Vulvodynia Support
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    » Hope to all my suffering ladies
    Me ranting. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    Me ranting. EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    Me ranting. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    Me ranting. EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    Me ranting. EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Me ranting. EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Me ranting. EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Me ranting. EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Me ranting. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Me ranting.

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    Me ranting. Empty Me ranting.

    Post  karris87 Tue Jan 17, 2012 9:53 am

    I really need to blow off some steam about this.
    So, I haven't had sex in more than a year because it's so unpleasant, and I wasn't seeing anyone. I had only had sex with my long term boyfriend (now ex), and he was very patient with me, and I could like it a little bit, but, you know. Pain. (Actually I got all my unprovoked vulvodynia from losing my virginity to him at age 22, 4 years ago.)
    Anyway, so my friends seem to like sex, and this always makes me jealous. So I started going on a few dates with this guy who is very attractive. And usually attractive guys just aren't into me, so I was very excited. Anyway, so me and this new guy (i'll call him Michael) were making out at his apartment, and Michael was insisting, as he'd done other times we'd made out, that we have sex. So finally, after a lot of me saying that I was afraid of STDs, I let him put his condomed penis in. It didn't feel sexual to me at all. It just felt like me trying to put in my vaginal dilators. Anyway, it was not a good idea to have sex with Michael, because he wasn't sensitive, like at all. Like I told him to stop moving because it hurt, and he still would a bit, which hurt a ton. What a jerk!!!!! So mad. and later, when he was thrusting more, he did not ask how i felt.
    and THEN, with me so distracted by the pain, and thinking about how I'll never be able to have normal sex with anyone, he put in his UNCONDOMED penis in. This guy has slept with other girls, including while not wearing condoms, and now I'm afraid I'll have gotten STDs from him, such as HPV. I'm not going to hang out with him again. I texted him afterwards saying, why did you do that without a condom? and he of course never replied.

    I think it was a combination of my wanting an attractive guy to like me, of my wanting to be a sexual person, of my wanting to please other people, etc. I feel taken advantage of. And afraid of HPV, and herpes too. and I'm afraid that I'll never be able to fulfill my husband sexually. My gyno said something like, if you can't have a healthy sex life with your partner, then that's very bad for the relationship, or something. Great. ugh!!! Any advice/words of comfort? I am feeling so crummy.

    karris87

    Posts : 9
    Join date : 2012-01-17

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    Post  lolainslacks Tue Jan 17, 2012 3:59 pm

    I am in the same position as you, so I don't really have any helpful advice, but I just wanted to let you know that your gyn is full of shit. That is a horrible thing to say to someone, especially when you are in a position of authority and people look to you for help.

    I have had horrible medical professionals say things like that to me too, and it is simply nonsense. Men are not all sex maniacs. We paint this picture of them as emotionless sex fiends, which is unfair and untrue. There are plenty of men out there who will grow to love you for who you are, and to whom sex is not a vital part of the relationship. Rather, it is something you can share together when you feel you are ready. He will be patient with you and will not pressure you. This is not idealistic, it is fact. There are numerous women who have vulvodynia and for whom sex is difficult and rarely possible, yet they are able to sustain relationships.

    I feel like a hypocrite writing that, because I admit that I worry about this constantly too. But I think it's just one of those things that is such a sensitive, emotional subject, that sometimes thinking about it rationally doesn't help, you still feel hopeless.

    Seriously though, this one guy is a total assface. I know that it can be frustrating feeling like you're never going to be able to be sexual, and it can escalate to the point of you feeling like you'll just go out and sleep with anyone, but if you don't give yourself time in a relationship and you just force yourself to do it with smoeone who is insensitive and pressures you, you will lose faith in humanity. There are a huge amount of totally unbelieveable jerks out there, but they do not represent all of mankind. Don't let this disgusting man shape your views of all men. There are genuinely nice guys out there and to them, what your vagina can and cannot do will be unimportant.

    *hugs*

    P.S. God I could rant about medical professionals all day, seriously, what the fuck is wrong with people? Why do they think it's okay to tell someone who is in an emotional place and is dealing with something difficult that they will have problems because sex is like the most important thing in the world. UGGH I hate doctors sometimes.

    lolainslacks

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    Join date : 2011-04-18

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    Me ranting. Empty Thank you

    Post  karris87 Tue Jan 17, 2012 7:51 pm

    Thank you so so much. I feel a lot better after reading that. Thank you, thank you, thank you.

    karris87

    Posts : 9
    Join date : 2012-01-17

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    Post  ButterflyLiz Tue Jan 17, 2012 8:18 pm

    I would just like to second the notion that penetration is not the be all and end all in a relationship. I’ve had v for 10 years and have been with a fab guy for the last 4, we have a strong relationship and are committed to each other despite having had penetrative sex maybe a total of 10 times, with varying degrees of success. Sexually there are plenty of other things we can do and if I’m having a horrible time with the v I don’t feel pressured for sex. A relationship is many things; love, empathy, companionship, sex is just one part and one that can be worked around with some imagination. I’m sorry about your horrible experience and hope you meet someone wonderful soon x
    ButterflyLiz
    ButterflyLiz

    Posts : 137
    Join date : 2011-11-18
    Age : 38
    Location : UK

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    Me ranting. Empty Thanks

    Post  karris87 Wed Jan 18, 2012 1:02 am

    Thank you. It's so nice to hear of an example of a healthy relationship with a guy who is sensitive about your condition. And how, for a guy, there's way more to a relationship than penetrative sex.

    karris87

    Posts : 9
    Join date : 2012-01-17

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