Vulvodynia Support
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» Hope to all my suffering ladies
SEX!!! (well, sorta) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
SEX!!! (well, sorta) EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
SEX!!! (well, sorta) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
SEX!!! (well, sorta) EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
SEX!!! (well, sorta) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
SEX!!! (well, sorta) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
SEX!!! (well, sorta) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
SEX!!! (well, sorta) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
SEX!!! (well, sorta) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


SEX!!! (well, sorta)

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SEX!!! (well, sorta) Empty SEX!!! (well, sorta)

Post  shortstuff Sun Feb 12, 2012 1:39 am

I am on such a high right now I had to post.

I tried doing some massages these past few days to try to open up the vestibule a bit (it was really tight, could barely get a pinky in.. not sure if it's swelling or muscle resistance). First day, HURT TERRIBLY!!! Worst my pain had been in weeks. But I did it again anyway the second night, and again this morning and just kept telling myself, "I'M GOING TO GET BETTER! SEX IS NOT PAINFUL!" lol I also used my vibrator just on the clit to get some sense of relief (also been reading Dr. Glazer's stuff). Today, I wasn't feeling quite so badly. Oh, and i've been using TONS of vaseline during the day so it doesn't feel so dry and raw.

First of all, my boyfriend is also starting to equate sex with pain (either pain of rejection or knowing it might cause me pain afterwards) and so he has been afraid to initiate ANY intimacy, including kissing, touching other areas, ect. He calls us born again virgins Sad He has been so supportive but I have been feeling really nonsexual, it's been killing my self esteem, plus the other health issues... been a bad month mentally. So today, I put on a cute dress, loaded up on vaseline and told myself nothing hurt and I was sexy (lol, I know cheesy but it did boost my self esteem a bit to wear the dress). Everytime i felt a sting, I just repeated "nothing hurts and I am sexy". I wasn't planning on anything happening, but I wanted to feel sexy.

So, we were cuddling on the couch and I kissed him and BOOM!! Our first passionate kiss in WEEKS, perhaps months (I can't even tell anymore). He relaxed a bit and started exploring, staying FAR from down there. I wanted it though, and so I went for it. We got just the tip (barely even that) in, and he just left it there (thank God he knew not to go farther) for TWO MINUTES!! and I was fine physically. We both cried to even have that little bit of sexual feeling back.

The mental part of this disorder is so much harder for me sometimes then the physical pain. I haven't felt like a woman in so long, and today just completely boosted me up again.

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 36
Location : Florida, United States

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Post  Sarah001 Sun Feb 12, 2012 1:16 pm

I'm really pleased for you and I think you might benefit from a set of dilators too, buy a cheap set and oil them up then starting with the smallest one just insert as far as you can and leave in place for a few minutes working up to about 20 minutes then gradually move up a size until you reach the largest one. That gets the body ready for penetration and helps to soften and relax the tissue after massage.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  shortstuff Sun Feb 12, 2012 2:34 pm

Thank you Sarah001. I've been considering the dilators... Some of it for me is constantly thinking it's going to hurt, even on days it doesn't and being afraid of penetration now in general. I'm really thinking mine was caused by hormonal changes, and i'm going to force the doctors to check them out, which I know is going to be difficult considering my age and the lack of knowledge they seem to have. I'm bringing a bunch of printouts on hormone imbalances and their effects on the body because they match every one of my symptoms. The one doctor had been treating the V with estrogen cream, and then the other symptoms started so I'm thinking my hormones got really messed up.

The pain, from my logic lol, has caused me to tense up down there to protect everything, and i need to get over that fear. I keep trying to relax it everytime I realize I'm tensing... I've been relaxing it like pretending I'm about to pee, is this the correct way?

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 36
Location : Florida, United States

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Post  lolainslacks Sun Feb 12, 2012 3:09 pm

The exercise you're doing that feels like you're pretedning to pee will be helpful. My physiotherapist told me that a good way to relax the muscles there is to tense them as hard as you can, and then release. When you release, really pay attention to what you are feeling, and try to identify which muscles you can feel relaxing. Try to get used to the feeling of having them relax. Over time you should be able to mimic this relaxation without the tensing beforehand. In the beginning when you first start, tense and relax repeatedly for a few minutes, holding them closed tight for about ten seconds, then releasing for ten seconds, etc. It helps to do this with the insertion of a finger. Tense around the finger, and then relase, really focusing as hard as you can on the feeling of release, and trying to release further each time. When I first started physio, this is what she would have me do, and it helped an emormous amount. I used to have pretty much zero control of the tensing of my muscles down there. I was afraid of any penetration and would tense unconsciously, and I had no idea how to release. Now I have almost full control over it.

I also second Sarah's suggestion about buying dilators. I have a set and they have been the biggest help for me. In the beginning I was so afraid of penetration and even the smallest ones hurt. But I persisted in using them often and now I can manage all of them. I have to use a numbing lidocaine gel to get up to the biggest ones, because obviously not all of my pain results from muslce tension -- my vulvodynia just will not allow me pain free penetration with larger objects. But still, without the lidocaine I can get a lot farther than I used to be able to. It's scary at first, and yes it will be a little painful to begin with, but your body will adjust and get used to the feeling of insertion, and you will definitely benefit in the long run.

I'm so pleased to hear of this sexual achievement by the way. To the ordinary women it may not sound like much, but we vulvodynia sufferers recognize how big of a step this is, I'm so happy for you and your partner. He sounds amazing by the way, you have been really lucky to find someone so understanding.

lolainslacks

Posts : 115
Join date : 2011-04-18

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Post  shortstuff Sun Feb 12, 2012 4:48 pm

Thank you lola! Definately going to check out some dilators.

My partner is amazing and so supportive. My symptoms started shortly after we first started being physical with one another, and it definately took a toll on us since we were in the beginning of a relationship and the sex had been incredibly emotional for both of us. But, he's stuck by me and I appreciate him so much for it. It's hard seeing how big of an impact its had on his emotional wellbeing though.

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 36
Location : Florida, United States

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Post  Sarah001 Sun Feb 12, 2012 7:37 pm

Yes pretending you're relaxing to pee is a great way to do it, I then expand on that by really paying attention to what I'm doing with the rest of the pelvic floor and imagine the relaxation kind of spreading out towards my hips and sit bones. But dilators are really helpful, I leave on in place for a while most days and the days I do I'm alot better the next day and if I skip a day I really notice. Dilators take a few months to make a difference though so don't get discouraged in the beginning.
Sarah001
Sarah001

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Post  fairyemma1980 Sat Feb 18, 2012 9:51 pm

Really happy for you to get back some of your relationship with your fella. Know exactly how awful it can make you feel (both of you).

I've very recently discovered this website (although I'm sure other sufferers will have come across this before) -
http://www.yesyesyes.org/index.htm

They sell natural lubricants which can work really well for V sufferers. I've not been able to have sex with my husband for about six years but I decided it was time to start trying again, because we would like to start a family. Last month, using lidocaine to numb first AND some of the YES baby lubricant (from the site above) we were able to have sex - couldn't believe it!!! Am now hoping to get pregnant soon!


fairyemma1980

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Age : 43
Location : Sheffield UK

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