have to use vasaline down there when i get out of the shower and do sitz baths a few times a day!
ilovebaxter1- Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston
Re: Met with specialist!
Melissa777 Sat Nov 05, 2011 2:50 am
I tried that before my Vulvar Vest. Dx.
It didnt work
=(
I hope it works for you
if not, go back to dr stewart
did she do a yeast culture on you?
It didnt work
=(
I hope it works for you
if not, go back to dr stewart
did she do a yeast culture on you?
Melissa777- Posts : 55
Join date : 2011-07-10
Re: Met with specialist!
ilovebaxter1 Tue Nov 08, 2011 3:56 am
Yes she tested me for yeast and also gave me yeast cultures to take home so I can do it myself ad send it in overnight so they can have a second look. She also preformed the q tip test and nothing bothered me besides the inflammation in the opening of my vagina. My next appointment is jan 4th for a follow up with my beta Val so I'll update everyone then
ilovebaxter1- Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston
Re: Met with specialist!
stephsue Thu Jan 05, 2012 6:33 am
He ilovebaxter! I also go to Dr. Stewart's clinic, but haven't gone back in a long time (other stuff going on in my life) but am planning to call to make a follow-up tomorrow. Anyway, nice to know there's someone from here around the Boston area! :-)
stephsue- Posts : 5
Join date : 2011-12-24
Location : Boston
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» Please tell me this can get better
» By no means cured, but doing much better!
» How I cured my Vulvodynia!
» 7 months since the diagnosis
» Gabapentin Gel. or other topical creams
» IMPORTANT FOR UK SUFFERERS
» Help New Diagnosis
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!