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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Finally gone after 5 years
+4
ButterflyLiz
pepper7
JemimaSurrender
Lara
8 posters
Page 1 of 1
Finally gone after 5 years
I suffered with this for 5 years. Take Fluconazole for 1 to 2 weeks and then take one when/if symptoms reappear. A few months after doing this week of treatment it went away forever. Over the years I had tried everything else. Nothing else worked and I am so glad that hell is over. Be skeptical of homeopathic remedies.
Lara- Posts : 7
Join date : 2011-05-29
Re: Finally gone after 5 years
That's really good news Lara!
I had Fluconazole as a thrush treatment for a good few months. I would take it for a week, then take one tablet at the start of every week to ward off any more thrush outbursts. It worked great for a good while and I stopped taking it with no further trouble. My recurrent thrush then came back, and after taking Fluconazole again for a few weeks I was still suffering, and thus the story of V starts!
It's really interesting that this worked for you though. I think I'll have to look into it again. I'm willing to try anything!
Thanks for the heads up Lara!
I had Fluconazole as a thrush treatment for a good few months. I would take it for a week, then take one tablet at the start of every week to ward off any more thrush outbursts. It worked great for a good while and I stopped taking it with no further trouble. My recurrent thrush then came back, and after taking Fluconazole again for a few weeks I was still suffering, and thus the story of V starts!
It's really interesting that this worked for you though. I think I'll have to look into it again. I'm willing to try anything!
Thanks for the heads up Lara!
JemimaSurrender- Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK
Re: Finally gone after 5 years
Yeah so I took 1 and a half 100mg tablets daily. Apparently it was a sub-clinical yeast infection. I had ruled out that it had anything to do with yeast/thrush because I did not have any visible symptoms and the over-the-counter yeast treatments (Monistat etc) didn't help at all. But it was definitely related to yeast, at least in my case.
Lara- Posts : 7
Join date : 2011-05-29
Re: Finally gone after 5 years
Wow that sounds amazing! Ill ask my doctor about it. How long have you been pain free?
pepper7- Posts : 39
Join date : 2012-02-04
Location : UK
Re: Finally gone after 5 years
10 months so far. And not even a hint of it!
Lara- Posts : 7
Join date : 2011-05-29
Re: Finally gone after 5 years
OK so I'm being a bit thick but how long did you take it for? Every day for a week once a month? Thanks!
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Finally gone after 5 years
Could you tell us a bit more about your story?
As Liz said, how and when did you take the medication etc? And what were your V symptoms? Thanks and I'm really pleased for you!!
As Liz said, how and when did you take the medication etc? And what were your V symptoms? Thanks and I'm really pleased for you!!
penfebruary- Posts : 39
Join date : 2011-12-14
Re: Finally gone after 5 years
after waiting forever to see a gyne, she said she 'thinks' its a yeast, even though i have undoubtedly all the symptoms of V. she put me on fluconzoale which i had taken when all this hell first started. well it never worked and so when i went back to see her the second time, she said well it could be endometriosis. i know it isn't because i had this 9 years ago and had surgery done for it. the pain i had back then is absolutely in no way what i am having now.. nevertheless, being so desperate for some reprieve, i thought, i should just listen to her and go on whatever medication she was about to give me. anyways, she did not prescribe it that day and told me to come again. so this week, for the 3rd time i saw her and thinking she was going to talk about endometriosis, she completely forgot about that, never brought it up and now said maybe its a hernia. so she sent me for another ultrasound, and said if that comes back normal then she cannot help me. this is a very hopeless situation and i'd rather die that go through another day. today i was just lying down in my living room with my husband watching tv.. and i just began to visualize taking all my codeine pills, mashing up them to powder and drinking them down with a glass of juice. but then i had to remind myself, that though it seems i would never ever be able to live a normal life again, God is able to make a way where there is none.. and even if He didn't, well atleast His grace will take me through, ONE DAY AT A TIME. i am glad the fluconzaole worked for you. and maybe something else would work for me.
blessed- Posts : 10
Join date : 2012-03-09
Re: Finally gone after 5 years
I took 1 and a half 100mg Fluconazole tablets daily for one week. And then I took one pill a week for about 3 weeks after.
The plan was to take it for 2 weeks because the study my doctor was referring to had participants take it for 2 weeks. But I couldn't tolerate the side effects and I wasn't sure it would work anyway. I don't remember exactly what the side effects were, they weren't too bad but I just wasn't too motivated as I thought it was a shot in the dark. But I have never had any symptoms since, as was the case for a significant proportion of participants in the study.
My V symptoms were, ughh I don't even want to think about it... but, well they were achy V, very painful if not impossible to have intercourse, it felt like my vulva secreted tabasco sauce, achy ovaries, hurt to sit, made me lethargic when it flared up - which was for about a week or more at a time and then it disapated for 1 - 3 weeks. The cycle was not related to my mentrual cycle. Throbbing. Burning. No visible signs, though sometimes had tears like small paper-cuts.
The plan was to take it for 2 weeks because the study my doctor was referring to had participants take it for 2 weeks. But I couldn't tolerate the side effects and I wasn't sure it would work anyway. I don't remember exactly what the side effects were, they weren't too bad but I just wasn't too motivated as I thought it was a shot in the dark. But I have never had any symptoms since, as was the case for a significant proportion of participants in the study.
My V symptoms were, ughh I don't even want to think about it... but, well they were achy V, very painful if not impossible to have intercourse, it felt like my vulva secreted tabasco sauce, achy ovaries, hurt to sit, made me lethargic when it flared up - which was for about a week or more at a time and then it disapated for 1 - 3 weeks. The cycle was not related to my mentrual cycle. Throbbing. Burning. No visible signs, though sometimes had tears like small paper-cuts.
Lara- Posts : 7
Join date : 2011-05-29
Re: Finally gone after 5 years
Thanks Lara, that's really interesting. I'm thinking of taking the idea to my doctor, would love to find that study. Do you know any more about it e.g. did it focus just on people with subclinical infections or all types of yeast? Thanks for your help xx
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Finally gone after 5 years
I wish I had the study, but I do not. I also moved, so I no longer see that doctor. The study focused on people with vulodynia, not specifically with any recognized yeast infection. You're very welcome! I just read once that V success stories are rarely posted because once the individual is all better, they are less inclined to revisit these sites. So I wanted to make the effort to let you all know. It was horrible to suffer through and after 5 years I almost resigned to the idea that it would never end. But I'm so relieved and so grateful to scientific research studies like these. Best of luck to you!
Lara- Posts : 7
Join date : 2011-05-29
Re: Finally gone after 5 years
Gutted! I tried this idea...150mg fluconazole DAILY for 3 months...did nothing apart from stop the white discharge...was so upset when it didn't cure me
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Finally gone after 5 years
If I ever can have sex again though I will def take the weekly dose of fluconazole, as I'm so prone to yeast infections xx
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Finally gone after 5 years
Hm, it's proving difficult to find! This is the only study I can find that mentions vulvodynia & diflucan. I don't think it's the right one cos they do specifically look for yeast, but it's interesting nonetheless cos it shows colposcopy can show up yeast even when a culture doesn't - and in those patients, long-term yeast treatment had a 60% success rate.
http://www.ncbi.nlm.nih.gov/pubmed/17286065
http://www.ncbi.nlm.nih.gov/pubmed/17286065
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Finally gone after 5 years
So I tried this.... and it seems to have worked not 100% but 85% at least! Iv not had any pain since I last posted which was a month ago (maybe more, maybe less) I still have slight pain but nothing like what I had previously. Im just hoping and praying it continues
Fingers crossed
Px
Fingers crossed
Px
pepper7- Posts : 39
Join date : 2012-02-04
Location : UK
Re: Finally gone after 5 years
Candida (yeast) can be systemic as well. A blood test will tell. I tested positive and my doctor, who is not a gyn, but specializes in integrative medicine is treating me with 100 mg Diflucan twice daily. I tried 200 mg once daily, but that way the die-off reaction was so bad I could hardly function. I`m on it for 2 weeks, off for one week. The theory is that the yeast spores, which the Diflucan does not get, can develop during that week off into yeast to be then killed by the meds. We are planning to do this until I have no longer a reaction to the meds, which will tell that the yeast is dead. At the same time I went on a low-carb diet to literally starve the yeast. The only carbs I eat come from veggies. No starches whatsoever. I do have other food issues as well (I posted the histamine topic yesterday), so I`m on a very restricted diet.
There is another yeast though, Candida glabrata, which does not respond to Fuoconazole at all.
There is another yeast though, Candida glabrata, which does not respond to Fuoconazole at all.
Kallista- Posts : 2
Join date : 2012-05-01
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer