Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
My story, do you think it's vulvodynia? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
My story, do you think it's vulvodynia? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
My story, do you think it's vulvodynia? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
My story, do you think it's vulvodynia? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
My story, do you think it's vulvodynia? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
My story, do you think it's vulvodynia? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
My story, do you think it's vulvodynia? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
My story, do you think it's vulvodynia? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
My story, do you think it's vulvodynia? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


My story, do you think it's vulvodynia?

2 posters

Go down

My story, do you think it's vulvodynia? Empty My story, do you think it's vulvodynia?

Post  Sheilah311 Fri Jan 20, 2012 3:42 am

First of all, I'm new. Hi Smile
I'm not quite sure what is wrong with me and my first internet community posting really didn't yield many answers so I thought I'd try this forum. I feel like every one here is pretty knowledgeable and might be able to offer some good thoughts.

On December 16th I went home early from work because I had really uncomfortable vulva burning.
I'm pretty sure I kind of experienced this when I was around 15 (my memory is horrible), which is when I first found the term vulvodynia on the internet. But it happened maybe once a week, never for more than an hour and after a couple useless visits to the doctor, it kind of just went away and hasn't really affected me much in life. & the very few times it has since then, it has been the same-going away very quickly that I don't even really remember.
I do know that it was the worst it had ever been, but I expected to go home and have it go away. It never did! I have not been 100% since then.
I've been to two doctor visits. After a week of pain I went and was told that there seemed to be nothing wrong with me, but he sent out some cultures & prescribed me lotrisone. Almost three weeks later, I was back at the doctors not feeling any better. He told me there seemed to now be white blood cells/blood in the my urine, though I still physically looked fine. I left with prescriptions for Microbid (just finished last night), Phenazopyrid (though I have NO burning while urinating) and betamethasone dipropionate cream.

I'm still about the same. Besides the medicines I briefly tried a blander diet (low oxalate kind of), going without underwear at night, washing underwear in just hot water, applying vaseline...
I do have the feeling of ALWAYS having to urinate. Even after I have just went. It doesn't burn when I go, and I don't have any trouble with that. I have noticed that it hurts more after I use the bathroom, and I've realised it is somewhat because of wiping. I've started spraying myself with water and then gently patting myself dry. Which I totally don't feel clean enough after doing, but I guess it is better then badly burning.
I feel like my urethra is burny feeling, and I don't know if that is spreading to my vulva or vice versa.
Not wiping has helped the vulva burning feeling, I don't feel like crying from the pain as much but it has not completely stopped and then just feeling my urethra burning is uncomfortable.
My vagina basically feels fine, I had no problems with tampons during my period. If I press a finger on my vulva, it burns a little but it goes away quickly and really doesn't leave me in pain.
I think that is about all I have to say!

Any suggestions? I'm going to call the doctor's office tomorrow if I get the chance to check up on my urinalysis, and I have an appointment on the 6th of February where I am going to just confuse him more! I also don't have insurance so I am limited to who I can see, and I really can't afford many more visits.

Thank you for any suggestions!


Last edited by Sheilah311 on Tue Jan 24, 2012 10:33 pm; edited 1 time in total

Sheilah311

Posts : 1
Join date : 2012-01-20

Back to top Go down

My story, do you think it's vulvodynia? Empty some advice

Post  AroraNightfire Sat Jan 21, 2012 8:25 pm

Whenever I use the bathroom I fill a spray bottle with cold water and after im done peeing I pour the water over my vulvar lips and vaginal opening. I cup my left hand over it with my fingers gently touching the urethra and behind the vaginal opening. I can't stand wiping myself, I feel raw after and it wont go away and I just feel miserable. Another thing that might help is a frozen gelpack. You can buy them at a pharmacy or grocery store. You refreeze them after they defrost. I place 2 papertowels around it. I squeeze it into the shape I need it to be in and I spread my vulvar lips and press it against my urethra and v opening. I keep it there for maybe 10min and then very slowly pull it off. If you don't want to try a frozen gelpack then after the cold water rinse use a fan. Lay on your bed with a fan between your legs. I hope my advice has been helpful. These are some things I do on a daily basis for releif.
AroraNightfire
AroraNightfire

Posts : 40
Join date : 2012-01-20
Location : Cape Cod Massachusetts

Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum