Vulvodynia Support
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» Hope to all my suffering ladies
SEX!!  For the first time in 13 months! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
SEX!!  For the first time in 13 months! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
SEX!!  For the first time in 13 months! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
SEX!!  For the first time in 13 months! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
SEX!!  For the first time in 13 months! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
SEX!!  For the first time in 13 months! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
SEX!!  For the first time in 13 months! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
SEX!!  For the first time in 13 months! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
SEX!!  For the first time in 13 months! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


SEX!! For the first time in 13 months!

2 posters

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SEX!!  For the first time in 13 months! Empty SEX!! For the first time in 13 months!

Post  JemimaSurrender Mon Jan 30, 2012 11:35 am

My, oh my! After 13 months of celebacy, my boyfriend and I finally managed to have sex over the weekend!

I am SO excited!! We've always done everything else we can (in the bedroom) so have always got by, but nothing beats the real thing, does it?

I've no idea how it was possible either. Sex has been completely off limits (mostly inforced by him!) until I was better, but it just kind of happened this time round.

Usually even with oral sex it can sometimes burn a bit, but never too much, and certainly not to the point where it's unbearable, nowhere near infact, so sex was completely out of the question as it's nothing short of agony. Sometimes I'm near to tears it hurts so much and it's just not worth it.

But amazingly it just seemed to be okay, even without me using the Instillagel which I don't understand at all. I'm sure the symptoms are no better, and I've no doubt it was still hurting somewhat, but I think the adrenaline took over and I didn't feel it. It was utterly fantastic and I'm still on such a high from it!

I am sooooooo happy. I'm a bit nervous that it was just a one off, and that now the excitement of being able to do it will wear thin and that next time I'll just be thinking the whole time "Oo is it going to hurt this time" and thus it will hurt as a result of me thinking and worrying. But even if it was a one off, one in 13 months is nothing to scoff at!

Absolute elation!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  BpCookie Mon Jan 30, 2012 5:11 pm

That is wonderful news, it truly is. I know how you feel cause I was just able to have sex again also. I had this amazing high afterwards. I was so happy. It kinda happened like yours did, just out of the blue. I used a boat load of lube and I was the one in control. I figured if it started to hurt then we could stop. It did burn a little but not much and there was a very slight slicing pain but nothing major. I was brave enough to try it again this weekend and once again I was able to do it. Its like a miracle huh?

Try not to worry about it hurting the next time. You be the one in control, go slow and explain to your b/f that if it hurts then you will have to stop. You may want to get a syringe/plunger type thingy, the kind you use when your inserting YI cream and put KY in that and insert a bunch of it inside, that may help also.

Im very happy for you and I know that its a big deal. *Cookie jumps up and down, cheers, shoots off fire works*. Good luck next time. Very Happy hugs
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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Post  JemimaSurrender Tue Jan 31, 2012 1:31 am

Ahhh, it's all so exciting! Even if it's a one off (which will be annoying) I'm still so pleased to have had one shot at it. You forget how much of it you've missed!

I'll keep my fingers crossed for the both of us, and all you others who are missing it at the minute too!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  BpCookie Tue Jan 31, 2012 3:48 pm

Hey, I just noticed that your in the UK. My husband is from Coventry England, do you know it? We met on line in a chat room when he was living in England and I was living in the states.
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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Post  JemimaSurrender Tue Jan 31, 2012 4:15 pm

Yeah it's not far from me! It's about a 40 minute drive actually. Did he move over to the States for you? Fairy tale!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  BpCookie Wed Feb 01, 2012 4:27 pm

yup, he moved over here for me. We fell in love over the internet before we had even seen each other. When he flew over to see me for the first time, we went on a little vacation and he asked me to marry him three days later. Unfortunately he had to fly back to England and stay there for quite a long time. But eventually he was able to move here and we married and have been married now for 12 yrs. Very fairy tale story-ish Very Happy
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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Post  JemimaSurrender Wed Feb 01, 2012 7:08 pm

Aww, that's lovely! It's so rare to find too, you're so lucky.

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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