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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Hypnosis worked for me!
3 posters
Page 1 of 1
Hypnosis worked for me!
Hi, I just thought I would share my story. I have suffered from Vulvodynia for about 7 years. I only feel the pain when I have sex and I have been very lucky that my husband is extremely supportive. I went to see a psychologist/ hypo therapist to deal with sleep issues that I have had all of my life. I also explained to him about the issues I have with my vulvodynia. He cleared my insomnia and we have just dealt with my vulvodynia. I went home after the session with “home work” as he called it and for the first time in 7 years I have pain free sex with my husband. We couldn’t believe it! The fact that it was such a physical problem that I would bleed and have cuts every time we would have sex, it just amazes me that he has switched off something in my subconscious and we had normal pain free sex.
I live in Perth and the phycologist I saw has been practising hypnosis for 30 years and he is a leader in his field so I wouldn’t recommend going to just anyone to try this. Hope this helps someone like it did me.
I live in Perth and the phycologist I saw has been practising hypnosis for 30 years and he is a leader in his field so I wouldn’t recommend going to just anyone to try this. Hope this helps someone like it did me.
paula298- Posts : 3
Join date : 2011-11-27
Re: Hypnosis worked for me!
Hi Paula, that’s really interesting. Do you know what it was that he switched off / what directions he gave your subconscious? Really glad that you’re able to have pain free sex now At my last appointment my consultant mentioned something called auto-hypnosis, basically where you learn to semi-hypnotise yourself, but I got the impression that was more to do with pain management than an out and out cure.
xx
xx
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Hypnosis worked for me!
Perth Australia or Perth Scotland?
lolainslacks- Posts : 115
Join date : 2011-04-18
Re: Hypnosis worked for me!
When he put me in a trance (sounds full on but its just listening to his voice and taking deep breaths) he told me that my Vulvodynia wasn’t going to cause me pain any more. He went into more detail than that but along those lines, I think he only spent about 15min with me in a trance.
The crazy thing is, is that I was freaking out thinking it was going to hurt just before my husband and I went to try. I think I built it up in my head so much and wanted it to work, that when we were about to try my conscious mind was freaking but then when we tried there was no pain at all. We couldn’t believe it.
To be honest I don’t think self-hypnosis would have worked for me. I have tried telling positive talk and telling myself before sex that it would be an enjoyable experience making sure there is no negative talk such as saying “this will not hurt” even saying that is classified as negative because the word “hurt” and “will not” is used. This would probably work for some people but I needed more than that.
I only had the hypnosis last week and we have only tested it out once but I am hoping that this is the end of my 7 year stint with Vulvodynia. I live in Perth, Australia so if either of you live here let me know and I’m happy to pass on the details of the guy I went to see.
The crazy thing is, is that I was freaking out thinking it was going to hurt just before my husband and I went to try. I think I built it up in my head so much and wanted it to work, that when we were about to try my conscious mind was freaking but then when we tried there was no pain at all. We couldn’t believe it.
To be honest I don’t think self-hypnosis would have worked for me. I have tried telling positive talk and telling myself before sex that it would be an enjoyable experience making sure there is no negative talk such as saying “this will not hurt” even saying that is classified as negative because the word “hurt” and “will not” is used. This would probably work for some people but I needed more than that.
I only had the hypnosis last week and we have only tested it out once but I am hoping that this is the end of my 7 year stint with Vulvodynia. I live in Perth, Australia so if either of you live here let me know and I’m happy to pass on the details of the guy I went to see.
paula298- Posts : 3
Join date : 2011-11-27
Re: Hypnosis worked for me!
Hey Paula thanks for the extra info. I do hope that's the end of your vulvodynia story. Thanks but I'm in the UK. It is definitely something to bear in mind though, I will do some digging and see if there is anyone reputable over here. I seem to be quite susceptible to hypnosis, I have a couple of tracks that I listen to, to help me sleep etc (I know the v's bit different though!). Anyway best wishes.
xx
xx
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer